Hi Everyone

Yes I can confirm kent south coast is basking in the sun,hotter than Spain,West Coast of France even Cyprus.24 degrees here in sunny Deal no wind sea as calm as can be,when its like this you cannot beat it.
We had planned a few days break only up the road,but Slim not well enough,first time out yesterday for a week,but he did enjoy…[Read more]

Hello Gill

I watch Benidorm I think its moronically funny there are people like that! and yes I remember crossroads how funny it was when it wasn't
meant to be my mother in law was addicted to it
Love Jo 😉 y

Hello min

Sorry your hols turned out so rotten especially as you had been looking forward to them Peter probably caught his infection from the plane I got a terrible cold last month when we got back from the canaries I know what you mean about two cardies cold up your way we visit friends in Leyburn in the yorkshire dales and its always a few…[Read more]

Hi Min I am so sorry to hear you had a nightmare holiday !! What rotten timing to get a reaction , poor Peter Glad you got home safe and sound and can relax now though We have been promised sunshine all next week so you can enjoy your garden at least love Bridget x

Hi Dave good luck with your sct Hopefully you wont have too many unpleasent side-effects and be home before you know it It is definitely worth going through Hang in there love Bridget

Hi myelomawife that sounds horrible , it must be awful to see your husband like that and not be able to help Is there no other painkiller? I have never had oxycotin but I do have mst slow release tablets which work really well plus severidin for breakthrough pain If it were me I would ring the specialist nurse to talk it over with her and once…[Read more]

good on you girl,
Have a lovely evening eve

Hello Gill

What awful news Like minimouse how can this doctor look into the future like that who knows what revlimid will do I speak to a lady at my support group who was told three years ago not much hope they put her onto revlimid
which at the time she had to fight for three years later she is well and still in remmission she was too old for…[Read more]

Haha so good to know we are all totally BONKERS!!!…[Read more]

Aahh, Gaye,

So sorry to hear that the pain is still bad for you. Must be so hard….bad enough dealing with the damned disease anyway, without that on top of it all. But I am really chuffed to hear that all is going well with the pomalidomide…that is good news!

And just to join the…[Read more]

Dear Gill

I am so sorry to hear your terrible news. I just don't know what to say to you. I can understand you being in pieces. You have been a tower of strength to people on this forum and I hope that we an be of help and support to you. My love thoughts and prayers are with you both.

God bless
Love Jean xx

Dear Gill

What can one say,sorry does not seem enough,The only thing I can say is I believe no one dies until they have had enough,and there seems to be acceptance of death,
If it is any help to you I try to look ,at are life together and think of all the good things we have done,and when i look back I consider that we are very lucky people,I…[Read more]

Hi Gill I replied about half hour ago but it has vanished , the first time those gremlins got me!! Blooming laptop fell asleep before I did last night but I am always up till at least 2 and often later The annoying thing is the pn in my feet gets me up about 6 am whether I want to or not . I do hope you can get some rest today and it looks like…[Read more]

Dear Gill I had to read your post 3 times before it sank in my god no wonder you are in pieces! I have been told no more sct either but no-one has suggested giving up hence the revlimid Surely we just carry on with the current and most suitable drug and there must be new trials coming up . Steven and I are the same age and it is so incredible to…[Read more]

Hi Jonny,

How are things going with you? Hope treatment is going ok and you're not suffering too much.

Just wanted to catch up and check in on you!!!

Debs x

Hi Mike,

Just thought I'd see how you were doing as you must be into your second week of revlimid now? How has it been? Any major side effects? Meant to mention that your taste will probably go up the spout…but you probably know that by now! I remember my consultant saying I could have a glass of wine if I wanted but that I wouldn't…didn't…[Read more]

Hi Chris these chest infections can be a pain to get rid of ! Arent daughters lovely and its always nice when they come to keep you company, not too sure how I always end up cooking thought!! No I am not in remission When I relapsed and was on Velcade for 3 months but it didnt work So now its fingers crossed Revlimid can do the trick , I am just…[Read more]

hi kieth

I am following your story closely I am not on velcade yet they tell me it will be my next treatment I am really not looking forward to the DEX as I am a type 2:-/ diabetic so have to go on insulin as steriods really raise sugars I think about you all,all of the time hopeing everyone is successful

Good Luck with the next SCT

lOVE jO XXX

Hi Andy we we are all whippersnappers really!! As Debs said the under 50 site is great and I think you will find it helpful but I will look out for anymore younguns ! love Bridget