Hi David

Yes I am told that the Zometa messes with your teeth :-/ but am pleased to say (touching wood and fingers crossed) I dont have a problem with mine:-D
pleased yours is now on the mend 😎

Tom 🙂

Hi David

Yep still up and runn:::::::::::walking ha ha, and yes your red wine and cumbers did me the world of good 🙂

One "Upwards and Onwards" Tom 😀

Hello David

glad your teeth are getting back to normal be careful not VASTYBYTE to
hard

Love Jo x 😉

Hello Dia

I think the idea of opting in rather than opting out is a good one I never remember to uncheck good suggestion

Love Jo 🙂

Hi Jo

No not possible round trip of at least 160 miles,journey alone with bone pain would be bad for him.

It,s not so much the myeloma trials,It is the conditions which seem to go hand in hand with it,Slim complained of pain in side for a long time,we thought bone pain, when the cat scan was done turns out lots of wedge shape holes plus…[Read more]

Hello Eve

Is there any way you can change hospitals and get into one of the London units with such better standards of care I believe Kings and UCH are really good I attend Uch they cannot be more careful and caring do you think now Slim is home he could take the journey I really do hope the CDT works for him
and he will feel better soon
Love Jo 😉

Hey Roberta

Trust me girl you dont sound Crazy (well not as crazy as I) and if you need to vent what better place than here amongst friends and nearly Family 😎

Its a great thought if we all moved into an Estate (near a hospital ha ha) and then we would have neighbors that knew we get grouchy and tired after a hard days work. it could be…[Read more]

Hi Bridget

Its good to know they are with you and very knowledgeable in the drugs regime that needs to be used, I dont have a Mac Nurse, but hope if I need one she/he is as good as yours 😀

Like David I am pleased to say I am pain free (ish) unless I push myself too hard:-S

All the best on this wet Bank Holiday

Tom "Onwards and…[Read more]

Hi Min and peter

Sorry to hear about treatment causing a Bloomin big blip in both your lives, I cant add nothing to the good points above as I am still in remission so can just send my Love and Hugs to you Both.

Tom xxx

Hi Carol

Sorry to hear about your Pain:-( no one should have to suffer the pain.

I see you do Horse riding (they scare me) I hope it isn't that that causes the pain? I know after I do things at home/garden I normally suffer a bit of pain.

I am about 16 Months post stem cell transplant and am in remission.

Good luck on your pain…[Read more]

Hi Min like Peter I am now over 3 inches shorter than I used to be my remission lasted 18 months , which is not a very long one but neither is a very short one . It is an interesting thought though I have not seen anything to suggest spinal damage might affect remission time Hopefully you will get lots of answers which give an overall picture…[Read more]

Hi Carol welcome to our happy little band , I am sure you will get lots of replies. Bone pain is very common and doesnt necessarily go after an sct . Your consutant doesnt sound very helpful perhaps if you had a chat with the specialist nurse and rxplained how difficult it makes life being in constant pain . I have extensive bone damage and the…[Read more]

Hello Dia

you must let us know when you release your CD,s I think I would probably
like Etcetera as it has a mixture of what I like especially jazz and blues but i do like shanty bands they make for a really jolly evening. fingers crossed for the velcade lets hope it gives you loads of energyxxxxx

Love Jo 😉

Hello min,
Having just read your post thought I'd offer you both my love and support, hope the treatment goes well.
Thinking of you keep positive.

Love liz xx:-)

Hello Dia

like the song I beginning to enjoy all your music 😎

Love Jo xxxx

Hello Min

so glad they have have come up with a new plan, THALIDOMIDE is a bit of a wonder drug I so hope it works again for Peter. Did you know how they dicovered it worked for MM they were treating patients for Leprosy and they happen to treat some one who also had MM a eureka moment the MM was put into remmission and they discovered it was…[Read more]

Hi Min,

I often read posts and don't respond, but I really wanted to write to wish Peter AND you, all the luck in the world on the journey you have ahead of you. This MM is just awful in what it does to Peter, and I hope that the plan they have set up, does what it is supposed to and that you guys get a bit of a break at the end of it.

It…[Read more]

Hi Angelina

Yes I can relate to your post,not as bad but very frighting,Slim has had a few bad times,being an ex marine he has seen and been in many bad situations,but these nightmares he tells me are so frighting,had about 4 in itu,panic attacks they said ,but when we talked about them,they were nightmares.Must admit at time my thoughts were…[Read more]