tom replied to the topic A wonderful event in the forum General 14 years, 10 months ago
Well Good Luck for the next one Amelie, am sure it will be a success like the last one (more so with Bridget and I on the team ha ha) 😎
Now do I hold? Or Bang??:-S
Tom xx
tom replied to the topic Information Please in the forum General 14 years, 10 months ago
Hi Jean
Well I dont feel so bad now:-D I was told Jan 2009 that I have MM but (am sure he told me) dont know what type:-S as for my results? well [u][b]I have been of the opinion [/b][/u]that if Dr is smiling when I go into the room Am Happy 😎
But thinking what Eve says, I think I should take more notice of what I have:-/ am sure I at…[Read more]
tom replied to the topic Peter in the forum General 14 years, 10 months ago
Min
Still thinking of you and yours but will say more prayers for you all on Wednesday.
Am sure it will be a great day to remember the good times you and Peter had.
Lots of Love and Hugs
Tom xxx
tom replied to the topic Queen's Hospital Burton Suport Group in the forum General 14 years, 10 months ago
Good Luck Chelle, hope it runs well 🙂 keep us posted on how it goes.
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic New to the forum in the forum Newcomers 14 years, 10 months ago
Hi David, do you think it might be time to start up again he he, mind you this lot will be a spray job :-S
Tom
OutdoorsPaul started the topic Outdoors Paul Lightchains is the word!. in the forum Under 50s 14 years, 10 months ago
Hello all
Found out a little more about my Myeloma today its called Lightchains…does anyone have any pointers to a good resource for me to check out(does it have another name?) .Currently on Myeloma 11 trial RCD pathway and half way through my first cycle.Side effects OK can not complain.Listening to my body and being active striking…[Read more]
OutdoorsPaul replied to the topic Welcome Paul in the forum Under 50s 14 years, 10 months ago
Hi Mavis
Thank you for the lovely welcome to the site I attended my first consultants apt today and found out that I am a Lightchains Myeloma person…
So my consultant has told me that i dont produce para proteins its a different form.So sorry cant help on that one,completely agree about reading up on things and this web site is great…[Read more]
OutdoorsPaul replied to the topic Welcome Paul in the forum Under 50s 14 years, 10 months ago
Hi Debs
Many thanks for the advice,just been to have my first consultant check since being discharged 13 days ago.I have Lychains Myeloma so now have a name to it!(As I am a walker I have Named It "Beinn Myeloma" my next mountain to climb!)
I am half way through my first cycle and finished taking a 4 day dose of Dexy.Side effects have…[Read more]
jmsmyth replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 10 months ago
Me again
This time ACCELERATION
ION for the next
Jean x
jmsmyth replied to the topic Information Please in the forum General 14 years, 10 months ago
That's brilliant Eve. A lot of information and advice – more than I have received in the last 5 years. Much appreciated.
Love Jean x
eve replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 10 months ago
Hi
How about a nice easy one
YELLOW
Love Eve low
eve replied to the topic Information Please in the forum General 14 years, 10 months ago
Hi Jean
I use it all the time,If your unsure of anything there is a good library site,on here.
When this first started I was told Slim had MYeloma,and it was not compromising the cord,and that was it.Everything else I had to ask about,but when you are told new things your are in shock.Since then I have used this site and libraries to find out…[Read more]
brocho replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 10 months ago
Hi Jean thank you for that one! My word is — ULTIMATELY The next letters are— ELY love Bridget xxxx
jmsmyth replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 10 months ago
HI
My word is
UNFAITHFULL
Leaving ULL
All the best Jean x
brocho replied to the topic Collapsed Veins? in the forum Related conditions 14 years, 10 months ago
Hi John good to hear Cecilia is doing well please pass on my best wishes. There is nothing worse or more painful than people digging around in your arm trying to find a suitable vein !! We have to put up with enough without that too. Ask about a PICC line they are brilliant! They work on the same principle as hickman lines but completely under…[Read more]
jmsmyth replied to the topic Information Please in the forum General 14 years, 10 months ago
Thanks Eve I will look into that.
Love Jean x
ps Eve downloaded the Myeloma your essential guide from the site. A little "light reading " for tonight. Again thanks
Jean
eve replied to the topic Collapsed Veins? in the forum Related conditions 14 years, 10 months ago
Hi John
Slim has the same problem,he is also on Velcade to,I have suggested a picc line but they are worried about infections.
What I do is try to get him drinking a lot before blood test,and I have bought a hot water bottle which I fill at home,and rap it up in a pillowcase,which is applied to his arm all the way to the hospital,it seem to have…[Read more]
eve replied to the topic Information Please in the forum General 14 years, 10 months ago
Hi Jean
There is a book called Myeloma your essential guide.
It is excellent,you can read it in little bits to take it all in Myeloma UK should be able to send you one,I got mine from the hospital along with other books about cancer.
If you ask for results of test and use the book it helps you understand them,plus it helps to know when bloods…[Read more]
eve replied to the topic Sore toe and leg in the forum Side-effects 14 years, 10 months ago
Hi Ivan
how is your leg doing?????
Eve
eve replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 10 months ago
Hi
Mine is YOUTH
Leaving UTH
best wishers Eve