Hi Mary lovely to hear from you How brave you are to do a sky-dive I cant even stand on some steps!! Good luck with it I bet your dad would be very proud of you Have a wonderful tile in Ireland and although wont be there physially he will be there in your hearts and memories so raise that glass for him love Bridget x

Hi Dai what a nuisance but thank goodness they did identify it in the end. I really dont envy you the stocking and injection routine , just remember not to rub your belly when it stings cos thats what makes it bruise I only found out after several days and my stomach was one big bruise!! love Bridget x ps it will save Janet going to the gym too as…[Read more]

Hi Dai

At least you know what you are dealing with. Glad it hasn't travelled any further. Sorry about the Walfarin and stockings though.

As you say "upwards and onwards"!

Mavis

Hi Mary

Well done you are very brave. The more money that can be raised for this blo**y disease the better. My pound also winging its way. Don't be petrified when you do it. You will be fine. Where in Ireland. I live in the North. Good luck

Love Jean xx

Hi Pam

So sorry to read your Dad Passed away,Hugs sent (((()))))))) Condolences sent to you and your Family

Love
Tom xxxx

Dear Pam I am sorry your dad did not have longer with you, but as Eve said he was spared having to go through treatment which would have been hard for him . He will always be with youso treasure your memories Take care Bridget

Hi Craig
Do you see what i mean about Dai,i hope you have signed him up.sorry no pressure Dai!!!!:-P .I think he would be ideal!!!

To Dai,boffins are no different to me and you,i have a good friend who use to be a boffin,and on a social level you would not have known it,
no pressure Dai.Eve

Hi Pam
So sorry about your dad,I know what you mean,when you look at other postings and this mm has no age limits i think the youngest is 29 on this site,also young mums with very young children.:-(
To me a life is a life and does not have age barriers,you still loved your dad and cared for your dad and did not want to see him with any more to…[Read more]

Hi Helen
Glad to hear your feeling a bit better slowly and congratulations on the 5 mile walk – you must feel as if your getting somewhere now.
Do you know what causes the stiffness in joints etc. – mine is so bad I walk like a penquin if I have been sat down for longer than 10 mins! Even my finger joints are stiff and painful.
I think Tom…[Read more]

Hi -whinge away! sorry your having such a poor time of it. I am nearly at the end of month three of this latest round and am on 25g and feeling pretty fed up. Regarding the sweating no I don´t have that but do have rashes and sheer exhaustion – I am now only managing 4 hours before I have to lie down again for a few hours rest and trust me I`m…[Read more]

Hi Laura

Sorry you have joined us – I`m sure you must be so worried about your Dad. I didn`t have thalidomid but other chemos give similar side effects and they gave me some smashing tablets that really helped with the sickness – please do ask for them. As mentioned already I too found that taking the chemo at night helped a lot.

Take care…[Read more]

Hello Mavis.
I also chose not to have an SCT I dont regret it
I go to the EUCHARIST every week at St Albans abbey I pray for everyone
of my cyber friends
God Bless Jo

Hi everyone.

I found Dr Berenson's interview very interesting, particualrly as i have always said i wouldn't want to go down the road os SCT – because of my age and other non MM health issues, BUT mainly because of quality of life issues.

However, it was interesting to have seen this interview at this precise moment. Reading Jet's Blog of…[Read more]

Dear Dai

Sometmes I despair when I hear what messes happen. But silver lining of seeing the Prof is that precious two week break to look forward to.

Hopefully after the appointment tomorrow they will be able to add something to the treatment for the leg. I do hope the swelling goes down before Pembrokeshire!

Very best wishes.

Mavis

Dear Sarah ,I am so sorry to hear Gordon as past away, as a carer I can't begin to know what you are going
Through and this forum as bought us carers support and valuable information to help our beloved partners with this cruel
Desease! I can't bring myself to tell kev just yet. I am sending you and your family my love and heartfelt…[Read more]

Hi Helen I hope your mums doctors will help you feel less anxious after her appointment today Unfortunately once myeloma appears it does change things , especially in the beginning when everything is new and scary. I promise you it really does get easier as you see your mum coping with various drugs and you start to know the names of all the…[Read more]

This such a great idea to ask for our input on technical services .I am not up to it though mores the pity , the number of catnips I need during the day at the moment would be bound to see me fall asleep mid sentence !! I hope someone more able can do it love Bridget aka Nodding Nelly

Hi Craig
It is nice to think someone actually wants to know what we think!!!:-P
There are some wonderful people on here ,Like Dai who moved from Wales to Nottingham for better treatment,he is not posting at this moment,which is unusual.Could not get in to your RCP Path email address to check you,thought I would let you know!!!.
I cannot help…[Read more]

Dear Sarah

Like everyone else I am so sorry that after such a long, brave battle, Gordon is at last at peace. But so sorry for you and the family. The MM fight must have taken over your life for the past ten years and leave you absolutely exausted.

I am so in awe of those, like Gordon who walked this hard road before us and who helped give…[Read more]

Hi Helen
It is Tom,On wards and upwards,he has not been on for awhile,so it is either his cucumbers or he is on holiday:-)
i know what you mean though ,he just makes you smile.Eve