Gill I also tried to reply but no luck. Think I'm having a senior moment – the last three letters of the word – Must they be in order? And at the end of the word. Can you post it again?

Jean

Hi Liz good to hear Kevin is doing well after his sct . It sounds as if Lady Luck gave a helping hand along the way , especially as they werent considering mm whilst looking for anaemia Heres to lots of luck and a very long remission love Bridget x

Dear Dai and Janet have a wonderful holiday If anyone deservrs it you do Hope the red stuff does the trick nd keeps any nasty bugs away love Bridget x

Hi Paul
I am a carer to husband Slim,I sent you an email to say something wrong with your posting,other wise a lot more people would be giving you a welcome nod,no one seems to be able to reply to it.
My husband was on cdt to your cdr on myeloma trials,most people take revlimid before bed time helps you sleep.Specially after 4 days of dex you…[Read more]

Dai i do not know why you expect to be informed you only the patient,it does not matter that you have been waiting all day for something and it,s been over ruled by some one further up the ladder and no one has told you,just remember you are now an institutionalised patient:-P
I am counting those days to your holiday now .Eve;-)

Hi All
Must admit I never got pocket money,but I can remember going to the pictures on a Saturday morning,I think thats were my love of western come from,but my big thing was Flash Gorden,he was always on the point of being killed and you had to come back next week to see what happened.!
Talking about cigarettes we could buy looses I know they…[Read more]

Hi Min
Hope Peters picking up a little bit,I use to worry about Slim and his dignity So i tried to be around as much as possibly,but he was so ill,he cannot remember any of it.
I think this will alter his own perspective of illness,and i think your life will get a bit easier Min.
Might do Peter some good to keep a picture on your phone,then…[Read more]

I agree Min we should be able to double up at least 2 of those appointments,We rang last week just to remind them of things that needed to be done,and was told not to worry things were in hand!!!!
when we went on Friday no appointments had been made,nurse made blood and Zometa.Told me nothing had been arranged to late to get hold of anyone.
bank…[Read more]

Thanks everyone for your responses….I've been 3 months off the velcade so have this horrid feeling this could be a permanent gift of getting a short term remission 🙁

I will definitely try to get referred to Macmillan for pain support…I'm hoping for something less 'druggy' as the gabapentin isn't doing much and nor is the…[Read more]

Hi all,
My names liz and Kevin my hubby was diagnosed with mm august 2010 one year ago
Where's it gone! It's just been so full on with his treatment resulting in sct in April and hopefully
End of sept: will hear the words your in remission!! The best part of 2010 he was being treated
For frozen shoulder, and operated on bone damage to his…[Read more]

Hey Min am sure its no help to you or Peter but I threw more pants away after my sct than I had bought in a year, dare I say it dint stop for some weeks after getting home so beware, after food no one dare go to the loo till i had been ha ha.

I also used the throw away pants that they have in hospital 🙂 and brought some Pads home to use when…[Read more]

Hi Eve

Tried to cuss but this site wont allow it ha ha (get on the over 50's)

That time table is taking the w e e , w e e (hope it lets me post this one ha ha) I am having a Zometa infusion tomorrow at 9 am then see the consultant at 11.45 🙁 BUT bless Dr Jalihal he tells me to go straight up to his clinic as soon as I have had my infusion…[Read more]

Positive thoughts to you both & keeping shouting loud.
Paul

Hi Chelle
Only just read of your rotten news and I am so sorry that it´s taking a while to find the right treatment for your husband and obviously taking it out of your both in different ways. We all understand that it´s very hard to remain positive – at times all we can do is keep going whilst we let the doctors try and figure things out on o…[Read more]

Hi Chelle

Like the others I am sorry to hear your Hubby is poorly 🙁

Please think on the positive side it will make your journey a little bit easier, its a struggle at times I know but it will help.

I cant offer advice re the meds just to give you both my support.

Love and Hugs ((()))

Tom "Onwards and Upwards" xxxx

Hi Gina

Like the others I am sorry that the Velcade is not working for your Mum 🙁

I hope they soon find some thing that will help and not many side effects? (if only)

Love and Hugs to you all

Tom xxx

Hi Russel
I was diagnosed about 11 days ago now and I am 39 so we not that far off in age i think.Theirs a shed load to take in for sure but this is definitely a site to find good sold support and some possibles answers to questions you have.Its still all new to me plates spinning here and there,medication,hospital apps,work,social…[Read more]

Hello Bridget,Elizabeth and charlie,
First of all many thanks for the replies,once i signed onto the site my broadband went down so I could not respond.Its still 50-50 so hence tapping out a reply now.
The advice about Dexatude I would agree with I have found my self a little spikey at times not like me as I am very liberal in fact quite…[Read more]