Hi carol,

How are you feeling? Hope everything is doing what it should be.
Just thought I’d check in to see how you are?

Take care liz & kev xx

Great news david! Long may it continue.

Love liz & kev xx

Hello Trigger,

I’m a carer for my husband kev,he was diagnosed August 2010 aged 55, after 6 months CDT went on to have sct march/April 2011 but only got 7 months compleat remission and been on velcade/ dex and now on rev/ dex and stable or plateau’d for the last year!

Sorry to hear about your mums situation but has your mum been given access to…[Read more]

That is wonderful news David 🙂

Megan

Hi Sarah,

One last suggestion after reading your response. I know it is not available everywhere but have you checked if M could have patient transport? When Phil had both femurs operated on he could not travel on public transport and driving to the hospital was not an option. Phil was able to get patient transport to and from his…[Read more]

Hi Trigger

Well I had a sct in 2009 yes it was a bit of an uphill struggle at times but for me it was a doable and you know your Mum better than most, most people differ in how and what they can and do achieve, My SCT gave me 4 year drug free and that I am grateful for .

I have decided to go down the SCT route again as I think as it worked once…[Read more]

Hi Maureen and Ian

Yes a good bottle of red should be on NHS Scrips lol,and I aint got any side effects to speak of cept the Dex and sleep (lack off) so am going to have my week three of Velcade in Morning plus me ten iccle Dex Mates lol, so nearly just over half way on my first four week cycle and doing good

Enjoy whats left of the week end…[Read more]

Morning Andy and (The ever watchful) Steph

I bet its been a long week for you both ?
I hope the Anti B’s have worked for you and those lovely Neuts have got to a point where you can restart your treatment.

You can always get the beer in and invite those that aint Buggie lol.
Stay well my Friend and Steph stay on watch young Lady

Every Day is…[Read more]

Hi David

So glad for you,are the putting you on maintenance ?????

The bloods are good too,just watch out for those horrible DVT,read that e mail,wait till the wife goes out, lol

Seriously glad things are near normal long May it stay that way. Love Eve

Hi Fiona
How are things going!!! Is hubby responding to new treatment,or are you still at watch and wait,because you have not been posting I have lost track a bit,he came out of remission!!!???
Please correct me if I am wrong,the last 6 months have flown by,just when you do not want them too.

You must stop typing and delating response !!! We…[Read more]

Hi Carol

Sounds like you are getting there. Hope you get home soon. Re the vaccinations. Frank had his SCT March last year and only started the re vacInation about 8 weeks ago. I kept asking consultant and her reply was “the jury’s out on that one”. Then On one visit she said she had informed our doctor to start the procedure. So far he’s had 3…[Read more]

hi Tigger
I think you mum has had some poor information there are several treatments that will be available to her I have not had a stem cell because of renal damage first treat I had was thalidomide and DEX I got over 3 and a half years remission had velcade treatment last year finished last September which again has put me in remission again I…[Read more]

sorry David
didn’t mean to repeat myself x

WOW David

wonderful news its what we need to cheer us up long may it last for you as they when the going gets tough the tough get going that’s you
Love Jo

WOW David

wonderful news its what we need to cheer us up long may it last for you as they when the going gets tough the tough get going that’s you
Love Jo

WOW David

wonderful news its what we need to cheer us up long may it last for you as they when the going gets tough the tough get going that’s you
Love Jo

Hi Trigger

The best thing you can do is ring Ellen on the free number above 9 to 5 weekday she can answer your questions,the reason I say this is some of your mums information plus yours seems in correct,but I could be wrong.????

My husband has had the following treatment CDT CDV and CDR these are the three chemo,s that NICE allow if not on…[Read more]

Hi Trigger

It is very much an individual choice,and it is your mums choice,I would advice that you get a second opinion ,65 is not old.
You do not say what Myeloma your mum has,or what damage she has,or if it’s effected her kidneys these are very important in any decision she makes.

My husbands consultant advised us to go to Kings and speak to…[Read more]

Trigger I forgot to mention after 100 days he had all tests including PET scan and is in complete remission

Jean