tom replied to the topic Quietly Panicking! in the forum General 15 years, 2 months ago
Hi Bridget
Sorry to hear you are feeling poorly 🙁
I am same as all our other friends above, but I was told never to suffer pain or any doubts at all and if any rear its ugly head I am to go straight up to the ward 😀 and I have used it twice so far and its great no waiting no worries 😎
hope all is well and its put down to heavy…[Read more]
BADGER replied to the topic New to Dad with Myeloma in the forum Newcomers 15 years, 2 months ago
Hello Anghelina
I was very intered in Johns story did he take any medicine after the CDT apart from pain killers and bone strengthner he had a good remission a lot of people have SCT and only get a year or eighteen months remmission
Kind Regards Jo 😉
BADGER replied to the topic Quietly Panicking! in the forum General 15 years, 2 months ago
Dear angelina
I believe in all things mystic there are some strange things in heavan and earth to many things happen not to believe it
Love Jo x :-S
BADGER replied to the topic Quietly Panicking! in the forum General 15 years, 2 months ago
Bridget
you know house work is a dangerous business. seriously I really hope that is all it is all my monsters come at night or early morning if it does not go away get straight on to UCH thats what they are there for
Love you lots JO :-S
BADGER replied to the topic V For Victory in the forum General 15 years, 2 months ago
Hello Dia
good luck for tomorrow I hope all goes well, I am with Janet my garden is desperarate for rain
Love jO X 😎
jmsmyth replied to the topic Quietly Panicking! in the forum General 15 years, 2 months ago
Hi Bridget
I just want to add my 'penny worth'. I agree with alll that has been said above. I hope all goes well for you. I know the "big bad monsters" come out at night. I have met them a few times myself. My thoughts, and best wishes are with you.
Love Jean xxx
brocho replied to the topic Quietly Panicking! in the forum General 15 years, 2 months ago
Dear Gaye yes housework is a perilous business , perhaps its best avoided if only sunshine didnt show all the dust up!! I am less panicked this morning but will definitely ring and tell them to check my mri results sooner rather than later, the pain is exactly like the original which led to diagnosis so I need to know . I am so sorry to hear you…[Read more]
brocho replied to the topic Quietly Panicking! in the forum General 15 years, 2 months ago
Hi Min good morning the laptop decided to go to sleep last night so I didnt see your reply You are right morning things dont seem so scary but I do need to ring tomorrow as this pain is deinitely more than strain, not much point today Thankyou Min for being there just what I needed someone to point outthe obvious which you cant see yourself in…[Read more]
brocho started the topic Quietly Panicking!. in the forum General 15 years, 2 months ago
Hi everyone although it is very late and most sensible people have been tucked up in bed for ages This is one of those nights when my mind is going at full speed with thoughts that I cant frighten my loved ones withso I am writing it down just to get it out of my system This week I actually had some energy!!Yippee! Well as the house looks like a…[Read more]
eve replied to the topic BLOOD PRESSURE in the forum Side-effects 15 years, 2 months ago
just got in
THere is now a bug on ward number of patients infected Slim being one,was talking about shut down,doing all personal care ,picked up on antibiotics and fluids,plus potassium low.
exray not looking good patchy lungs,I cannot tell you how many people I have spoken too.Even Slim in one of his lucid moments,had a slanging match with a…[Read more]
brocho replied to the topic (New email address) Catch up in the forum General 15 years, 2 months ago
Hi Roz you need to click on your name where it comes up on your post thenclick edit profile , this lets you change your e-mail It is such a shame your daughter doesnt visit perhaps she finds it hard not to see her dad in the house Could you suggest meeting her elsewhere perhaps , it might be easier for both of you Hope you have a good weekend…[Read more]
BADGER replied to the topic BLOOD PRESSURE in the forum Side-effects 15 years, 2 months ago
Hello Eve
So sorry to hear about Slim I agree with Min and Jean contact your local paper and what about the daily mail also could myeloma uk help you
my thoughts are with you
love Jo x
jmsmyth replied to the topic BLOOD PRESSURE in the forum Side-effects 15 years, 2 months ago
Dear Eve
I am so sorry to read of the terrible time that Slim and you are going through.
It sounds like the hospital from hel*. I can only say that I agree with what Min has said.
It sounds like good advice. I hope that you get this sorted quickly and be assured that all our thoughts are with you
Both. My prayers are with you and Slim. Take…[Read more]
brocho replied to the topic BLOOD PRESSURE in the forum Side-effects 15 years, 2 months ago
Dear Eve its heartbreaking reading your post and the last thing you need when Slim is so ill is having to worry about his basic care. Although Slim is on a general ward surely his own consultant must be responsible for his care!! What sort of response have you had from the consultant or specialist nurse? I found out many years ago that when a…[Read more]
eve replied to the topic BLOOD PRESSURE in the forum Side-effects 15 years, 2 months ago
Hi Min
The news is not great I am going to try to keep this reply short
After being discharged from A&e,then readmitted 2 days later on easter monday Slim spent 9 days in itu with septic pneumonia in both lungs,care excellent,
sent to general ward,as cancer ward would not accept him,hdu was not given as alternative.
First complaint wrong…[Read more]
brocho replied to the topic (New email address) Catch up in the forum General 15 years, 2 months ago
Dear Roz lovely to hear from you. Sounds as if you have been busy with yoiur new kitchen etc , I bet its great now its finished. The council are fitting me a new kitchen and bathroom soon , trouble is they are doing both at the same time so the mess will be double!! I hope tomorrow is a day full of lovely memories for you Take care of yourself…[Read more]
BADGER replied to the topic I Won't Sing in the forum Off topic 15 years, 2 months ago
Dia
I thought your song was brilliant and the singer was pretty good to
Have you any more tracks
Love JO X8-)
brocho replied to the topic I Won't Sing in the forum Off topic 15 years, 2 months ago
Hi Dai thankyou your words are so poignant and moving love Bridget x
brocho replied to the topic Treatment at Ist relapse in the forum Treatment 15 years, 2 months ago
Hi Angelina roller coaster it certainly is , I suppose it stops life being boring though!! Like John I lost 3 vertebrae and had surgical reconstruction , walking is difficult some days worse than others As for the pain you just learn to live with a certain level of pain controlling it as best you can. It must be very hard for you with your…[Read more]
jmsmyth replied to the topic I Won't Sing in the forum Off topic 15 years, 2 months ago
I was very moved by your song Dai. Congrats on lyrics. By the way your site is great.
Best wishes Jean