Good Luck Min

Wish I could help you more ,no knowledge of treatment as you are ahead of us on this journey,Peter is a fighter and I think this goes a long way,I wish I could say more in words to comfort you,but we all know,these are desperate times,
Too stop my self from loosing the plot,I now resort to popping a pill,tried g&t,not a good…[Read more]

Hi Dai I think you are very disciplined really , they say we all have a book in us but very few people actually do write one !! I love your outline and I am looking forward to reading it Happy writing!! love Bridget x

Hi Angelina blimey you must both have been exhausted come the morning!! It must be scary to see your husband like that . I think it must be due to the meds, as you said he takes a lot of medication and who knows how they interact with each other. I do have very vivid dreams , sometimes it can seem ages when I wake up working out what is real . I…[Read more]

Dear Min I had to read your post twice as it didnt seem possible that this wretched myeloma could kick you in the teeth like that Thank goodness though they were able to pick it up fairly quickly and come up with a strong plan to knock it right back. I feel for Peter , the thought of having to go through all that must be hard to contemplateThe big…[Read more]

Hi Bridget

I didnt get the news letter is it on line if it is would you mind forwarding it to me Hows the cellulits is it getting any better

Love Jo xxx

H i Alistair I am also under Dr Yongs team at UCH London and they are excellent Not only is Dr Yong good but the whole team are and they have regular meetings to discuss treatment plans , bringing in other professionals when needed , for example an orthopaedic surgeon to suggest a way to ease my back pain The hospital itself is very new and…[Read more]

Hi Kathleen thankyou always helps to know how other people get on with drugs . I am going to start mine tomorrow when I dont need to drive just in case the first one makes me drowsy ! love Bridget x

Hi.
I'm at the royal Marsden in Surrey and can't fault it. The only thing I would mention is distance. I travel a 90 minute journey to my hosp and it can be tiring. It's not so bad when you're only going once or twice a month but I come in twice a week now. I'm doing ok on the treatment so drive myself and find it manageable but if my side…[Read more]

Hi Da thankyou so much it was a privelige to be able to read your work . It certainly got me hooked and I will be first in the queue to read the finished version. How do you discipline yourself to wrte or do you just write when the mood is upon you? love Bridget x

Hi Alastair
Well I can tell you its not in South East Kent,Read my previous post it will give the general idea.
If we could manage London I think we would go for that,health wise not advisable for my husband.
Its not so much about the treatment,I think its roughly the same.Myeloma X1 trials are you best hope,if you have not started…[Read more]

Hi min
You know how I have been feeling these last few weeks,and you gave me so much hope,it will all seem so different in the morning,it is the night that does this to us,to much time to think,to much to ponder,The morning will bring fresh hope, please be strong,
You told me not to give up on Slim,he is getting stronger,when things look bad…[Read more]

Hi Jo thankyou I know what you mean about dreading the changes in our GP systems I dont think they will be able to cope either Did you get a newsletter about the new cancer centre at UCH? It looks brilliant , especially having scan , x-ray and pharmacy all in the same building as treatment ! I cant wait for it to open love Bridget x

Hi Roberta lovely to hear you are feeling well and back at work. I can understand how those selfish family members have made you feel but I agree with the others let them go !You and your husband have earned the right to enjoy life now after having been through so much recently Put your energy into what you want to do not what you feel obliged to…[Read more]

Dear Min I can only imagine how you must both be feeling , this bloody illness keeps throwing up new challenges. Jos point was a good one they may well go back to something that worked well before If not perhaps they will try Pomaldomide ( not sure on the spelling ) , the drug that Gaye is on at the moment You and Peter have come up against so…[Read more]

Hi Jet,

Thanks for your kind reply, and I am glad to hear that you found my post uplifting.

I didn't actually speak to you on the day but I did see you at the Myeloma UK Infoday (I recognised you from your pic on here and also your name badge), I hope you found it as interesting as I did xx

Thinking of you and Peter, Min, and I really hope they come up with something suitable soon.

Nicki xx

well Dia it sounds like the sort of book I like to read please remember to tell us when it is published
Jo xx8-)

Hello Bidget

so glad they are sorting out your pain and you will not have to worry about get an appointment with the Docs its like getting in Fort Knox at my doctors it fills me with dread if this new NHS thing goes through and they are in charge
Love and big Hugs Jo 😎

Hello Roberta Eve and Angelina and Min
A good friend of mine once said to me change your KARMA let go of what you cannot contol and you will get back what is right in your life, in times of crisis true friends and family will be there for you and thats all that is important:-)
Love to you all Jo big ((((hugs))))

Dear Min

I am so sorry to hear about Peter my thoughts and prayers are with you perhaps a new test will show up something better they often get some of my test wrong at my local hospital so I have to retest they mentioned to me at UCH if all else fails they may go back to CDT as it worked first time
maybe this could work for Peter

Love Jo x