Dear Dai

Do hope this week's Velcade goes better for you, that the leg continues to improve, and that you get a good run upto your holiday. Surely it must be your turn to have some good luck.

And to Brigit

Do hope you too get over this tiredness phase. Mind you ,having had so much pain lately is bound to have taken it out of…[Read more]

Dear Dai you have had the rottenest luck with Velcade , no wonder its getting you down! I d hope your leg and ankle continue to shrink being unable to get about as you normally do is so frustrating Over the last 5 years and countless treatments there have been several times when I had thought a problem was solved following logical thought…[Read more]

Hi Roz wow the garden is lovely you must be very pleased with it The bench is so unusual did you have it made? You will be able to enjoy sitting out there and I am sure Micahael will be right there with you Hope you are doing okay love Bridget x

Hi Roz

Good to hear from you. Michael's garden is lovely. Did you do the design yourself? I just loved the garden seat – as my grand daughter would say – cool. Enjoy it – you deserve to.

Love Jean x

Sarah,
I am so so sorry to hear that Gordon has passed away. Wishing you much strength in the coming days, weeks and months.
Thinking of you
Debs x

Hi Helen,
Haven't been on here for ages, but spotted you're due to go in tomorrow for your SCT and wanted to wish you all the best. I came out just over a week ago from mine (Day 25 at present!).
I was recommended the icecubes but was too embarrassed to ask for them as my consultant was dismissive. I got lots of ulcers in my throat which were…[Read more]

Hi
thanks for your reply how badly were your kidneys damaged did it take you a long time to recover from the SCT what sort of state are your kidneys in now I would be very interested to know if they are more damaged now after the transplant

Kind Regards Jo

Helen,
PS. So glad to hear your going into sct at 0 – fantastic starting point for you I feel quite excited that you must surely have a super long running remission.
Fingers and toes crossed.
Carol xxx

Thanks Helen – at least I´m forwarned then not te expect too much at first.
Take care
Carol xx

Hi Helen

In that case we are doing things in a slightly different order as I have had my sct (which by the way has left me now with 0 yes zero paraprotien level!) and am now just finishing my 3rd cycle of Revlimid.

They seem to be so well practiced in this procedure now that I am sure everything will go smoothly and know are in good hands so…[Read more]

HiHelen good luck with your sct tomorrow . It is definitely worth doing and hopefully you will get a long period of remission and no heavy treatment ( thats the best part!!) I am sure you are well organised but just a thought take your own cup or mug with you When you are feeling a bit queasy tea in a plastic cup just makes it worse !! I hope you…[Read more]

Hi Helen
Thanks for the update about stiff joints and sickness etc. Sounds like you at a similar point of treatment to me – I have just finished my third month of Revlimid.
Glad to hear that things might be settling down over the next few months and I might be able to get a bit more active.
Have a good weekend
Love Carol xx

Dear Gaye

I too have been thinking about you these past few days, so it was great to hear from you. You are a very courageous lady. You have fought this horrible disease with bravery and have given strength to many on the forum. Thank you for all your wisdom, knowledge and empathy that you have given to us all. You will be in my thoughts and…[Read more]

YOUR ON
JO;-)

Terrific wish i could have been there to see you
Keep it up
Love Jo xxx:-P

hi Min

glad Peter got his back fixed lets hope it helps to keep him free of pain
I will be thinking of you both on monday hope all goes well so you both can get on with life again GOOD LUCK Peter:-)

Regards Jo

Hello Ted

Wecome to the site you have done so well not to have had treatment for five years long may it last I think chest infections are part of the baggage that comes with MM lets hope you have a better autumn:-)

Love JO

Hi Gaye
I came on this site the end of February just as you went off,I saw your posting on trying new drugs ,about getting approval ,and your problems with pain control,I went back over your old posting to try to learn from your experience and I did,thank you for helping new people on this site.I like many others wondered what had happened to…[Read more]

Hi Ted welcome to the crazy gang!!Seriously you couldnt find a better place for support, advice or just a place to vent your worst fears There are lots of lovely people who are at various stages of the myeloma journey Its brilliant to hear you havent needed any treatment yet whilst we all get anxious on clinic days just try and enjoy these…[Read more]

Dear Gaye you have been in my thoughts a lot lately and it is lovely to hear from you Not so lovely to hear you have had a rough time though. I can understand your decision to stop treatment completely Initially we are all for fighting the fight but these treatments that give us extra time take their toll, mentally and physically. I realised a…[Read more]