Pamela

Doing this from my phone as lost connection on lap top! Sorry to hear that you are having pain. This is such a shi**y disease. Hope you loose the pain soon. Frank and dr have had run ins. The last visit it was like watching top dogs vying for position. She said she thought he had cracked a rib he told her she was wrong and he knew his…[Read more]

Hi Jean nothing wrong with being a nutcase !! sorry poor humour sounds like counselling was really helpful for you Myeloma affects so many people not just the patient , my poor mum is not the same person since I got mm and she worries so much it affects her health too Snap I have an mri tomorrow too , I hate them !!Pain has disappeared since…[Read more]

Hi Min I know what you mean individually the side-effects sometimes seem not worth a mention but as a total they dont make for a happy life. Peter seems to have been very unlucky as far as his diarrhoea , that must be so depressing. I am at the point where the endless chemo in one form or another can get me down , in almost 5 years I have only…[Read more]

Hi Pamela

Great to hear from you. Been looking at wedding photos on Facebook. Looked like everyone had a great time. I hope you are keeping well (know that is a stupid thing to say – but you know what I mean). I will be going with Frank – poor man can't go any where without me!! Did you ask them how long it would take for results to get to…[Read more]

Hi Min

I know what you mean. The doc gives me diazepam 5 mgs. He gives me 28 at a time, but
I only take them when a G and T stops working. Packet lasts me about 10 weeks.
Take care
Love Jean xx

Hi Bridget

Thanks for that. I do admit to being a nut case!!! I was much worse but counsellor sorted me out. How is your pain?
Remember Frank pain in side. He kept saying it was muscular and turned out he was right. Hope you got your pain sorted.
MRI scan tomorrow scares th cr**p out of me. You would think that I was having it.
Hope you…[Read more]

Hi Kathlean and Jean no wonder you are tired and on edge I really do think its easier being the one with mm , husbands and wives are the ones who shoulder the burden .I am about to make a sexist remark so all males please close your eyes!! I think as wives and mothers we are used to being in control of our loved illnesses I am sure you know what…[Read more]

Hi Min yes I agree Revlimid makes life very unpredictable doesnt it !!. I cant say its the easiest of drugs to live with and initially I thought it would be less evil than the others. Has Peter got a cough? I think its all the extra musus being produce rather than infection biut it is turning into a really nasty cough which has me gasping for…[Read more]

Hi Kathleen

If you are loosing the plot then so am I. I am a carer to my hubby Frank diagnosed Sep 2006 with SMM. He is not on treatment, but at last visit she discussed future treatment. Also sent him for skeletal Xray and tomorrow he is going for an MRI. I watch him like a hawk If he pulls a face I'm asking whats wrong!! For a long…[Read more]

Hello Dia

Just love the blues we go to as many gigs a we can the last really good one was willy and the poor boys if you have not come across them you should have a go on the net last CD we bought was John Mooney
Like your stuff as well
Love JO xx 😎

Morning Dai how true tis is !!There is nothing better than listyening to Howling Wolf or Muddy Water when you are fed up and realise we aint got it so bad!! As for Leonard Cohen thats for the seriously depressed and works just as well love Bridget

Hi Angelina poor John is really having a rotten time but as you say he is in the best place at the moment. I didnt have any diarrhoea when on Velcade , my problem was severe constipation. It was explained to me that velcade affects the nerve endings in the bowel and intestines in the same way it affects fingers and toes, it sounds as if John has…[Read more]

Hi Angelina thankyou for your caring words. I phoned my nurse today and she is going to make sure the mri report is seen this week and will phone me on Friday bless her!! She has also suggested Fentanyl patches for the pain. But its very strange I have had no back ache this afternoon and evening , thank god,all I can think is the weekly steroid…[Read more]

First chance to reply
Ward went in lock down today no new admissions place swarming with cleaners. Slims septic pneumonia is back, had 24 hour bug,on the whole much better,Test to see if there is an under lying infection.Doctor does not think it is directly related to mm,except concerning the body being at low ebb,to pick up infections.all the…[Read more]

HI Bridget,

You are all ways there to support people,in time of need,I wish you well and will try to follow your post to support you as much as I can.best wishers eve

Hello A plus a monthly dose of pamidrinatengelina

thank you for the hugs I need them
I was diagnosed in jan 2009 entered hospital with double pnumonia renal failure and MM I also needed eight units of blood
First line of treatment was a big mistake idarubicin, damaged my kidneys even further then had 5 lots of CDT then took thalidmide for a…[Read more]

Thankyou everyone your support means such a lot. Wobbly moment over but I am definitely going to ring my nurse tomorrow as this pain is more than can be blamed on dusting unfotunately !! lots of love Bridget x

Hi Dai good luck for tomorrow . I didnt find velcade too bad at all really , no sickness or nausea but constipation was a bit of a problem, best to take laxatives early on love Bridget x

Hi Dia

Hope all goes well tomorrow. Sorry I'm not with Janet as regards to the rain. If you lived in northern Ireland you would no why.

My very best to you
Love Jean x

Hi Dia

All the best for tomorrow, and am with you re Janet and rain 😎 it will be ok for me if it rains every nite and the sun is out daytime 😎

Tom