Hi Dai

Great news about the numbers. One thing, as I reckon it you have only two more treatments, and then you will be able to get on with your life, in remission, and hopefully be treatment free for a long long time, and hopefully time for side effects to subside.

Hang on in there, let's hope the next two treatments are much less…[Read more]

Well Nettie

You have more oo than I lol, Mad? No I dont think you are Brave? Yes I think thats the one 🙂

Good Luck.

Love

"Tom Onwards (and just for this thread) and downwards" xxx

Hi everyone,
My word EGREMONT

It's the name of a apple
The name of a plce in Cumbria
And the name of my house!

ONT

Liz xx

Hello Dai, what great news! It's lovely to hear your readings are fantastic for you
As kev is there ( nottm city) next Monday hoping for the CR word from the prof:
Sorry your feeling sticky and sickly and hope it quickly passes!! And you continue to be a very happy bunny:-)

Love liz& kev xx

Hi Eve

Hope you both can make it the parking is just out side the venue which is next to London Zoo last year there was loads of parking if you needed it
Love Jo

Hi Aileen
Just popped into the site, saw your post and wanted to say welcome but really sorry that you find yourself needing to join us.
I have found this site to be a huge support and there is always someone who has had experience that they are willing to share with you or perhaps talk over what options etc.
Sometimes, I have even found…[Read more]

Hello Alexis

Just wanted to say welcome (but obviously sorry that you need to be here).
I too am on Revlimid and am always interested to share experiences with others who are also using or have used Revlimid.
Best wishes
Carol

Dai

What a wonderful post. I loved it. Thank you.
Jean x

Hi Jo
Thanks for the information,will ring and find out how late I can book it,and check about parking.If problems with parking Slim will not be able to come,as he cannot walk or stand for any length of time.
Also not sure how he will be,1 week of 4 cycle,has hospital on Friday,I might go on my own,It is easier to go by train then tube,but there…[Read more]

Hi Dai
4.21 am,and your creative demons,are all around you,to be able to express living and death in such a powerful way is a wonderful gift ,I think you have expressed my thoughts on life ,but put it in a nicer way than I can:-)
May be they are not demons but angels,your not ready to jump on the cloud yet.

When I read this my thoughts turned…[Read more]

Hi Ivan

Do hope Velcade works out for you. My husband has PN because of diabetes and he gets severe pains in his toes. Hope you are getting some relief now.

Best wishes.

Mavis

Dear Bridget

All best wishes for tomorow.

Love Mavis xx

Hi Gill

Can I also wish Stephen well with his op.

Best wishes.

Mavis

Hi Nettie

Like everyone else i am in awe of the challenge you have set yourself!
Hope you raise lot to make the effort worth while. I'm so glad you are feeling up to doing it.

Very best wishes.

Mavis

Hi Alexis and John

From me too a welcome to you both. Hope John finds it helpful via you Alexis!

Best wishes

Mavis

Hi Helen,
I've been a bit different to you…I have told the world what I'm going through – stemming from when I did the Yorkshire 3 Peaks to raise £15k for MMUK. I sort of had to tell my story for that.
So, no, I don't wear anything on my head at all! Very refreshing and people assure me I have a nice shaped head (?!).
My SCT was on the 18th…[Read more]

Gill

wish Stephen all the luck for his op lets hope it all goes smoothly We have been called into our surgery for the flu jobs so our lot are on the ball
Regards to stephen ps i CANNOT SPELL FOR TOFFEE
Love JO

Hello Scott

just to mention there is a really interesting article on the web look up Sodium bicarbonate and cancer treatment it a good read
Regards Jo

Hello Ali

my renal Doc seems to want to keep me on the high dose of sodium bicarb
so I will have to keep rattling for now as for the bone food they put me on a low dose of premidrinate just 30mgs once a month I dont seem to have any problems withit. We had a good holiday in Scotland with only two days rain in two weeks8-)glad you had a good…[Read more]

Hi Gina

glad you enjoyed the info day I have found them so informative and my husband who is my carer got a lot out of the day we are going to the London one in October
Hope Mum is ok:-)
Love Jo