Well done Nettie. That is a real achievement. Look forward to seeing photos.

Love Jean x

Hi Everyone
I will not bore you with general details except to say,husband started on ctd,now on velcade and looks if he will not be offered sct.

My point on this,is we were told he had Myeloma told about Myeloma trials and felt we had no options,asked if we had any questions,how can you ask questions if you do not know what to…[Read more]

Hi Everyone
How about

HENPECKED
I know I leave you with the same end but Slim tells me i keep doing that:-) :-/ :-S
KED

Love Eve

Well done that Nutty Nettie
Wow aint you the brave one:-D I might have cussed for you also if I watched you go over the rail:-S

Once again Nettie a Well done from iccle ole me 😎

Tom "Onwards and Now Upwards" xxxx

Hi Dai,
I was on zometa but have never (touch wood) experienced bone damage to date. I'm off it at the moment as I'm still only 2 months post transplant, but I expect to be put back onto it in the next couple of weeks.
Sorry if that blows your theory out of the water!!
I am with Gareth Morgan so he may be biased….I think he was responsible…[Read more]

Well done Dai….I am so pleased for you.
And as daunting as it is, go out there and live life to the full. Hopefully with your positivity, you'll get a year or more of remission and I wish you all the best with that. Drug free time is a blessing once you have started isn't it….
Take care
Debs x

Hi Etta's husband (do you have a name? :-))
I hope she's got over the flu symptoms and that they were only from the zometa….hopefully she'll only suffer the first time too.
With regard to staging, I've never been told. To be honest, I've never asked as I've just focused on my pp levels. I think it is pretty normal so I wouldn't worry – it is…[Read more]

Hi Shir
Nice to see you keeping your chin up,would drive me mad too,Do not know if your are on face book,but they have scrabble on there ,and now i find myself
in the house more ,I play alot,also Slim plays to keep his mind active,I agree completely would not be without my lap top,use it to skype a lot,shows when friends are on line,so pop in…[Read more]

Hi |Girls
If i may call you that.My kids are terrified when I drive because if they talk to me,I have to take my eyes of the road,even my son-in-laws are scared.LOL.
I wish I could wave a magic wand and take all your pain away,but it,s not going to happen.
Life will go on and each day you will find some thing to smile about,I hope you will all…[Read more]

Hi Everybody
Zometa is known to be very effective on bone damage,usually administered once a month to strengthen bone with Adcal-D3 once a day.This has worked wonders on Slim,who could not even lift a carry bag with one item in.
Now he is on Velcade he has Zometa every three weeks,but Myeloma is 80% in marrow,
I can only say doing research on…[Read more]

Ho Dai I am so pleased for you,I hope tonight you are sitting there with a big grin on your face,must feel like winning the lottery.
Only this is far more important,and more worth while.
May you enjoy the freedom this gives you.Love Eve

WOOHOO BRILLIANT NEWS!! Dai its wonderful to hear you have been given freedom from the beast I really hope its for a very long time. Now you can both have fun and live life to the max again Thank goodness you made the journey from Wales and away from that awful doctor , when you did. I was so upset when I read your first post on here, its a…[Read more]

Hi Debs
I do feel for you,they treat you like you are thick as two short planks,and wonder why patients loose there respect for doctors.
I had a problem,with a doctor last week,in the end I told him I was standing my ground,as i new when Slim was not well did not go down well:-P but worked.

Same doctor couple of hours later could not have…[Read more]

Hello Gill

its the rows that keep us going:-P
Regards to Stephen
Love Jox

Hi Eve
yes he did take me out for a nice steak and I do get flowers now and again
we manage to row a lot but we laugh a lot as well and thats important
Geoff doesn't plan ahead but he manages to remember at the last minute 🙂
but I do drop a few hints;-)
Regards to Slim
Love Jo x

Hello Ettas Husband
When I had CDT i felt terrible all the time I was on the DEX no sleep but tired all the time it also makes you very irritable or it did me so bare with her if this happens I wasn't
sick which was lucky my consultant also said never mind about what stage I never did find out. I didnt have zometa but premidrinate same sort of…[Read more]

Hi Debs if ever a rant was needed that one was ! How infuriating for you and why dont they listen to us the people who are on the sharp end of their service . I had problems after seeing a pain consultant , between him and my gp it took weeks to get my morphine and pregablin sorted out Actually I dont take the pregablin anymore it made me very…[Read more]

Hi Ettas hubby I hope she is feeling better by now . I agree its good to let someone look after you now and again but sometimes its hard to let them do it A lot of doctors dont agree with staging now we have so many new drugs and treatments its not as relevant as it used to be so try not to worry love Bridget

Hi Bridget am sure you will love the hot spells when they are back they say its gonna be a long cold winter 🙁

And Min I nearly wet my pants reading your post ha ha and am not that old yet 😎 I hope we dont come across it on "You Tube" from some one else walking their dog he he

Love and Hugs to you all

TOm "Onwards and Upwards"…

Hi Etta's Hubby

Sounds like the symptoms I had flu like but i got used to that.

Tell Etta from me that she needs to let people fuss over her the more the better:-D

Just a reminder keep your eye on Etta's temperture and dont let it get too high.

Tom "Onwards and Upwards"