Hi All
Sharon what are you on now.
It does not look if Slim will be given the option of SCT,because of lung damage with septic pneumonia,after doing 6 cycles of cdt and finding it has increased in the bone marrow to 80%,I have to wonder if trials are the right way to go?,they measured the success bench marker in free light chains,which actually…[Read more]

So so sorry to read the sad news about Peter, my thoughts are with you and your family Min xxx

Ahh, thanks Tina!!

Let me see what they say to me on the 13th and then if I'm allowed to use one, I'll pop over if that's ok with you….would be good to catch up and once the kids are back at school, that'll be easier!

Love
Debs x

Thinking of you Bridget xx

Thanks Gill I never thought of that. Will do it right away

Love Jean xx

Hi Ted

Do you know I always thought it would be some form of what they call "Recreational" drugs that would be a possible cure 🙂 I can just picture us at our hospital visits all Spaced out he he.

Here is one Paper article about it…[Read more]

Morning Sally (gosh i hope you dont read this post at night:-D )

Am pleased your Dad is feeling better and you and yours are now also feeling the same 😎

As for the Transplant I know a Lady who has had MM for nearly 10 years and not had a Transplant due to other complications and is doing Ok 😀

And Eve is correct with the "Dex" when I…[Read more]

Hi Sharon
Must admit I search for everything concerning this disease,you just live in hope ,that there is something out there,that will work,and actually cure Myeloma.

I think the answer lies treating it why it is still contained in the marrow.
They are talking about 10 years research for Ecstasy.I also think some Myeloma,s are easier to…[Read more]

Hi Sally
Good to know your dads feeling a little bit more cheerful,it is a shock to the system when you are first told,and there is so much to take in.

Slim found it easier to do a big chart with the cycle on,easier to keep track of the pills,he kept 2 pill boxers one for hospital pills and one for own doctors pills.
I think you will have to…[Read more]

Hey Eve I liked that one. Well done Slim. Before I give my word – for those who have an iPhone – got one for Christmas – there is a free app called wordsfree – scrabble – I'm cr.p at it but it allows me to play with my sons in England and late at night when I can't sleep – it picks someone for me to play with. So far I have won 2 games!! I…[Read more]

Hi
Just asked the brains
SEXILY
Now you can tell it was Slim who thought of that one!!!!!

ILY

Hi Ted

Yep Kids are great we have three sons and five grandkids would I swop them ???? NO we have had a bit of bother with our middle son years ago:-S but am pleased to say he is doing great now and gave his mom and i two handsome grandsons 😀

So like you I find our kids and grandkids are great also.

Hope today finds you well Ted 8-)…[Read more]

Thanks for that Eve

Min what a Handsome pair of Gentelmen in your photo's, I am Thankful to Eve for letting me know as I missed them.

Much Love and Hugs

Tom xxx

Hi Bridget

Well you know they aint slapped hard (just a gentle tap) 😀 but you know am pleased I made you laugh:-D it in itself is a healer 😎

I hope and pray the Radio(Lincs FM)Therapy works 😎 and the pain gets the H*ll out of it 😎

Love and Hugs

Tom "Onwards and Upwards" xxxxxx

Hi Tom thanks for the laugh – my wrists are well and truly slapped!! I will go into the hospice but not until I see how much difference the radiotherapy makes, the pain might go completely with the RT love Bridget x

Oooh good one Jean next word —- WORTHILY NEXT LETTERS—-ILY XX

Dear Min

I have just gone back to your posting and noticed the attachment in the left hand corner,Thank you sharing your photo with us,Slim never goes on here but occasionally ask me why i am laughing and I read out to him little bits.
He asked me to personally say how sorry he was for your loss,

I hope you keeping well and you are in our…[Read more]

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SHADOWY

how about
YESTERDAY
never a truer word sung by Matt Monro

DAY