Hi Eve

Hope Slim is doing ok just to let you know the next info day In London is this October if you could make it

Love to Slim
Regards Jo

Welcome Alexis and John
glad you have found time to post you are very welcome please tell us about your and Johns journey we will all be interested:-)
Love Jo

Hello Aileen

sorry you have had to join this group but welcome you will find all the support and help on this site you amy find it a relief to talk to other sufferes as not many people in the big wide world have heard of it.
Dont forget the Myeloma uk help line they are brilliant:-)

Keep well love Jo

Hi everyone, a familiar word ( I thought ) THREAD

Leaving. EAD

Liz xx

Hi Helen

Its only some time that it still leaves a "Pencil Tash" other time its Normal.

And Yes I had a sore mouth but was nearly all cleared up about two weeks a month after SCT:-( which in itself wasn't that good but was still off my food and that helped.

as for the hair loss all I had left was my Eyelashes and that was it :-0…[Read more]

Your More than welcome Alexis, and you can Tell John I also am too shy :-0 to post (aint i fellow members )
And when you get to the "who the heck are you" just nip in and let me know who i am lol.

Tom "Onwards and Upwardfs" xxx

Hi Aileeen

Like everyone else I welcome you (sadly) to this grand site. You will find the hellp and support you need here.

One thing no one has mentioned yet, but which you might have picked up if you have read earlier posts, is that not everyone starts treatment straight away. Don't be worried if they suggest a "wait and see" stratergy -…[Read more]

Hi Alex I am on my 7th cycle of Revlimid and exhaustion has been a constant throughout It seems to be a very common problem too!! All I can say really is go with the flow and when John feels he needs to rest then thats just what he needs to do It didnt take me long after being diagnosed to realise that there is no choice but to listen to my body…[Read more]

Hi Everyone

How about HENCEFORTH A word not spoken very much but used a lot in letters.

RTH
Eve

Hi Gill
Just to wish you and Stephen good luck,hope every thing goes to plan,and you can have a bit of a rest soon,have noticed you are another one,who burns the midnight oil,terrible when sleep will just not come:-(
The rugby has taken over from the post on here a little bit,I enjoy the solitude of the early hours,If I want to feel a bit sorry…[Read more]

Hi Gina
Glad you and your sister enjoyed the info day:-)It helps i think when you meet people who have been living with MM a log time,it gives you a lot of hope,and on bad days,you can think its just a slight hiccup,and tomorrow will be better;-)
My nearest info day will be London next year,and nearest support group is over 60 miles away, that,s…[Read more]

Hi Aileen

And a warm welcome from iccle ole me 😀 and as for not knowing type you have joint me as I aint a clue what type i have and i have had it since 2009:-0
But am gonna find out next time i see my Dr? in about three months I think :-S

Good Luck with your treatment.

Hugs

Tom "Onwards and Upwards" xxx

Hi Deb's

As you know I am a fiar few months Post sct and as for hair growth (and am sure you wont have this problem) facial hair? if I dont shave for a day or two I get a Pencil tash ? seem to have a line of "None Growth" around the mouth and chin? but am nearly used to it by now? so will let it grow as it comes 😎

Tom xx

Thanks Gina am doing "Spot On" thanks 😎 some weeks i dont know I have MM 😀 then the iccle devil pops up and tells me am "Tired" :-S but hey ho thats MM for you :-0

Tom "Onwards and Upwards" xx

Hi Helen,
I never bothered with a wig I have to say. My mum bought me one (over £200!!!) as I was worried how the kids would react, but they were brilliant and I just found the idea of it too hot, and not me. When they didn't react to the hair (other than saying it felt like a hamster :-/ )I never bothered wearing it, and now find myself…[Read more]

Hi Aileen,
Sorry to hear of your diagnosis but really pleased that you have found this site. I hope that it helps you along this journey that you find yourself on…and that we can help you too.
Ask any question…none is stupid…we've all been there no matter how much it seems like we use all the jargon…sadly we've learnt it over time.
Take…[Read more]

Hi Gina
Thanks for the post 😀 pleased you had a great day (bet it was a long day)
as for me I aint been to one yet? (my fault).

Love
Tom "Onwards and Upwards" xxx

Hello Alexis and John

A warm welcome to the site one that you and John will find a great help as you go down the road of MM.

No need to sign up just post add to other posts or make your own post and do your bio, I for one would love to read it.
Folk on here are like the info line as they help,comfort and support each other in their good and…[Read more]

Hi Alexis
My name is Eve welcome to the club,i never introduced myself officially,just,joined in,Then some one put on a thread"Who the Heck are you" think you will find it in Off Topic just scroll down.I came out on that no reason it cannot be updated on.:-)
So good luck,By the way i am a carer to my husband, keep posting Eve

Hi Gill I am glad Stephen has got a date at last ,it seems ages since you first mentioned his lump As for the full diary what social butterflies we are!! Thanks for the reminder about the flu jab I am hopeless at booking them so have now left myself notes around the house , like thats going to work!! Take care and good luck for the op Bridget x