Hello alastair
I am under DR kwee Yong at UCH lONDON she is a recognised expert in the field of Myeloma you could try there if you are able to travel they have a very good team in the care of Myeloma

Regards Jo

Hi Roberta

I could echo all the things said here,But I think it all depends on the type of person you are.I feel the need to put everything right,it is sometimes impossible.

When there is a tragedy in your life,this is when you find who your friends are,and who needs fair weather friends. As to relatives its a different game,may be they do…[Read more]

Hi guys,

Thanks so much for all of the good wishes.

It was so lovely to see yourself and Janet and it was really nice for Sam to meet you both as I have told him all about you. David I am so glad to hear that you too are feeling mostly well after your transplant, long may it continue.

Liz, glad to hear that my post has given you a boost,…[Read more]

Hi Dai

Well a whispered "Onwards and Upwards" and do you know I pressed the key pad real slow and quiet lol when I typed that he he.

Am Pleased you are feeling better albeit with a lack of sleep 🙁
Good Luck with it all.

Regards

Tom "Onwards and Upwards" 😎

Hello Nicki,

Just read your post my hubby kev is now in his 7th week post sct, had a few hiccups (didn't seem it at the time)
But after reading how well Sam is doing it's just loverly to hear and gives us the boost we need, hope you have a great holiday! That's what we looking forward to.

Love liz…

Great to hear you're feeling better and on the up! I have to say I agree….I can cope so much better when I know what to expect. I wipe out the week off so that I can just chill out now. And then plan a nice meal out and a few drinks at the end of that week when I finally start to feel better 🙂 Red wine of course….oh and g&t to help with the…[Read more]

Hi Dai I am glad to hear you are feeling a little better , it is horrible when something like that makes you feel as if you are going backwards though ! When I was on Velcade I expected to feel great and have lods of energy on my week off! Wrong the weeek that was drug free was a complete wash-out, which got to be tolerable because I was expecting…[Read more]

Hi Dai,

Sorry meant to reply before but have been a bit caught up.

I'm really sorry you're suffering (even if in a macho way!). I'm on velcade too (with dex and cyclophos) and am currently just starting on cycle 4. I've had to have my dose reduced today as I've started to get slight pains (like shin splints) in my calves and more severe…[Read more]

Hi Angelina and John

Hey dont we soon get better 😀 I recall after my SCT I asked when I might be going home on my 13th day and was told it will be about 7/10 days all being well 🙁 but 3 days later I was packing my case and heading home 😎

Took me some time to get into my eating habit dint ever think it would come back but hey ho its…[Read more]

Hello Dia

sorry I caanot give you any comment about Velcade but I put a lot of thought and prayers for you all if I could send it down the wire I would 🙂 like Tom I dont have all the words but lots love and hugs 😎

Love Jo xx

Hi Dai

So sorry to hear about your "Bad Stint" Hope it gets better soon 😀

Not one for the written word Dai, but strength has always been my thing (in me head lol) so I am sending some of mine 😎 So if its "Only" (love the way you say it) a matter of pain well you and I plus others can beat it. all the best with it

Regards

Tom…[Read more]

Hi Liz

Am pleased it all got sorted, as I said I never have to suffer pain at all (hope he is correct ha ha)

Good Luck and hope the upt painkillers help 😀

Tom "Onwards and Upwards" xx

Liz so glad to hear that it was sorted.

Love Jean. xx

Hello everyone, thank you all for your input, I did ring the hospital and you are all right in that I should not have worried about ringing them and also it does seem to be bone pain from the GCSF which he did have for a couple of weeks after sct
Just up't his painkillers and it seems to be settling down.
Again thank you all what a lovely bunch…[Read more]

Dai you have done it again. Typing this with tears on my face. You have a fantastic gift. Janet is a very lucky woman. Long long may you be with us.

Love and best wishes
Jean xx

ps Min no matter who wrote it was beautiful and you shared it with us. Thank you. xx

Hi Nicki

I just want to say it is lovely that you posted how well things are going for your husband,it gives everyone a boost.

I look sometimes at so many young people with this horrible myeloma and think how sad,lives not lived,so you post must be such a big boost.
I wish you both a long and happy life. eve

Hi Nikki its lovely to hear things are good for you and Sam As you said its hard to imagine that it could be that way when you are facing the worst myeloma can throw at you!! Enjoy your holiday love Bridget x

Dear Gaye it really does seem so unfair that you should get no relief from the pain as others have said its something we are all told we wont have to endure I will be thinking of you on Thursday and hope like mad they can finally do something for you . Kathleen I am so sorry you are having a rotten time , I can only imagine how rotten 2 or 3…[Read more]