Hi Gill

I was thinking about you the other day,Its amazing the way you begin to worry when people do not post.Glad to here things are going well for you,

You never know France might be on the cards yet
wishing you well eve

Hi Vicki

What good advice you have just received,could not give you any more. Dai has a way with words,Bridget is always a comfort,and Tom a never ending soughs of laughter.Just what you need at this moment.:-)

Welcome to the journey,We are all ahead of you on this journey,I am a carer to my husband.Some times I loose the plot,I will not say…[Read more]

Hi Vicki

Sorry to hear that your Dad has MM, honest 60 aint that old (well i hope not as am running towards 56:-D

I also was on CDT prior to a "Succesfull" transplant.

I also had the transplant in Castle Hill and agree with you the treatment and help you get from them is second to none, I am now back in Scunthorpe being looked after in…[Read more]

Hi Vicki welcome you have come to the right place for answers and support on here they are a great bunch!! Great to hear your dad is getting good care it always helps Try and take things one step at a time its such a lot to take in The life expectancy figures are very general and often a bit cautious 60 , isnt old and with all the new treaments…[Read more]

Hi Sarah tell him from me its really not bad easiest op I ever had and back on your feet in no time !!!xx

Morning Sarah definitely a happy day Has Gordons hip gone because of the steroid treatment ? Thats what happened to me , I had a right hip replaced in 2008 , best thing ever the pain just goes and it doesnt take long to recover Mine even survived being thrown down a manhole!!They will make sure there is minimal danger of bleeding but I suppose…[Read more]

Hi Sarah

found your happy happy day

Now thats what I call clever it was on page 11 of off topic.
I do not know how it happened ?

Love to you eve

Hi Shona I think the helpline will be able to put your mind at rest There is often a time when treatment leaves you feeling very poorly but it does get better If mums not eating much try smalll portions of anything she fancies as her taste may be off too Look forward to hearing from you soon love Bridget ps I like madcat just seems rude for ,me…[Read more]

wow Bridget you are fast ha ha, yes thats correct I dint think it was the done thing to add "Onwards and Upwards" for Shirley ha ha.

Tom "Onwards and Upwards" xxxx

Hi Madcat?? Sorry to hear your mum is having problems Its a bit hard to comment really though as the doctors have all the relevant facts Can I suggest you ring the helpline on here they all have medical background and you would be able to tell them everything I have swollen ankles due to water retention but no rash In my case the steroids seem to…[Read more]

Haha Tom I notice you didnt say Onwards and Upwards to Shirley !! x

Well My friend Dai, you want a whine/moan or just a plain old complain then you my friend are due to have one, as most of us know its hard to be tip top all the time, and to be fair its hard to be tickety boo when you are on the drugs:-S

Good Luck Dai and moan when you want (you do it so well for a novice) your upbeat manner will soon return…[Read more]

Good Luck with it all Ian, and you know its great when heart/lungs and kidneys are working good its a great start 😀

"Onwards and Upwards"

Tom

Hi Gina

Sorry to read about your Mum's plight, I hope that Mum is now being seen and her pain is being taken care of.

Love and Hugs to you both

Tom xxxxx

Dear Linda

I am sorry to read that your Dad has passed away with this dreaded Illness.

I am sending hugs/love and prayers to you and your Family

Much Love

Tom xx

Aww Bless you Shirl, am pleased you are on the mend 😀 I also have fallen down the stairs more than once I hasten to add Normally on a Friday nite:-/ and yes you would think I should know better he he.

Bet it was a shock for Steve:-0 to find you laid there :-S

Keep up the good recovery8-) and not forgetting "Stanna"

Love Tom xxxx

Lovely 😉

Love Jo x

Ian

the very best of luck for your mini allo i hope all goes very well;-)

Keep Well Jo x

Dia

I think you are allow an eeyore moment now and again the only problem with MM with me at least is every twitch ache and pain is it MM, not usualy but it s the first thing that goes through the mind I am glad you are feeling a bit better today it does sound as if the treatment is staring to work which is very good news 😉 😉 😉
Lots 0f…[Read more]

Hi Dai I have been pondering after reading your reply Waiting for results of x-rays , mri and ct scans can get frustrating as Uch wait to discuss it in their meeting before telling the patient As for the overall results bloods etc and well being , tolerance of side -effects I have great faith in the nurses at the front line giving us the drugs…[Read more]