eve replied to the topic sorry in the forum Newcomers 15 years, 2 months ago
Hi MIn
Not good min,
I now know why they call those little girls who try to get you walking o/t,they go over the top,left Slim for 4hrs he was due to eat,have cat scan and have a rest period, this ot decided Slim was going to walk,ith zimmer with sticks and do stairs and Slim put on a great act and did the lot only to be exhausted for rest of…[Read more]
tom replied to the topic sorry in the forum Newcomers 15 years, 2 months ago
Oh Jo here is Tom walking away Blushing he he 😎
tom replied to the topic My father just got the news… in the forum Newcomers 15 years, 2 months ago
Hi Marion
Ye its hard even for me and I am 55 years young 😀
As its hard to understand a fast talking Dr why dont you ask to have a copy of the notes that is sent to your dads Dr 😀 that way it can be read and re read until its sinks in 😎
I also have my fingers crossed for your Dad
Love
Tom "Onwards and Upwards" xxx
BADGER replied to the topic sorry in the forum Newcomers 15 years, 2 months ago
Hi Eve and Tom
Ditto not offended in anyway and tom you are looking gorgeous must be all the attention from the young bride :-S
Eve I do hope slim is feeling a bit better and now getting all the attention he needs
Min your posts are wonderful so full of help and information
Love Jo xx
BADGER replied to the topic No SCT for now as I have amyloidosis in the forum Treatment 15 years, 2 months ago
Hi Sharpy
I have had two years remmision fingers crossed it lasts a lot longer,
didnt have an SCT due to major kidney damage had CDT for four months follow by a year on 100mgs thalidomide hope this helps.Para protien last month was in a band to fient to measure
Love Jo 😎
tom replied to the topic My father just got the news… in the forum Newcomers 15 years, 2 months ago
Hi Marian
So sorry to read your Dad has MM, but you have come to the correct place here for help and advice 😀
I was told in 2009 that I had MM and have had a stem cell transplant and doing good, do you know what treatment your Dad will be having? as we all have different treatment due to the MM
I wish your Dad well in his forthcoming…[Read more]
tom replied to the topic sorry in the forum Newcomers 15 years, 2 months ago
Hi Eve
Its a bit of a B-A-S-T-A-R-D this MM (see now av shown you he he)
Am sure Slim will be Ok its just getting his meds right that causes a big problem :-/
And as for Slim Looking in good shape, I think its an MM thing cos I know that all us suffering MM look bloody good to say what we are and have gone through 😀
Good Luck and…[Read more]
Debs replied to the topic sorry in the forum Newcomers 15 years, 2 months ago
Hi eve
Just wanted to say firstly to keep strong with slim and remember all the experts you have working with him. He sounds like a fighter too so hopefully you'll look back on this in a month and wonder what the worry was about …I hope so as you're v inspirational people!
As to the complaint , I'm with Tom…..would take awful lot for me to…[Read more]
eve replied to the topic sorry in the forum Newcomers 15 years, 2 months ago
Hi min
just woke up, thank thank you so much,I need to know there is hope to give him hope,At the moment reading your message you could be talking about Slim I know I have left him tonight wondering if this is the end.The doctors do not know it,his attertude is I have got away with it for 66 years!!!!I suppose,because of his life style he has…[Read more]
eve replied to the topic sorry in the forum Newcomers 15 years, 2 months ago
Hi to you all
Tom you are going to have to tell me how i can do it,because I know I am loosing the plot.
just got back from hospital.Slim had cat scan today,not good news.
Blood clots on lungs,also cavities might be mm or could be tb.my own thoughts are possible asbestos as Slim use to sleep under the piping on board ship as a young…[Read more]
tom replied to the topic sorry in the forum Newcomers 15 years, 2 months ago
Hey Eve
Trust me girl us lot are not easy to offend:-D and it must be the Skool prefect that felt it might be dodgey 😎 I know I have tried to use MANY a cuss word and it wont let me He he (but av found a way round it ha ha.)
Hope you and Slim are doing OK
Lots of Love from one "Unaffected bout comments" Tom xxx
ps let me know if…[Read more]
jmsmyth replied to the topic sorry in the forum Newcomers 15 years, 2 months ago
Hi Eve
I'm with Bridget and Jo. How is Slim? Do take care of yourself.
Love Jean xx
BADGER replied to the topic sorry in the forum Newcomers 15 years, 2 months ago
Hi Eve
dont be sorry you have been through a real worring time I expect you had a lot on your mind and you were exhausted hope slim is feeling a bit better
Love from jO XX
jmsmyth replied to the topic Cystic Fibrosis Awareness Week in the forum Off topic 15 years, 2 months ago
Yes Bridget CF is a horrible disease. 30 years ago, our friends son died of it at age 16. They are still very much involved in CF (fund raising etc) and tell us of the great progress that has been made.
Tell your daughter that the best cure for hang over is the "hair of the dog". (that's my excuse)
My best wishes
JEan xx
brocho replied to the topic Newbie – Dad has Myeloma in the forum Newcomers 15 years, 2 months ago
Hi Fi sorry you are in the position of needing to join us but welcome Myeloma is such an individual illness it would be nearly impossible to guess whats going on with your dad as it needs the whole range of results rather than just paraprotein There is an excellent helpline on this site where medically trained people will be able to give you…[Read more]
brocho replied to the topic Quietly Panicking! in the forum General 15 years, 2 months ago
Hi Roz thankyou I do feel much more positive that was just one of those nights when the pain got too much and ended up in dark thoughts I am sure we all have those nights !! Mri today and hopefully have results by the end of the week Mind you the pain has been gone since I took my steroid dose so maybe it wont come back! I hope you have a good…[Read more]
brocho started the topic Cystic Fibrosis Awareness Week. in the forum Off topic 15 years, 2 months ago
Hi everyone as some of you may know my daughter has Cystic Fibrosis and this week is their awareness week so please help if you can or grab a leaflet or poster if you are offered Cystic Fibrosis is the most common genetically inherited disease in this country , 1 in 24 of us are carriers. It affects not only the lungs but also digestive systems…[Read more]
brocho replied to the topic sorry in the forum Newcomers 15 years, 2 months ago
Morning Eve away with the blubells sounds good to me !!Cant think of anywhere nicer in fact As for the offense dont worry we have all done it I am sure and it was probably a minor thing How was Slim last night? Are you able to get any rest? Try and take a little time to recharge your batteries away from the hospital its exhausting visiting anyone…[Read more]
eve started the topic sorry. in the forum Newcomers 15 years, 2 months ago
Hi
Just opened an e mail from the Forum,It seems I have put something in a message which they consider offensive. Sorry if I have upset anyone.
I can only put it down to being so tired,it was around 10 pm one night.
I can only say I admire you all,how you cope with mm, eve
sorry in wrong topic should be in off topic,brain not working…[Read more]
jmsmyth replied to the topic tiredness in the forum Carers 15 years, 2 months ago
Hi Bridget
I can understand how your mum feels. It's bad enough watching a loved partner ging through this horrible illness, never mind watching your child.
I hope all goes well tomorrow and I will be thinking of you and you will be in my prayers. Do let me know how thing go.
Lov Jean xx