Hi Nigel welcome to our merry little band !! It is the best place on the net for answers regarding myeloma as it is based on individual experiences, however if I have learnt one thing about mm its that it is a toatally individual illness where the variations in symptoms and response to treatments are unique! Being able to share experiences with…[Read more]

Hi Gill

When Frank was first dignosed we used MIA for travel insurance. He is not on any treatment and has only had Zometa. Last time we were going we contacted MIA again and tey refused to insure him. They said that they had changed their policy. They were not very forth coming. W were told about Columbus insurance and we got a gret deal…[Read more]

hi Gill

Thanks for information,will look it up.We travel in a motorhome to France,Spain Portugel,have done all of Europe plus Morocco.This mm has put a stop on are travels for now.We are hoping once Slim gets use to his chemo to travel to France although on treatment,will have to come back every month because of Myeloma Trials.

It is just as…[Read more]

Good Morning Roz

Am pleased you never left this site so no reason to say you have come back 😀

Am pleased you are getting through all this and it is a bloomin bugger all the stuff that needs to be done whilst trying to get to terms with losing your partner.

Am sure the Goverment could link it all together and all that needs to be done…[Read more]

Hi Mavis thankyou for your kind words. I am sure I will be back to normal soon , well as near as I ever am !! take care love Bridget x

Hi Roz thankyou it means a lot when all you lovely people on here cheer me up I dont feel sorry for myself very often ( not much point !) but its great to have friends when you do I am hoping to be able to bear my clothes touching me at least tomrrow , otherwise I will be sark naked not a pretty sight Hope you have a good weekend and you are…[Read more]

Dear Min bless you , it really helps to know Peter is feeling better . I have stopped feeling sorry for myself now , till the next time !! I dont have the runs but my tummy isnt right , I think I read before that Peter is on Lanzoperale so am I Interesting that Zometa has made a difference to the water retention , I realised mine has been…[Read more]

Hi Chris I am glad to hear you are doing well after your transplant A trip to Australia sounds wonderful at this time of year , I bet your daughters were happy you made it Do you have grandchildren as well? I am not sure my tale will be much use as everyone of us is different but here goes— I was diagnosed in 2006 after almost a year of…[Read more]

Hi Bridget

Sorry you are having such a hard time. do hope things start to get better soon. You are such a fighter and a real encourager to others.

God bless.

Mavis xx

Hi Min what a pain these neutrophils are I am having the same problem!! Is Peter on the GSF injections ? I have been told its likely I will need one or two a week to keep my neutrophils up. what joy !! I really hope you can get some sun soon love Bridget

Hi Thanks kwilson for the advice on insurance I will look for that.

Hope everybody is enjoying this lovely weather or is it just south of the thames that has it?

Brilliant Min. Enjoy every minute. After a while you will wonder how on earth you fitted work in!!!

Love Jean xx

Great news Min heres to many happy hours doing all the things you want to do !! love Bridget x

Dear Dai I am so sorry to hear you have lost your dog Its hard to say goodbye to them like that , our 16yr old mongrel put to sleep a few years ago , as you say it happens so quickly. People who dont have dogs in their lives often cant see what a big gap they leave , just the same as any family member . love to you both Bridget x

Hi Sarah its always scary to be told you need to start treatment and at first all the information on side-effects etc is just too much to handle .Please tell your mum to take it one step at a time , life will be different and sometimes its a struggle but it does get better as you get used to the treatments and find what works best for you Its…[Read more]

Hi Clara it sounds like fluid retention which is fairly common with a steroid mix.I have had it quite a lot , you need to get a prescription for diuretics tomorrow and get your dad to elevate his ankles and drink plenty .It does go down fairly quickly , not sure about the rash best check it out tomorrowIf the rash gets worse have you got the ward…[Read more]

Hi Min

I have been away a few days and just caching up. I laughed so much that Frank came running in to see if something was wrong with me!!! I was choking with laughter. Thank you so much. I needed it.

Love Jean

Haha Roz this one cracked me up very clever thankyou for the giggle .How are you getting on ? I hope you get to spend time with your daughter and granchild , children make the world a much better place dont they love Bridget x

Hi Andy I would definitely reccomend going for the sct ,it is worth the chance of at least a lengthy remission from heavy duty treatment and more people seem to getting complete remission lately too . As Gill suggested talk it over with your consultant as to whether you can delay , most treatment plans are worked with you so tell them of your…[Read more]