Hi Dai what wonderful news to start the day with! Its been hard fought for but you got there !! Heres to a very long remission and no drugs !! If it were me I would be tempted to drop a line to the exceeedingly stupid doctor in Wales who behaved so appallingly I hope you and Janet have got lots of fun things planned so get out there and forget…[Read more]

Hi Gina
Is your mum well enough to get her to the info day??? it might just give her the boost she needs.
At least when you go,to info day,it should be a help for you and your sister, when you see people who beating this disease it is such a boost so have a good day,and don,t forget to tell us all about it love Eve

I love to watch the sunrise in the morning,I put bird seeds out every morning just before the sunrise and watch the birds come down,when I miss it for any reason,the wood pigeons seem to be watching me as if to say "come on you have forgot this morning"
I love the seasons many I have missed this year,i watched spring from windows,and summer has…[Read more]

Yippee indeed Dai!!!

I am so so pleased for you after all the difficulties (they would let me put cr–!) of the last few months. Like everyone else I wish for you a very very long remission and a very well tolerated last two treatments.

Hope you don't disappear from the site as i value your posts.

Here's to music.

Mavis

Dear Helen

Glad to hear you are on the way up post SCT, even if it is a long haul. Good luck with the hair – I can understand what you are saying about that.

Strangly enough, this morning, at an early MacMillan Coffee Morning, I sat next to someone who had had chemo post breast cancer. She had been given an ice cap to wear while being…[Read more]

Hi Dai
It,s always lovely to have good news,it gives the people behind you a lorrier
lorrier hope.:-)
Holiday has worked wonders for you.Eve

What great news Dai.

I am so so chuffed for you and hope that the velcade keeps doing its job!!!

Debs x

Helen
Here's to a long remission. I am just over a month post SCT and if it gives you hope, the last two weeks have seen a big improvement in my energy levels. I still need an extra couple of hours sleep a day, and have odd days where I feel terrible and sleep all day, but all in all, those are getting fewer and fewer and there is a light at the…[Read more]

Hi Min
Can i tell you a story about what happened to Slims mum,she was going a bit doolaly but she was independent and could function.
then some spiteful person rang the pension people up and the cancelled her pension,took awhile for money to run out for standing orders,but she did not have,the ability to do anything about it,we were abroad at…[Read more]

Hi Sandra

Good luck with it all…I'm a month post transplant now!

I was told I could have a duvet etc….some people I know were told they had to take a brand new one in if they wanted to, and I was told I'd need to change the cover every day or so….I ended up not bothering even though we had the new duvet at home…i was so hot in the…[Read more]

Hi Keith,

Glad to hear that you're out of hospital and on the mend! It's a good feeling isn't it?!

I was also quite ill…from day 1 sadly….and lost over a stone in weight. Luckily, unlike you, I could afford to lose it as it was all weight I'd put on while I was on the Dex. So for me it was the one positive that I got out of the whole…[Read more]

Hi Julie
Smashing to hear from you – but so sorry for the news about your poor husband. The expression never rains but pours springs to mind – you both sound to be taking things as much in your stride as you can though and I hope you can go forward with your plans soon.

We went over to Spain to check out the house last week. Also, my husband,…[Read more]

Hi Solo welcome to our lovely group I do hope you dont need treatment for a very long time to come !!Tumours are quite common in myeloma , they are usually reduced with steroids as they are blood filled When diagnosed a very large tumour was found which had destroyed 3 of my vertebrae so my back has been reconstructed with rods and plates Since…[Read more]

Hi Gill
deux vin rouge ,s'il vous plait.

That,s the important one Eve

Well what a Post Dai, and I for one is very very pleased to read about your CR 😀

How did you feel when you were told?? I have to admit I shed a little tear down one cheek when I was told about mine:-D , Long may it continue 🙂 its what we strive for now lets hope its a blooming LONG Remission.

From one Cheeky Chappie to one Happy Chappy 😎

Way to go Bridget not long now girl 😀 hope it work good for you.

Hugs (()))
Tom "Onwards and Upwards" xxx

I Love the wait for Dai's words of wisdom 😎
I Love the walk My Young Bride (Elaine) and I have just had with Charlie (and we didn't stop at a pub??)
I love the fact that our new kitchen is all but done 😀
I love the fact that Dai will be back 😀

Onwards and Upwards (drink free) x

Hello Bridget
Just logged on and seen your post,good luck with the Radiotherapy.I got zapped when first diagnosed 4 week ago and was in some fair pain.No pain now just muscular aches.
You are a strong woman i think, so i am keeping my fingers and toes crossed for you.:-)
love Outdoors Paul

Hi Jo

Yep thats me am afraid a "Cheeky Chappie" 😎 And am pleased I make you laugh cos Laughter is the best medicine for us and it gives us less wrinkles Lol.
I have said before I can get into see my Consultant faster than I can my own GP 🙁 pleased you had a good trip to Scotland, its a beautiful place ( other places are also just as nice…[Read more]

Hi Helen

Well done and am plesed you were set up Top and bottom.:-D

Good Luck in your recovery and as for the hair well it will come back shirly temple'ish :-S and as for the long remission I wish you the same as i want for myself (21 months post sct so far and doing great) and some more years of MM free still to come;-) am sure we will do…[Read more]