David

sorry you did not get remission from your SCT but my docs say plateau is pretty good and you could be in that stage for a long time fingers crossed
you are an inspiration to us also with your cheery comments and little jokes we are all with you SO CHIN UP 😛

Love JO 😎

Hi Clara I have those injections too and the best advice I was given is not to rub it and it definitely hurts much less love Bridget x

Dear Roz hang in there Today was a bad day but tomorrow will be better So many of your friends on here are wishing you well and sending good vibes One day at a time Roz love Bridget x

Hi Roz
And you are more than wlcome, and am pleased it/I make you smile 🙂
So sorry you are having a bad day but you know what they say so its no good me saying it again is there?.

Just give a few thoughts from the Good Times and try and push the times when Michael wasn't himself.

Hugs and Love sent your way keep strong Roz

Tom xxxx

Roz

How lovely you must be a great friend I agree with every word

Lots of love jO X

:-/ Glad I dont get squirrels like that in my garden

Love Jo 😎

Hey Bridget

There is one in london in october I hope to see you there I am sure you will make it

Lots of love Jo x 😎

WELL DONE MIN
I have been to a myeloma info day and It is brave people who stand up and give talks that make the day the carers are so important and myeloma uk do not forget that fact.

Love Jo xx8-)

Hurray Min 😎
II
great news your life will once more become yours (with in reason ) the days of getting up and having to go to work will soon fade i hope Peter is well enough soon to go for a short hloiday it will do you both good

Love Jo x

Hello Clara

When I was on CDT my ankles were swollen a lot of the time I could not take diuretics due to kidney damage I had to drink upto 3ltr a day which didnt help he should have a word with the doc or nurse I am sure they will give him somethin as for the rash I found that it was the antibiotic I was given (CIPROFLOXIN) that caused it is he…[Read more]

chin up Bridget
I am so sorry you are feeling so rotten you are such a fighter so I know you will not give up I know several people on Revlimid and once they have got used to it its ok one lady in my support group has been taking it for three years she was one of the original people that went to the press to be allowed to take it she now has a…[Read more]

Hi Min I am so glad to hear Peter is still feeling good , heres to a lovely week off!! I have just had the worst 2 days ever!!Still very painful and tender to touch , sewating eyc and all in all I just feel dreadful but as I havent got a high temp I am reluctant to see the docs before clinicThanks to you though I am looking forward to next month…[Read more]

hELLO kEITH

I have been reading a report from america where they have decided to give velcade once a week only they have found out that it has the same effect but almost non of the side effects I dont know why we dont get that here it would but a much better way of treating the disease

Love Jo x 😎

Hi Sandra hang in there I am sure you will get a lovely drug free summer . I do know what you mean though ,at times it just seems never-ending But the sun is trying to shine and it helps to make us all feel better love Bridget x

hi Nigel

I agree with you it should be easy to arrange medication between Europe,we know from friends in Holland If they need treatment and it is easier to go to Belgium its no problem.We tried it when Slim needed a hip replacement,2 years wait here,we offered to go to Abbyville in France would have cost NHS 5thousand was refused,they paid 11…[Read more]

Hi Nigel

And a warm welcome to our little band.

I was diagnosed Jan 2009, and since then I have had 5 courses of CTD,stem cell harvest and now am at the 15 month post stem cell transplant and am back at work (light duties)

All through my treatment it has been "Pain Free" :-)and am now still in remission 😎

As you know or will find…[Read more]

Hi Ron I do understand how your wife feels as I too have lost 3 inches in height and my appearance has changed completely in the last 4 yearsThe main thing though is that she does not have any bone pain. I am not sure whether they would do this procedure on the basis of appearance but its definitely worth asking Please let us know how you get on…[Read more]

Hi Keith sorry you are feeling lousy All you can do is listen to your body and give in and rest when you need to The taste thing is the worst symptom I think , drives me nuts Perhaps someone should open a restaurant for people who are taste compromised?? Could call it Th e Cardboard Cafe? Sorry I am in a silly mood today Hang in there Keith it…[Read more]

Hi I am sure the french health system is a good one and from what others have said they are well up on treatment of myeloma , but I do think consistency and an element of trust are crucial parts of our treatment It can be difficult if you have to go to another uk hospital during a course of treament , I can imagine the possible problems with an…[Read more]