Hi Min
Glad to see you have posted at last was worrying,as all your posting was about other people and not how Peter and you were.:-)I hope it all works out for you on Monday,and Peter starts to feel better,now his back has been fixed

We need some good news on this site,so keeping fingers crossed that Peter is the turning point!!!,will be…[Read more]

Hi Craig
The Problem is Craig,you need someone who has been through the whole system of varies drugs,with all the problems that go with it,these people do not plan that far a head.As you may understand they do not know what will be happening by November so no one can offer you a guarantee!!!!.Even carers like Min who are very well informed,have…[Read more]

Hi Gina
Glad to hear things are a little more positive. You sound such a lovely caring daughter – your mum must feel so lucky to have you but please do look after yourself too won´t you? My carer is my husband who spent the first 9 months up to transplant worrying himself sick and hardly every having a break from thinking how he could make…[Read more]

Hi and welcome!
So pleased you are having a good long run. I managed for just over five years and to be honest if it had not been for my job becoming incredibly pressurised and our elderly mum becoming very difficult and demanding I suspect I would have continued well for quite some time. I should have put my foot down and looked after myself a…[Read more]

Hi Ted

My husband Frank was diagnosed sept 2006 and is not on any treatment. When first diagnosed he had Zometa every month for about 6 months. He sees consultant every two months. He has had a few set backs. At moment has severe pain in side. He had something similar before but turned out it was muscular. This time he reckons it's his ribs.…[Read more]

Hello Gaye

Although I don´t know you may I say a personal "Thank You" for sharing your decision. I think many of us will understand very well your thinking process – for me I know that there will come a time when it will seem more natural to go rather than stay.

I wish you peace and loving support throughout the coming days and I am sure…[Read more]

Hi Susannah

just to say that I hope Michael shakes off this infection and can resume the Trial soon.

Look after yourself. I know how much regular Hospital visiting took out of my husband.

Best wishes to you both.

Mavis

Dear Gaye

When I first came on the site i appreciated your posts and your support of others.

I do understand the decision you have made. Everything I read fills me with admiratin with what you all endure to prelong your life and to give this b….. MM the best fight you can. I am sure a time comes when enough is enough. I am glad you are…[Read more]

Hi Susannah
I have been following you post,but as you are head of my husband ,have not posted,posting now just to say even though you don,t know me,I am wishing you all the best and hope you have Michael home soon.Eve

Hi Gina

Sorry about your mum,Its not knowing when to make that call,thats the hardest thing,don,t we get conflicting info,telling you to see your doctor!!!! I have been told that if Slim is ill i have to take him to hospital as they can tell within half an hour if he has an infection,and the first couple of hours are crucial !!!
Anyway I hope…[Read more]

Hi Gill and Stephen
Keeping my fingers crossed for you,it must be a horribly waiting game for you both,plans on hold until you find out,but France beckons.:-)
it is lovely to have some good news,and i hope by the end of this month,you will be over the moon,and making plans.

Slim is in limbo at the moment,with ctd stopped and conflicting…[Read more]

Hi
So sorry your mum is so poorly and you are all under such a strain. I was in a similar position to your mum last year and have to admit I felt not only low but a real burden on my long suffering husband. As soon as the antibiotics etc. kicked and I started to feel a bit more positive I saw the relief on his face and realised that this is…[Read more]

Hi Gina your poor mum is really having a tough time lately it doesnt seem fair. I hope they get the answers they need from the tests very soon and they can then give her the treatment she needs. She is bound to feel down but hopefully her mood will pick up soon , she seems like a very strong minded lady and I cant imagine she will stay down for…[Read more]

Wow what great photos it would have been such a shame if they had remained unseen you are so very talented!!Thankyou for sharing them with us and I am sure the exhibition will be a huge success best wishes Bridget x

Hello Dia

glad you got your scan if they had done it sooner you would now be further down the road How about a picture of you modelling your sox(very sexy) every picture tells a tale! I hope you have a really good holiday go away and try and forget everything for a week just enjoy your family8-)

Love Jo x;-)

Hi Mary

glad to hear from you I hope you have a good time in Ireland I am sure you will weep a few tears on the way because it will bring back fond memorys
GOODLUCK with the sky dive my daughter also did one in New Zealand she said it was the most terrifying then the most exciting thing she had ever done

Love Jo

Hi Pam

I add my sympathies to ohers. I am just glad that your father didn't have to suffer treatment for MM which would have diminished his quality of life further.

I am glad he had a peaceful end and is now free of pain and at peace.

Best wishes.

Mavis

Hi Dai
I hope you had word with the tech who did the scan!!!
Janet this is a message for you if they only give you to pairs of stockings go out and buy more,if you have something the size of a bottles when washed put them on bottles to dry,trick i learn,t,if you want to save money have a swear box handy,because you will be .>:-(.
On a serious…[Read more]

Hi Gina sorry to hear your mum is still poorly but its amazing sometimes the difference a few days can make Paraproteins are coming down nicely and this should continue even if they halve the Velcade. I too thought anti-inflammatories were not good for us. Good luck and hope your mum feels better this week love Bridget x

Hi Pam so sorry to hear your dad has passed away . A peaceful end is all we want best wishes Bridget