Hi Gill what a lovely , caring girl your grandaughter is , you must be so proud of her Thankyou for telling us about her sometimes we do need reminding that not all kids are like the ones featured in the daily mail!!love Bridget x

HI Gill
Your posting has just burst the dam that has been cracking for a long time.eve

Hi Ozzy welcome to the best support group there is .You have certainly had a very eventful year!Its hrad to say how long before you feel normal again as we are all different In my case it took almost 6 months but I think that was because I had major surgery a few months before my sct What I would advise is not to overdo it , your body will let you…[Read more]

Hi Shirley absoultely brilliant news!!!Long may it last Wont be long before you can put myeloma to the back of your mind and just enjoy life love Bridget x

Brilliant news Shirley (Cheshire cat). So happy for you and your sister.

Love Jean xx

Hi Shirley

I am so pleased for you. Long may the remission last and what great news for you and your sister. Both of you were brave to go down this line of treatment.

All blessings to you.

Mavis x

Hi Ian I was told that any remission after the first one is always shorter. I dont think it makes any difference if you have complete or partial remission. There was a trial going on last year,sorry cant remember what it was called, to look at using velcade before the sct in the hope of getting a longer second remission.I will try and remember to…[Read more]

Hi Eva thank you so much for sharing your wonderful photos, they are lovely Mind you I am also green with envy as China was one of my dreams , still theres time yet just got to win the lottery!! love Bridget x

Dear Dai

I also am sorry to hear your news. Although I followed your posts, I id not know anything about your treatment. What I do know is that you are inspiration to me and am sure a lot of people on the forum.

i hope the new treatment goes well for you andd as GAye says your fighting spirit comes back.

My very best wishes

Jean xx

Hi Pamela

So glad to hear from you and am glad that you are feeling more like your old self. You have had a rough time. No Frank is not off his food – he has never been a big eater. No sign of sickness, but I will look out for it. He is all go – although he doesn't sleep much. We are ging to Spain on Friday, hew wants to to go Grand…[Read more]

Eve

I am so sorry to hear that Slim is having such bad time. Frank was diagnosed by accident (??) Went for something minor and dr did tests and and consulant after bone marrow sid Multiple Myleoma. I never heard of it. Our Dr did reseearch on MM but then retired last year and new dr hasn't got a clue!! A Good thing the other doctor took…[Read more]

Hi Jean

Yes Slim had been ill for more than 6 months,In a lot of pain,wanting to be sick,not eating,doctor put it down to tablets.Slims problem is he has a high pain threshold and an attitude a little bit of pain never hurt anybody.
I came across as a screaming banshie with attitude,not good when you know something is seriously wrong and…[Read more]

H Eve

Thanks for the info, I will look out for that. Dear help him I watch him like a hawk. I have been trying for years to do it his way but I will have to try harder. He is not going to like it, but I have a list of questions to ask consultant and I will tell her about the pain. We are going to Spain but I would much rather be at home but…[Read more]

Hi Jean

I know its hard,but if Frank will not make his feelings known to doctor,you have to accept it is his life his choice.He wants to go on holiday!!If bone damage is there 14 days will not make any difference,If he starts wanting to be sick,then calcium is getting into blood stream its called hypercalciumer ,spelling might not be right but…[Read more]

Nigel I know you are right but this is causing so much friction. I know if I keep going on at him he will not tell me anything about how he is feeling. He is so adamant that he knows his own body so I am having to put things on hold for 2 weeks and then have a long talk with consultant. He will hate that.

Min you are right about putting…[Read more]

Hi Min

Frank went to doctor and guess what – muscular. I asked him to ask dr for an xray but was told again (by Fran) that they only xray bones and not muscles. He is so looking forward to Spain. His appointment with consultant is 14 April so I will phone and ask for him to see consultant rather than registrar.

Min I bought that pack…[Read more]

Hello Jean

hope the G&T helped we got stuck on the sand dunes at maspolomas in a shower of rain while we were there got soaked. I think its good to make plans otherwise life is always on hold
Love Jo x

Chin up Dia

You have been so positive upto now I am so sorry the beast is back so soon
but you are a strong character so i am sure you will cope with whatever this thing throws at you next, look at all the new drugs that are in the pipe line that must give us all hope for the future. I could not have a SCT as my kidneys are to badly damaged…[Read more]

Dear Dai I know how devastating it is to be told the beast is back and it seems very unfair to have had a relatively short remission. Once treatment starts it becomes easier to accept and just get on with it Go and do something nice this week and put mm to the back of your mind for a while Love to you and Janet Bridget x

Hi Jo

Thank you so much for your kind thoughts. He is going to see GP tomorrow but our GP knows nothing about Myeloma. I admit that I am so scared, I wish he would see consultant, or at least go for and xray, but it is in Gods hands now.

Glad you enjoyed Grand Canary. Frank was saying today that he would like to go to Maspolamas in…[Read more]