KerryDowell

  • Hi Jem

    I am so sorry to hear about your dad. I cannot help with any info but maybe someone else on site can help.

    My best to you, your dad and mum. Take care
    Jean

  • Hi Angelina what a tough time you are both going through but reading your post its obvious that you and John are fighters to have got through such a hard time in the beginning Although your husband has mm I am sure your strength has helped him to get back on top and hopefully it wont be long before he is home !It is definitely better to be on…[Read more]

  • Hi Liz I am bumping ur post up, as it may get burried under the wrong heading.
    Hope I'm making sense. I understand completely the crying – I have done my fair share.
    Best wishes Jean x

  • brocho replied to the topic Myeloma XI Trial in the forum Treatment 15 years, 2 months ago

    Hi Sharon good luck but you will be well looked after on trial I am sure Try and put it all out of your mind for a few days and do something nice and luxurious! love Bridget x

  • brocho replied to the topic Update on hubby in the forum Newcomers 15 years, 2 months ago

    Hi Liz great to hear Kev is doing well and normality is just around the corner!! Make sure he is careful to cover up in the sun though love Bridget x

  • Debs replied to the topic Myeloma XI Trial in the forum Treatment 15 years, 2 months ago

    Ah Sharon,

    You'll be fine hon. HOw come you have to go in for a few days though??? Remember to call me if you need anything at all….even a rant!!!

    Take care. Lots of love
    Debs x

  • tom replied to the topic Update on hubby in the forum Newcomers 15 years, 2 months ago

    Hi Liz

    I also have not been on for some time 🙁

    But am pleased Kev is doing good 😀 I also (like many more) had a rash as well, but like all my other bits it all worked out great 😎

    Good Luck

    Tom xx

  • Thankyou Amie its very humbling to see the effort all those lovely people go to raise funds , especially the children Bridget

  • Hello everyone, it's been a while since I've posted anything, thought I'd update you on kev I think fatigue is a major thing to get over his blood counts are doing well! After his sct but since the weekend a itchy rash as appeared on his face docs say it's probably the antibiotics which he will stop today and will see what the prof says on Monday…[Read more]

  • Hi Liz and Kathleen

    I am sorry to welcome you to this site but you will soon find out what a fantastic bunch of people are on this forum. My hubby was diagnosed in 2006 with Smouldering Myeloma. He has not had treatment but at last visit to consultant she organised a full skeletal xray and for the first time discussed treatment IF needed.…[Read more]

  • Hi Jet

    I get my sodium bicarbonate from the docter on perscription I think a tub of 56 5oomgs capsuals is £17.00 you might get your docter to give you some I have also read about them having anti cancer properties although my consultant said he had never heard of it I also take an 800mg vit c tablet and a pure allicin tablet I have read about…[Read more]

  • Debs replied to the topic Myeloma XI Trial in the forum Treatment 15 years, 2 months ago

    Hi Sheff,

    Like the others on here, I am so sorry to hear about the loss of your father. I think it hits us all hard everytime that we hear of someone passing away, but it is even harder when you know that the family have suffered so much with the way it has happened. All my best wishes are with you and your family over the coming weeks and…[Read more]

  • Hi Min yes weird in many ways and probably always have been !! They seem to think the rise in klight chains is significant but to be honest I think they are fuessing really , who knows! What a shame Peter had a few bad days when you were so looking forward to the grandchildren coming. I agree thought the unpredictability is hard to live with , if…[Read more]

  • BADGER replied to the topic BLOOD PRESSURE in the forum Side-effects 15 years, 2 months ago

    Hello Eve

    CONGRATULATIONS lets hope you can have a small party or even a big one once Slim is up and about fingers crossed it sounds as if he is over the worst good job you sent for an ambulance to bad if he moansed he will have to agree now you did the right thing:-S

    Lots of love Jo 😎

  • jmsmyth replied to the topic BLOOD PRESSURE in the forum Side-effects 15 years, 2 months ago

    Hi Eve

    A big congrats from me. I was thinking about you on 28th as was Franks bithday – and there you were an "old married woman". (less of the old I can hear you say). I am so glad to read that Slim is feeling a little better. I have been following your posts but could ffer no help. My very best to you both and hope that Slim goes from…[Read more]

  • brocho replied to the topic BLOOD PRESSURE in the forum Side-effects 15 years, 2 months ago

    Dear Eve congratulations to you on your marriage and to Slim for turning a corner!! I hope he makes it out of itu soon . As you say it will take time to get his strength back and he will need that if he restarts chemo . How are you? You must be exhausted I hope someone is giving you some tlc even if its only a nice cuppa when you need it. Onwards…[Read more]

  • eve replied to the topic BLOOD PRESSURE in the forum Side-effects 15 years, 2 months ago

    Thank you every one for all your Help

    Had a tough week and a big learning curve,we got married on 26th of April instead of 28.th The hospital did us proud,cannot thank them enough,good job we did it then as Slim was a bit off his head the next day,and I am sure the Registrar would have said he was not of a sound mind.
    Only managed one daughter…[Read more]

  • eve replied to the topic Myeloma XI Trial in the forum Treatment 15 years, 2 months ago

    sheff
    This is to you personally ,I need to Know more,I do not know if we can post are email address on here, but I do need some facts on this.
    My husband was diagnosed in January on myeloma x1 trials ctd side.

    He is in hospital at this moment in itu.getting better slowly from infection but what concerns me,is the mental state,I do not know if…[Read more]

  • Hello chucky and Hubby

    I was diagnosed in Jan 09 with double pnuemonia renal failure and as it turned out MM the first treatment I was give was idarubcin which made my kidneys even worse they were preparing me for dialysis I had a wonderful renal consultant who put me on sodium bicarbonate tablets along with the steriods my kidneys improved a…[Read more]

  • Hi Bridget

    WHAT A WEIRDO :-S but hay it must help I think this is a werdo club at least it has got you noticed which is the main thing and it looks like you will get special treament so glad about that never mind the cost so much is spent on wasteful things you deserve the best

    Lots of love Jo 😎

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