Hello Min

So sorry to hear about Peter he is going through the mill lets hope all this leads to his second SCT you must be exhausted are you getting any help at home with dogs etc if you are at the hospital all day.He is in the right place though because a bad chest infection could lead to pnuemonia so its good the hospital have got it all in…[Read more]

Hi Min I have had you and Peter on my mind all day just wondered if he has had a better day today Are you looking after yourself too , I hope so love Bridget x

Good to hear your treatment has worked good idea to have a holiday it will set you up for the next SCT really good luck with that
Love Jo:-) x

Hi there.

I have been on the same trial and got randomised for the velcade too. I had about 4 cycles and then was stopped as I've had neuropathy since the beginning but it started to get worse and they wanted to stop. BUT, it has had good results and got my pp down from 28 to 8 (possibly less but they forgot to take the reading last tuesday so…[Read more]

Aaahh, you've all made me blub! Angelina, I have a 4 year old and a 6 year old and am about to go in to have a SCT. I know it will be fine, but I have been thinking about doing memory books, scrapbooks and things too…I think they are wonderful ideas….I just wish my hubby was quite as supportive…..it's the one area I wouldn't be able to get…[Read more]

Hi Eve how you must have wanted to give him a clout!!A similiar thing happened to me when my youngest daughter was diagnosed withCystic Fibrosis , someone who I thought was a good friend said it would have been better if she had died!! I have not spoken to her since!! How old is your grandson? It makes me so cross when people cannot see further…[Read more]

Hi MaRi

I just cannot imagine it,London to Brighton,56 miles is it,with that great big hill you have to ride up,it gives us so much hope.he must be fit.
Thank you for your post,my husband is on his 5th cycle of ctd and had complications with pneumonia,some times I just cannot see any progress,and then some one posts with such good news and its…[Read more]

Hi Keith
I think we were all wondering what happened to you,but to scared to ask,as we new you were going through a bad time,but its lovely to here you are doing well.
Have a good break away from it all,wish i could do the same [I am jealous ] Best Wishers Eve

Hi Ladies
The worst thing that was ever said to me concerned my first grandchild who has cp.I was walking him,and met a male friend who new my daughter,and was explaining why Matty was in a wheelchair.
He asked if my daughter Ruth was going to keep him!!!!!!!I often feel like coming out with comments{no hes going out with the rubbish] just to…[Read more]

Hi Min
So sorry to hear peter,s not doing to well,but we both know how quickly it can turn round,a few days on a drip works wonders,Slim had a feed in his neck with lots of tubes to be able to have lots of drips,with machine,s going off every five minutes,not nice at all,It must be awful having to go home and leave him there.
I hope today…[Read more]

Oh Roz what a stupid stupid man to say something like that to you Its a wonder you didnt punch him on the noseJust goes to show even the healthcare professionals get it wrong sometimes love Bridget x

Hi Mavis well I came home from clinic with a whole bag full of pain relief today !!The Macmillan nurse upped my Oxycontin dose to 70mg yesterday and I now have some big plasters filled with local anaestheticto put on my back plus some Pregabilan Apparently Pregabilan is the posh version of Gabapentin and has fewer side-effects , also much more…[Read more]

Hi Dai glad to hear the pn is lessening and your bloods are behaving It wont be long before you are playing comfortably again , I cant imagine anything keeping you from your guitar for long !! love Bridget x

Hi Keith good to hear all is going well Iknow how you feel about getting away from blooming hospitals and all the stuff that goes with it!!Have a good holiday and it will boost your spirits ready for the sct and after that a very long remission Take care love Bridget x

Hi Mari wow! Thanyou for sharing with us it really does lighten the load to hear of someone doing such an amazing feat after all he has been through Mind you I think you played a big part in his recovery , you make a great team !!Steve must be a very determined man , I cant even ride a bike to the end of the street not due to myeloma just have…[Read more]

Dear Bridget

I do hope that you got a satisfactory plan of action for your pain at last. I feel so cross that your GP doesn't take your pain more seriously. He should live with it is my feeling. I know they can get busy, but it's not as if you'd make a request for more help if it wasn't necessary.

All love.

Mavis x

All the best Dia! Keep that music coming!

Good luck for the forthcoming meeting. It is "our life in their hands" isn't it!

Love

Mavis

Dear Mari

Great to hear of Steve's success. Congratulations to him!
Thanks too for such a positive and encouraging post.

I was also diagnosed following a tumour on the spine (Sept 10). I have not gone for early chemo, but it remains there as a threat/promise! Can you remember what Steve's paraprotein readings were when he started on…[Read more]

Hi Min yes they can write scripts but as I am at clinic tomorrow I think she was being professionally polite , if you know what I mean ! Sorry to hear Peter has had to be admitted again, you must be at your wits end Ithink you can just ring yourself once you are on their books In the short time I have known my Mac nurse I would certainly call on…[Read more]

Hi Angelina reading all these lovely ideas on here has made me realise I too want to leave some memories for my children and grandchildren So tomorrow I am off to buy a notebook and go where the memories take me Thankyou for sharing with us and prompting me .I am sure your girls and Johnare going to love doing their books lots of love Bridget x…[Read more]