Hi Trigger

Sorry to hear bout your mum. Others will be along who have more experience than me but I will tell you of Frank. He had his STC in Match 2013 one month before his 70th birthday. It was no picnic but he got through it. He’s also like your mum “healthy”. With Frank it’s only now he is coming back to himself. Even though we still had…[Read more]

Now half my post is missing ???????

Hi Maureen and Ian

Pleased bloods are good it’s a step in the right direction, I hope it’s a nice bottle of red you are having

Hi Judy
Yes I do take them in morning about 5am but it still makes me lose a few days sleep to be fair and am sure I catch up on a Thursday lol

Liz and Kev

Yes I am still clocking on so far will continue until I just cant do it any-more ?

Have a great week end you all

Love Tom Onwards and upwards xxx

A mud pack! Not that I need one nor kev, but I’ll be interested in your answer?
LOL!

Liz

Hi Andy,

Sorry to read about your hospital stay, hope everything will be sorted and your back on treatment, these infections and temperature spikes are always a worry and Steph was quick to act I would’ve done the same!

Keep well love liz & kev xx

Hi Richard, glad to read your finally home and you continue making good progress!
Keep well

Liz & kev xx

TonyF congratulations on one year sct keep well!

Liz& kev xx

Hi Tom,

Those dex days! Kev takes his early morning but he still gets his wide awake night, although they reduced his from 40mg to 20mg the only difference he’s noticed is his down days happen quicker which he’s not happy about but there not so powerful (if you get what I mean) but he gets a couple of good days and we try and live a normal life…[Read more]

Hello David,

Glad you got the right diagnosis in the end, these DVTs are a side effect of revlimid and kev as always taken aspirin from day one, he did have a scare when he had one of his chest infections, the dr said they can cause small ones to collect in the lower lung, but sometimes people cannot tolerate aspirin, I suppose it would be…[Read more]

Hi all

Well I gave had two lots of Velcade and two lots of steroids and doing well at the moment.
Just had the sleepless nites with the Dex then the fatigue at the end of the week so it’s all good.

Carol looks like your doing well with it good on you,

Mavis yes on for another SCT at the end of this treatment it’s what I said I would do to be…[Read more]

Hello David
glad you have got it sorted it just shows you have to be persistant as for you guys it send me mad I often tell especially youngsters excuse me we are not guys my rant for the day
Regards Jo

Hi Sarah,

It is a difficult balancing act but you are right not to rush into any decisions. Do you have people who live near by who can help? The reason I ask is that M may need a lot of help at the moment but as the treatment gets the Myeloma under control he may be able to do more without your help. If there are family or friends who can…[Read more]

Hi Stuart

Found this because of our conversation this morning!

I can now get on the Forum, but can’t see how to start a new topic which used to be at the top of each Category.

Thanks for all you are doing to help us.

Mavis

Hi Tom

At last I have been able to get on line to the Discussion Group so am catching up. Good luck with the treatment. Hope you get into remission real quick. My question is, if you do, why do you need another SCT now, why can’t you just go with the remission for however long?

Lots of love.

Mavis x

Hi Carol

Frank has never had radiotherapy. She mentioned thyroid and I can remember her saying “none of my patients have ever had to have it removed “. Really don’t know what that means. I have some questions for her when I see her on Wednesday.

Carol I have been following your SCT journey and as you know things will get better. There is light…[Read more]

Hi David

Revilimid is known to cause DVT ,it will be your consultants approach to it,if you stay on it or not.When Slim was on the Revilimid he was on a preventive does of Claxane 40m but this still did not prevent an artery blockage from hip to knee although he had low platelets?????,

There is a tablet called RIVAROXABAN that does the same job…[Read more]

Hi Vikki

Longg time no hear. So glad to hear that Colin is doing well. I have to say This past week is the best Frank has been since transplant last March. His form is good although consultant says there is something wrong with thyroid! she’s referring to some other consultant. His potassium is low as is vitamin D. Cannot take medication as it…[Read more]

Hi Grega

I know GCFS injections boost white cells in the blood,if you contact Ellen or Maggi on the free number above they can explain. Eve

HI Andy
sorry not commented for a while just managed to get on the site again Lucky you have Steph to look after you and they managed to catch the infection in time and the low nuets so you know what you are dealing with
Keep well JO

Hi Sarah

This is a very difficult decision to make and takes a massive lot of thinking. My husband was diagnosed in 2006 with smouldering myeloma. I taught at the local university and loved my job. Frank was smouldering and although, sounds funny, was healthy. He didn’t need me around all the time. But I couldn’t concentrate at work, he was…[Read more]