BADGER replied to the topic Halleluah For Dexamethasone in the forum Off topic 14 years, 10 months ago
Well Bridget
they say every cloud has a silver lining which seems to be the case here so glad it has helped you pain what a good result
Love and HUGS jo xx
BADGER replied to the topic High dose chemo or not with renal failure. Any advice? in the forum Treatment 14 years, 10 months ago
Hello Scott
thanks we had a good holiday I hope you have a great time in Spain,8-)
I take the premidrinate for the Myeloma to strengthen my bones my sister in law calls it my bone food! I also take sodium bicarbonate tabs for the kidneys 9 500mgs a day also an alpha calcidol 0.25 three times a week kidneys seem stable at the moment When first…[Read more]
BADGER replied to the topic Queen's Hospital Burton Suport Group in the forum General 14 years, 10 months ago
Good luck with your group chelle I attend one in Welwyn Garden City Hertfordshire with my husband who is my carer We have found it so helpfull
just to talk to other people in the same situation
Regards Jo
BADGER replied to the topic New to the forum in the forum Newcomers 14 years, 10 months ago
Tom
you are so cheeky you always make me laugh I agree about the Docs mine are the same its always" we can only make 48 hour apps, can I have one no we are full up phone back tomorrow its an emergency whats wrong with you thats my business and so it goes on. The road trip to scotland was good only two days rain which was in the highlands it…[Read more]
tom replied to the topic New to the forum in the forum Newcomers 14 years, 10 months ago
Hi Ted
Well am pleased you have got rid of that Cold it hung about for long enough:-S
As for the Dr's >:-( I have what I call a vetting Receptionist š who seems adamant that I dont need to see "Her" Dr:-0 once when I needed to see "Her" Dr, I have to phone after 8 am to get an appointment š and she says to me "May I ask why you need…[Read more]
eve replied to the topic Got on the forum at last!!! in the forum Newcomers 14 years, 10 months ago
Hi Sandra
Just to say welcome,come to the right place for advice and tips,lots of people ahead of you on this journey,so they will be all rooting for you. love Eve
eve replied to the topic Advice Please! in the forum Newcomers 14 years, 10 months ago
Hi Nadine
Welcome to this site,I am sure you will find all the support and answers you need to help your mum with her illness.
As a carer and a mum,myself I try not to worry my children about my husband as my way of thinking is our lives have been put on hold,and i do not want my daughters lives to be put on hold,
I do not want them to be worry…[Read more]
eve replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 10 months ago
Hi Everyone
What about a nice simply one
BLESSED
SED
PS.Gill daughter came yesterday evening forgot to ask how to do picture,i know I can do a web one,but I want one of Slim and me out of the file.
love Eve
eve replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 10 months ago
Hi Bridget
Good luck for today,hope it takes all the pain away .Eve
CarolBradley1 replied to the topic mums appointment in the forum General 14 years, 10 months ago
CanĀ“t add any advice but I did just want to wish you all well. I know what your saying about they donĀ“t want to investigate because of her other issues but how does your Mum feel? I know when I was very very ill I was beginning to feel I was a huge long burden to my poor husband. ItĀ“s only now that I am much much better and life is returning to…[Read more]
CarolBradley1 replied to the topic Halfway point in the forum Newcomers 14 years, 10 months ago
Hi Debs
Just to let you know I have been on Reblimid for three months and like you, am exhausted and the nerve problems in my feet and hands are annoying and uncomfortable – also have tummy upsets etc. etc.
Just returned from a couple of days in Spain during which time I had to stop the tablets as I just felt so absolutely rotten. It wasnĀ“t…[Read more]
CarolBradley1 replied to the topic Advice Please! in the forum Newcomers 14 years, 10 months ago
Hi Nadine
Welcome – although like everyone else IĀ“m sorry that you have had to join us. Do you think your mum would be able to manage joining the site now that you are finding your way around? I suppose we mums always want to be strong for our children and I know that I am guilty of that – but here on this site I can be honest about how I am…[Read more]
brocho started the topic Halleluah For Dexamethasone. in the forum Off topic 14 years, 10 months ago
Well the title says it all really but anyone seeing my name on the post might think there had been an error! I have posted many times on my deep loathing of this drug Its sins are many !! Dexatude( as defined by Gill without the help of her new dictionary!) when the whole world walks on tiptoes around you and on some days you are capable of mass…[Read more]
CarolBradley1 replied to the topic Got on the forum at last!!! in the forum Newcomers 14 years, 10 months ago
Hi Sandra
Welcome (but sorry you had to join us – Best of luck with the transplant. I had mine done at St JameĀ“s Leeds and they allowed me to take in both pillows and duvet (my husband also brought in a kettle which we kept discreetly tucked away in a cupboard but they knew I had it and understood as my room was so cold and the drinks were…[Read more]
brocho replied to the topic Help…Is there anything on here about grieving? in the forum Off topic 14 years, 10 months ago
Hi Roz I can only imagine how hard it must be for you ,Min and Sarah , none of us can really know until it happens to us Ido hope you get some counselling very soon as Mari said sometimes you have to nag your gp to get what you need Please dont ever hesitate to post on here about your feelings Roz , I very much doubt anyone could be offended by…[Read more]
brocho replied to the topic Velcade induced Neuropathy in the forum Side-effects 14 years, 10 months ago
Hi Debs I really feel for you what an wawful thing to do to you! I would let them know how it feels when you next see them then perhaps they will take patients needs into account Hang in there Debs love Bridget x
brocho replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 10 months ago
Hi everyone well today ,especially this evening has been brilliant!! I took my dex nice and early and by lunchtime no back pain!!Hoping it will last till at least tomorrow as its wonderful The only thing is having to spend the early part of the day still dopey from all the morphine , but my head actually feels clear tonight Today was the first…[Read more]
brocho replied to the topic mums appointment in the forum General 14 years, 10 months ago
Hi Gina it must be a relief to know mum will get some answers next week All fingers and toes will be crossed and you have the positive vibes from all the lovely people on here too Now thats a force to be reckoned with!! I hope mum is continuing to feel a bit better , even if it seems slow it must help being at home with her family Lots of love…[Read more]
brocho replied to the topic I LOVE in the forum Off topic 14 years, 10 months ago
Well I love this post too! I also love the look on the children ,now grandchildrens faces on xmas morning when they peek in the living room to see if he has been!! I love books all shapes age and sizes Suprisingly I love my laptop Ilove my life I love the way good people care about others even those we have not met I love Dais way with words…[Read more]
mhnevill replied to the topic That subject no one wants to talk about in the forum Carers 14 years, 10 months ago
Hi Min
Sorry you have so much to sort out. My husband, who used to be in banking, says that unfortunately you will have to get the Account put in your name only. Sorry, I guess it makes it feel so final. Perhaps it might help to think of the new Account, in your name, is one of the gifts Peter left behind for you.
Keep strong. All love.
Mavis