Hi Aileen welcome to our merry band!! It is a huge shock when you are first given the news but as you begin your treatment, if any is needed. things will soon become clearer The info line on here is manned by nursing experts who are only too glad to help with questions Last but not least there are so many lovely people on here to support you when…[Read more]

Hi Ivan
It does depend on what type of Myeloma you have and how much bone damage and tumours,plus lesions.some are more aggressive than others.
This is such an individual decease you cannot go on anybodies bench makers.
Did you ask why they had taken you off CDT and put you on Velcade after just a few cycles???? You would normally do at least 4…[Read more]

Hi Ailleen
Welcome to the site,i have been on here since February,and must admit in the bad times could not have managed with out it.:-(
As David says some one is always ahead of you on this journey,I am a carer to my husband,It does take a little bit of time to take in,but my attitude is i want to know everything about this MM,
So do not…[Read more]

hi Ivan
Worth checking out,blood clots one of the side effects,pity about CDT,Slims on 2 cycle of Velcade,no big side effects(touch wood).
It might seem very small ,(like a sore leg) but do get things checked out.
will not have blood clots in future with Clexane surprised you were on such a low does,you look a big man from photo,goes on weight…[Read more]

Hi Bridget

Sorry your first lot dint go too well 🙁 But am pleased the next one was better 😀

This MM is a bit of a trickster as you say runs smooth (ish) then wallop a smack at the side of the head and it takes weeks before a decision can be made re the meds:-S am sure the know about the pain and fear folk are in and the wait should…[Read more]

Hi Helen

Erm Now do I post a photo of me with hair?? and do I post the one with a side parting? or the one with a middle parting? or the one that was after My young Bride Elaine gave me a perm that I tried to comb out ha ha ha.

What was my head like before kids made me bald? well it was Long (past my shoulders) Jet black and wavy 😀 8-)…[Read more]

Hi Nettie
Got to say you have got some guts!!!.but understand were you are coming from,My money will be on its way to you as soon as i work out how to do it,will put it on my facebook,people seem to find it an easy way to give.
My son in law just done the three peak challenge in 24hr.in shocking conditions,the group raised 7000 for childrens…[Read more]

Hi Ted
Must admit never heard of phone appointment !!!. We can ring after 1pm for app.now have a doctor just for extra app and surgery has very early app and late app at 7am and up to 7pm twice a week.
it is getting past the reception desk is the big thing,for eg: my husband has injections which he does himself,my doctors do not like having to…[Read more]

Hi Gill and Bridget,
Gill all that sea air was doing Stephen some good LOL
Talking about the h-e-l-l word,how can they consider it inappropriate !!!!!
Taken a second look at the carpet and walls urghhhhh,bought him a bucket with lid he can carry round .
Bridget good to hear you are in good spirit, or as are tom would say Onward and Upward:-)
love Eve

Dear Martin I am sorry you have lost your dad but it seems he passed in a dignified and peaceful way at home which must have been a comfort to you all Please pass on my condolences to your mum Bridget

Hi Eve yes its good to assert yoyrself when you need to and if Slim wont then he can rely on you If only more doctors learnt how to truly listen to their patients though! So glad Slim is on the mend and hope you caught it nice and early As for upchucking on the carpet sounds like a new carpet needed there Eve!! love to you both Bridget x

Hi bridget
just caught you post before i closed down,i must tell you what went on today,
Went to hospital today,should have gone yesterday,Slim not well,but hung on till last minute,did not matter he painted the white carpet with sick,thats never ever going to come out.:-/
Saw doctor,"o yes his eyes said,no you think you have an infection,I…[Read more]

Hi as I am feeling a bit peckish my word is GNOCCHI and the next one is CHI love Bridget x

Wow Nettie you are amazing there is no way I could do that how brave you are! Well you might be a bit batty but blooming heck that is batty at its best . I will pass the word about sponsoring you Thankyou Nettie for being incredible love Bridget x

Hi Mavis this post really made me smile thankyou Its just the sort of thing that happens to me too !!Tee-hee Good job we are all the same love Bridget x

Hi everyone thankyou what would I do without you to keep me going! Well today I took 20mg in the morning, because thats guaranteed to keep paon away for a few hours followed by a hefty dose of Hydrnorm liquid add an anti-sickness tablet and I was ready to face the world The RT was over in minutes and totally pain free!!Eureka I have found the…[Read more]

Hi Bridget
How are you doing,!! I know by your post,you seem cheerful,its what I call a happy face:-).is the pain starting to get under control,that,s the main thing,Day by day Bridget,you have so much going for you.Keep smiling Eve

Hi Everyone
My word to day is UNDERSTANDING
I have chosen this as I think as a word it says a lot.

ING

Eve

Hi Martin
May I say thank you for letting us know about your father,condolences to all your family.
He died at home with his family,I could not think of a better way to die,I have never heard of the Crossroad girls,but i do know the Macmillan do what they can to make the passing easy,I am so glad your mother found some comfort in this.We fight…[Read more]

Hi everyone
I've been reading this thread all week thinking what a great idea!
Couldn't begin to think of a word till now!
So here it is my word is PICTURED

leaving RED?
Lizx