Hello Kath

just wondering how you are as you havnt posted just lately I hope you are ok 🙂

Love Jo xx

hELLO gAYE

So sorry your RT treament has not worked I hope they can sort you out and give you some relief:-) glad the pomalidomide is holding the MM lets hope it soon starts to get rid of it my thoughts are with you

Love Jo xx

Min I like Eve wish I had your way with words. That was truly beautiful. We are lucky to have you and Dai. You both can write what a lot of us think but can't express. Thank you

Love Jean xx

Min I think that is lovely,

The pen often means more than the spoken words,I just wish I had the gift,
I have looked on life as a learning curve,for a long time,I honestly believe,that some of the bad things that have happened in my life,an awful lot of good has come out of it too.

I use my denby arabesk and my crystal cut glasses every day…[Read more]

Hi Angelina

Sorry to hear about Johns Problem 🙁

I have had CTD then SCT and so far am doing good only need Zometa once per month, so cant add to this apart from wishing John well 😀

Its been said John is in the best place and being looked after.

Wishing John a seedy recovery to get home soon.

Love

Tom "Onwards and Upwards"…

Hi Liz

I also say phone the Hospital and or the contact Number they gave you.

None of us are the same so need different drugs/meds at different times.

As for me I never hold back calling if need be, we all know our own bodies and what feels "Just not right" is when i call, pleased to say though Not had to call them for some time now :-D…[Read more]

Hi Gaye

Dont we know (or most of us do) about being blooming weary:-S I never know when am getting? (or do i just choose to ignore it?) but my young bride Elaine knows it well:-D so in that matter its all looked after

Good Luck on Thursday 😀 and dont let them make poodles with the Balloons he he

Love and Hugs

Tom "Onwards and…[Read more]

Hi Ali

Am sure when the SCT is due Guy will cope with it well:-D

and Positivity is a great thing, I feel it makes you better faster (but thats just me Ha ha)
Worry not about being busy and not getting on, just dont forget anything troubles you we are here for you.

Love
Tom "Onwards and Upwards" xx

Thanks Dai

Will look at that,Slim goes back on ctd week Tuesday,hope I can fatten him up a bit,they seem keen to put him back on it.I wait and see how he improves.
In need of finding some alternative treatment,

Have you started the music for the lyrics of angels? best wishers eve

Thanks for the info Dia America is so much more advanced than us it gives me great hope for new treatments
Love Jo x

Hello jet

Thankyou for your reply I hear what you are saying and will certainly ring the number we were given, I think the reason hubby was delaying it seems that's all we do and I know that's what they there for only last week I rang myeloma nurse because of his really bad rash every where which we were told a reaction to drugs…[Read more]

hi Everybody
I cannot be much help to you ,only to say weekend or not make that phone call,I have learn,t that you do not hesitate,if in doubt listen to you instincts.

My husband ,has just come out of hospital,They make clinical judgement on a daily bases but at the end of the day you know your partner.
The problem seems to be everyone,reacts…[Read more]

Thanks Jean I will do that, let's hope someone can help?

Love liz xx

Hi Liz

Sorry to hear that Kev is having such a bad time. I know what you mean about men being stubborn. (sorry all you men out there!). I am sorry that I can't give any help on the problem that Kev is having. Sometimes posts get "way laid" or lost so maybe if you start a new topic under Treatment or Side affects with a heading on the problem -…[Read more]

Hi Jean, just read your post dated the 5/5/11 not had much time to post anything lately kev's had a few hiccups the past couple of weeks, trying to get to the bottom of this awful rash that's after his sct, think it's reaction to drugs he's been on and the treatment, and now since Thursday he's been having pain all over ie bones and really bad in…[Read more]

Dai. Thank you so much. You can put in words what most of us are thinking.
Love Jean. xx

Hi Gina and Mum

Like all the others am pleased your Mum is Still holding back treatment 😀

And as for being tired :-/ tell me about it me I have fell asleep in the pub (and still sober he he) but my young bride Elaine now knows when I am getting tired and makes me go home/or stop what am doing (bless)

Yes its hard to sit back and wait…[Read more]

well David mine was on the 22nd November 1975 😀 now lets see three kids born?? :-/ names ??:-S you ask them and they will tell you its a erm Lee Craig no you Ha ha ye I still get mixed up with the three Sons Names and Grandkids ho ho Love them all (5) but even they know I get confused when I call them He he, Hey Ho am sure its just me 8-)…[Read more]