Hi Pamela

I hope you sell more tickets to the Ball 😀

Shame I aint that close to Belfast :-S

Love and Hugs

Tom "Onwards and Upwards" xxx

Hi Girls

Sorry for delay 🙁 but am pleased all went well with your trip to Ireland am sure it was a little boozy?? with a lot of laughter 😀

Love and Hugs

Tom xx

Hi Tina thankyou thats reassuring to know after Revlimid Although to be fair the side-effects with Revlimid werent terrible just a real pain when combined with Dex . Watch this space ! love Bridgetx

My Dearest Min

I understand your feelings about not wanting to stay on this site, Dai has put the words of all of us so Eloquently (Spelling ?) that all I can say is please take time out if you need to but please we would love you to stay.

You Min are part of my "Online" Family and your pain is my pain, your joys will be my joys I understand…[Read more]

Hi Nadine and welcome ,sorry I seem to have missed your original post. It sounds as if you and your mum are coping well with getting to grips with this myeloma lark. It struck me when you said you are being strong for your mum that perhaps she is doing exactly the same to protect you and this could be making it difficult to talk But try not to…[Read more]

Hi
MySuch a relief to hear there are others out there. Took my grandchildren shopping with me today as their teachers had closed the school for a training day. My four year old little grandson spent the first 10 minutes trying to negotiate how many items I could buy before we went to McDonalds and when I wouldnt play that game tried to negotiate…[Read more]

Hi Nadine and welcome
Hope this helps. I had my STC in Feb of this year and although I can´t say recovery was as quick as I would have liked I am now in remission so I can´t ask for more.
I do get very tired but on the other hand that could be because I look after three horses every day, do all the housework and cooking and shopping, laundry e…[Read more]

Hi Bridget

Glad to hear from you. I am sorry to hear that the RT took so much out of you. I hope by now your energy is starting to return. Brilliant news on the bl**dy pain. Long may it continue!!!!

Good to hear that you are enjoying sunshine. What is that!!! Oh yes now I remember ? it?s that bright yellow ball in the sky!! It has…[Read more]

Hi Jean I wondered what happened to that post!! I was writing about how exhausted the radiotherapy has made me feel and then I dont know what happened!! But I can honestly say I have never felt so tired in my lifeLast year they told me tiredness could be a side-effect of the RT but I didnt feel any different It may be because I still have these…[Read more]

Hi Mary and Theresa how lovely to hear from you. I am glad your holiday felt right and it must have been such a comfort for your mum that you were with her Both your parents must be very proud to have such lovely caring daughters, you are a credit to them Take care and please pass on my best wishes to your mum love Bridget xx

Hi Susannah wow you have certainly been kept busy!! I am glad to hear both Michael and your daughter are feeling better though but now is the time for you to look after yourself! Go and treat yourself to some pampering you deserve it! I will be starting Bendamuste in the next couple of weeks it was a choice between that and a course of heavy duty…[Read more]

Hi

ESTABLISH

Ok – ISH

Jean x

Hi Amelie
Sorry to reply so late but I have only just read this. I had my SCT in Feb of this year and yes, I am FED UP with my itchy back and my medical team see to think it´s to be accepted – just the result of the Melphalan and resulting very dry skin.
However, I´m going to investigate eosinophilic folliculitis further and see if I can get s…[Read more]

Hi Paul and welcome
I am on the Myeloma 11 trial with Revlimid. Hope this helps – I had my stem cell transplant in February and although I haven´t found recovery a swift process (I´m a horse rider and sailing kind of person so I´m sure you understand my lack of pacience!) my paraprotien level is now 00. Basically this means I am officially in…[Read more]

Hi Bridget

Was wondering if you are ok? I got an email in response to the thread about a posting from you. It was written at 00:48. You were saying that you were feeling really exhausted. The text then tailed off to gobble de gook. Tried the link but would not take me through to your post. If you feel up to it – can you post to let us know how…[Read more]

Hi Helen
I to am a glass half full rather half empty person so positive stuff and we shall keep going.Thanks again for the info Helen much appreciated.Wow 3-6 months recovery time but like you say its an individualistic thing.Glad to hear that its gone well.
speak soon paul

Well I dont know why you were asked to keep it on:-S

Me I have to admit I HATE heights:-0 so love the way you are doing it 🙂
Posted the link on Face Book from your local paper 😎

Love
Tom "Onwards and Downwards" xx

Hi Nettie

And what a great article 😀 and you are better than a "Page Three" girl 😀

Good Luck and dont look down Tee hee 😎

Love
Tom "Onwards and (for you Nettie) Downwards" xxxx

Hi Bridget

It is so good to hear that at last you are getting relief from that bl..dy pain. You really are an inspiration to others and hope that every morning you wake up you feel a lot better.

Much love Jean. xx