Hi Everybody
Min the problem with dex is we do not have it to take,in the morning,trial day one take vcd,will not give us dex until blood results come back .so 9 for bloods 1 oclock for injection then,rest of meds sent for got out at 3-30 in afternoon.Stupid i know,were did commen sence go!!!!!!
Bridget I asked about picc line after reading…[Read more]

Hi Min I hope everything is going ok so far How disappointing that they dont have an isolation room for Peter , I would have thought that was the highest priority for sct patients I agree with Mavis its a good job Peter has you to watch out for him , but it saddens me that you should have that extra burden at a time when all you want is to help…[Read more]

Hi Min

All the best to Peter.

Interesting what you say about "I might get angry"! There have been a couple of ionteresting blogs on the American Site "Myeloma Beacon" about the experieinces of hospitals and how we do have to be the people who are alert to the risks.. Maybe Peter would be better off at home if they can't give him a room on…[Read more]

Hi Eve

I join everyone else in saying I do hope the Velcade works for Slim and without any serious side effects.

Hang in there through the Dex highs and lows – you are a wondeful carer!

Very best wishes.

Mavis

Hi Gaye

Also thinking of you and praying for you. Do hope they have got that pain under control and that you can be comfortable in bed!!

Much love.

Mavis x

Hi Ted

Can i also say happy many returns of yesterday!

I am not hqving any active treatment at the moment – only taking bone strentheners, because I have problems in my spine.

I am 66, but if i had got to 80 without any treatment I should certainly think twice about starting any unlees it was absolutely neccesary and the old MM was…[Read more]

Hi Eve I just read your post and am now hopping mad , alright I am on a dex comedown too!! How can a nurse come out with such a c**p comment about the PICC line and really what is her opinionin the scheme of things!!! I thank goodness the team at UCH look at my overall welfare first and foremost , whether it is side-effects or the extreme…[Read more]

Hi Ted
Never forget you are 80 years YOUNG,happy birthday,A life is a Life and you make sure you enjoy every minute of it.:-)

As Bridget say Gp come across Myeloma may be once in there life time,I changed my gp to another one in the practice who had a little bit more knowledge and was willing to learn more about it!!.
Please,do not feel,a…[Read more]

Thanks Everyone for your replies
We got there at 12.30 for a one oclock appointment.As the bloods were taken previous day ,Saline drip first injection into it then more Saline sounds easy.left hospital at 3.30.Slim had to take tablets on same day so dex taken on the way home,he has been up most of the night and this morning more dex.so full of…[Read more]

Hi
So sorry things have not gone as smoothly as they should have done.
RegaIrding the Myeloma 11 trial I have been on it for the past year. I can only tell you that in the main I have been very well looked after and the only time when I have not felt quite so confident was when I went for my sct and was not under the direct care of my own…[Read more]

Hi
Just a quitck note to say welcome to you and your family and sorry your Dad is having such a rough time of it.
You and your Mum are doing a smashing job and I am sure your Dad must feel so grateful to have the support of such a lovely family even if he can´t always show it when he has to take some of the medications – they do make people…[Read more]

Hello
So sorry you have all had such a sad and difficult time – and indeed still are. Even though you sound to be coping bravely you must be worried sick yourself whilst trying to be reassuring and positive for your dad. I´m glad you came here to talk as there are lovely people here who understand how much of a help it is to get things off your…[Read more]

Hello Eve

thats awful news you were quite right to be apprehensive it must have been a gut feeling you had I really hope velcade works this time for him have you asked if he can have the via injections instead of having a line fitted I know some hospitals are offering this now regards Jo x:-P

Glad your home at last Keith do try and keep well I feel sea air always does you good deep breaths and lungs full of the stuff
I really hope things go well for you

Regards Jo

Hi Eve well at least you have a plan now and the waiting is over I always find waiting makes me more anxious Velcade is a great drug and works well for a lot of people The first time I was on it constipation was a big problem but the dose was lowered and I took 3 forms of laxative every day Unfortunately the second time I was on Velcade it was…[Read more]

Good morning Ted I hope you have a wonderful birthday celebrating !! I think it doesnt matter how old we are we all want to have the best we can out of life! The trouble with myeloma is very few doctors who havent treated myeloma patients will have come across it and they read up on the bare facts without realising all the different elements to…[Read more]

Hi Keith good to hear you are home where you belong and you conquered another obstacle with style!! Your wife and family must be pleased and relieved to see you getting better too Enjoy the lovely sea air just dont overdo things this is one time in your life when it is better to ignore any chores or things you have been putting off , they will…[Read more]

Hi Keith,
I think I've missed something with you (haven't really been on here since my SCT in July!) but I'm glad to hear that you're home where you belong. Hope that you can stay there and stay well…..that sea air should help no end!
All the best
Debs x

Hi Keith

glad to hear the good news,so nice to hear someone is doing well,The sea air is wonderful,I do not think I could live far from the sea its in the blood,i actually need to be near the sea.
best Wishers eve