ruth75 started the topic Can anyone shed any light – re: Paraproteins, SCT, Bone Marrow Transplant. in the forum Treatment 12 years, 11 months ago
Hi, not posted much but will try to explain the situation. My ex husband (father to my four children) was diagnosed with Myeloma in late feb this year. When he was admitted to hospital his pp level was 115. The consultant said this was very high but I didn't realise how high until recently. On discharge 10 or so days later, after four plasma…[Read more]
ruth75 replied to the topic Should he be in so much pain? in the forum General 13 years, 1 month ago
Hi everyone, thanks for the replies. Since I posted this things got worse, last Monday his back gave out and he ended up sofa bound. He has been there ever since, with the exception of a couple of painful trips to the loo.
He refused to do anything about the pain, insisting he had pulled a muscle. Eventually his girlfriend made a GP appt for…[Read more]
ruth75 replied to the topic Should he be in so much pain? in the forum General 13 years, 1 month ago
hi, he was given an x-ray as part of the initial investigation then he had a skeletal survey (?) last week when he was in the hospital but from what has been said this was done to provide some sort of benchmark (not sure if that is the right word) for future reference. Does this sound normal? They haven't indicated any bone damage from this as far…[Read more]
ruth75 started the topic Should he be in so much pain?. in the forum General 13 years, 1 month ago
My husband was diagnosed with Myeloma 2 weeks ago. it was discovered after he was referred to a&e by an optician who discovered a ruptured blood vessel behind his eye. He was found to have haemorrhages behind both eyes and very high paraprotein levels in his blood. he has also been suffering really bad back pain for about 4 months prior to…[Read more]
ruth75 replied to the topic Looking for information in the forum General 13 years, 1 month ago
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ruth75 replied to the topic Looking for information in the forum General 13 years, 2 months ago
Thank you for your replies, it is helpful to hear from real experiences rather than statistics.
My husband has been put on a drugs trial, I don't know what for though, he couldn't remember all the names. I know one is thalidomide, not very helpful He had a third plasma exchange today, and another transfusion this evening, his proteins are very…[Read more]
ruth75 started the topic Looking for information. in the forum General 13 years, 2 months ago
Hi, I hope you don't mind me posting here. My husband, who is only 29, was diagnosed with Myeloma last week. As I'm sure you know it has come as a huge shock. We have four children aged 6,4,2 and 1.
He was sent to a&e by the optician for a ruptured blood vessel behind his eye. They told him he had haemorrhages behind both eyes and would need to…[Read more]
