Hi Chris sorry to hear you havent been well , chest infections are really horrible I am struggling with one at the moment!! Hopefully you will be back on top form soon How are you getting on with the lenilimide? I must admit I am struggling with Revlimid , nothing too major just dont feel great most of the time ,mind you I am not falling asleep so…[Read more]

Hi Andy

Sorry to hear you got the diagnosis so young. I was 34 when diagnosed in 2009 and felt like it was really unfair!!
Hope you're being looked after well…think you'll like the under 50 site though if you email Scotty!!

Debs x

David have you got "bugs" in my house!!!!!!! Very good
Love Jean x

Hi Andy I think you might be right there , an under 30 group would be a very exclusive one !! I should think you were pretty peed off when they gave you the diagnosis, how old were you?!! To be honest I was 51 and still thought I was too young to have myeloma Take care Bridget

Hello David

Where do you find these things thanks for the laugh

Love Jo x

Hi Sarah I am on weekly GSF to boostr my neutrophils whilst on Rev . I do occasionally get pain but for the most part its not a problem Hope Frank doesnt have to put up with it for too long . Is there something else he could have or perhaps a lower dose love Bridget x

Hi Jo

Will do. Not looking foward to it. Get myself in a right state!! Will keep fingers crossed for you. Hope all goes well at your appointment.

Love Jean xx

Hello Jean

So glad you had a good holiday It does make a difference good luck at the next appointment and all will be well my appointment is the week after Easter I will get my latest PARA results so fingers crossed please let me know how Frank gets on
Love Jo xxed

Hi EVE

have you tried good old vanilla complan I made a milk shake from it with fresh bananas or strawberrys you can also thicken savoury soups with it there is also something called build up they give it out in the renal clinics
pobably not all that pleasant just a hold your nose job

Love Jo:-P

HI Everybody

Thanks for the info on Maxi-Joule Bridget,I tried doctors for a product you could sprinkle on food,told only certain products on nhs.E Mailed one manufacture who sent soup samples through to district nurse for me,not very nice.Will try this see if it works.
Perkymite I would give anything to see Slim drink,a glass of wine or even…[Read more]

Hi Eve I wondered if you have tried Maxi-Joule to help get extra calories into Slim? It is a white powder , tasteless which you sprinkle onto or into foods and it bulks up the calorie count It can be put on anything from mashed potatoes , scrambled eggs , in fact just about anything ! I used to have to use it for my very fussy daughter who has…[Read more]

Hi Keith good news that you have a possible date for your sct. One good thing in using your frozen cells is you wont have to go through the harvest process again , it can be a real pain second time around ! It wont be long before you are feeling tip -top just make sure you dont overdo it in th early days You have such a strong positive attitude to…[Read more]

Hi Keith,
How are you feeling about the transplant? It's good to hear that the velcade has worked for you…it seems to be doing the same for me, so I may not be far behind you with a transplant date!

Bridget is a gem isn't she….most definitely one to count on and we shouldn't forget that! And I'm really sorry if you felt that none of the…[Read more]

Hi Jo
Had a lovely time. Lovely hot weather, nice food. Couple of days we could not go out as Franks pain was too much. But then it went away for 3 days and came back. Both of us are confined to Barracks today as we have "runny tummy". Hospital postponed appointment until next Thursday. Will have a list of questions as long as your arm. Hope…[Read more]

Hello Jean

Did you have a good holiday with no problems are you all nice and brown
Love Jo x

Hello David

I really enjoyed that you do find some good things

Love Jo:-D

HI everybody

Thank you for confirming all those side effects poor Slim going through the lot, hard to watch at times.The only thing he has not done is put on weight,in fact this worries me,tried every thing,he cannot stand any of the soups and drinks to build him up,and his food intake is very poor,says he feels full all the time,would be…[Read more]

David that was lovely. What a lovely start to the day. A real feel good
factor.

Love Jean x

Hi Jet

Yep I kept my Lashes 😀 mind you it was the only hair i had left, and when it was growing back I could have took a bit of old rough samnd paper to my body to stop the itching lol.

No you wont need fals lashes and as for the wig some ladies look sexy with no hair 😀

Tom "Onwards and Upwards" xx

Hey Girl's

Now lets put a mans perspective into this one ha ha

Firstly I have to say for those that are due to have a SCT :: Honest it will be worth it here I sit what ?? call it 16 Months Post Transplant and am doing great 😀 for me it was and still is the best thing I could have done to make me Better8-)

Now the Tash thing, now that…[Read more]