Hi Wendy
Sorry to here you are in hospital,Raging diarrhoea not nice,but you are in the right place,if it was a infection they would most probably not like to have admitted you! fluids is the big one with diarrhoea,and being an impatient any test will be done earlier.It must be very hard to cope with living on your own,
Hope your well soon love eve

Hi Claire

Sorry to read about your Mum, but you have come to the right place for help/advice and just to shout out if its getting too much, great bunch on here8-)

I was told In Jan 2009 and am doing great 😀 for a 55 near 56 yoers young :-S

has your Mum had or on any treatment?

Give your Mum a hug from me

Tom "Onwards and…[Read more]

Hi Claire

It is all confusing but hopefully this site will help you ,your mum is doing well if she was diagnosed in 2009 give her our best wishes
Love Jo

Hi Bridget

I too had you on my mind. I do hope and pray that you find something to get this pain under control soon. since I was diagnosed and had op to remove tumour my pain has always been bearable, if limiting, but as others have siad, i have always found using several pain killersw together seems to work best, Do hope they increase your…[Read more]

Dear Angelina

Just to say I am thinking of you John and the girls at this very difficult time. May you find the strength you need and an assurance that this life isn't all there is. Love never dies and your Memory Book will be ione way of keeping it alive.

Best wishes.

Mavis

Hi Claire

I can understand you being confused about your Mum's diagnosis. The good thing is that two years later you are here rooting for her. It is a difficult disease to understand because everyone's path through it is so different.

You have come to the right site. Ask any questins and I'm sure someone will be able to help'

Best…[Read more]

Hi Wendy sorry you are going through it , nothing worse than raging diarrhoea!! I think a couple of people on here have had similiar problems on Velcade Have you spoken to your nurse about it possibly being a side-effect of Velcade? I hope it clears up soon and you are able to go home love Bridget

Hi Eve, Shirley and Jo thanks , you have all made me realise just what a high dose of mst I was on , 90mgs in the morning and 100mgs at night, so I shouldnt be surprised the initial dose of Oxycontin wasnt enough The pain has been awful this weekend so I am going to ring tomorrow and ask them to up the dose or put me back on mst morphine Eve I…[Read more]

Hi Gill I am sure that being at home is just what Stephen needs to begin to feel better Who else could take better care of him than you So heres to the good times to come , hopefully they wont be long love Bridget x

Hi Roz good to hear from you. I have just read your reply on another post about Michaels memorial garden , what a lovely idea and you will be able to enjoy it too and feel close to him Take care Roz and one day at a time love Bridget x

Dear Angelina I hope John pulls through this rough patch but I think you are wise to begin a memory book now . I used to work with children who had lost a parent and I know how precious a book celebrating someones life is to them If you ask people now you will get lots more positive happy memories ,if you leave it till afterwards grief may make…[Read more]

HELLO Bridget

I am so sorry your pain is so much worse I cannot really comment on pain killers as I can only take paracetamols or have accupuncture.
Could you have some more RT treatment is that possible as it helped a bit for you last time
Much love Jo x

Hi Gill
Hope Stephen picks up soon,think about a good holiday in France when this over,that must take some of the pain away.When we go to Dover and watch the motor homes going on the ferries,I have pangs of jealousy knowing it is going to be some time before we manage France.

wishing you well Eve

Hi Angelina
I would not know how to advise you,but just had to let you know,my thoughts are with you,I think I would cling on to the fact he would not sign that form,I can see why it is important,to get your life in order,I can remember when Slim was in ITU i left him sleeping,came back 4 hours later he was so upset,he thought because i did not…[Read more]

Hi Bridget

Slims on Oxycontin 30m twice a day morning and evening,also liquid Oxycontin allowed as needed,but if he starts using it all the time doctor will up the pills.but not needed at the moment.

As you know Bridget Slims had a bit of a rough time and can take a lot of pain,the Oxcontin was given in hospital as before Slim was on…[Read more]

Hi Min poor Peter really does get the lot doesnt he !! I have had severe indigestion at times but have only used the remedies you already know about I hope they come up with something very soon for him it must be awful love Bridget x

Hi Jane and Pat welcome to our little world Jane your mum sounds like a real trooper !! Sorry I cant help with the Thalidomide question but constipation is a common side-effect wuth all myeloma treatments I was unable to concentrate on anything for more than a few minutes in the early days but it has improved as time has gone on Take care and I…[Read more]

Hi Gina great to hear mum is home now , and she will soon be back to her old self , but it may take a little time after being so poorly Hopefully it wont be too long before she is on Velcade and it works its magic for her Please give her my best wishes love Bridget x

Hi Angelheart so sorry your post got lost , thank goodness for Dais eagle eyes!! You must be overwhelmed after being given the diagnosis and it is terrible that there was no-one for you to talk to Have you tried phoning thehelp-line on this site , they are wonderful and will be able to answer a lot of your questions I am sure Good luck and please…[Read more]