Hi Ruth so sorry to hear your husband is having a rough time . It takes a bit of time for everything to take effect and for the doctors to get test results to help them understand the best treatment .I agree with advice you have had dont delay in phoning the specialist nurse or even the consultants secretary if the pain is bad , its only by…[Read more]

Hi Ruth

My partner is on his 10 day of chemo,I can only tell you he should not be in any pain,if you do not ring the hospital to find out why,go to your own doctor,My partner is on very strong pain medication and is in pain when he does to much.

Normal exrays show up lesions on large bones mri scan for small bones eg spine;,no matter what…[Read more]

hi, he was given an x-ray as part of the initial investigation then he had a skeletal survey (?) last week when he was in the hospital but from what has been said this was done to provide some sort of benchmark (not sure if that is the right word) for future reference. Does this sound normal? They haven't indicated any bone damage from this as far…[Read more]

Hi Min thankyou these made me laugh out loud ,just what I needed . Hard to believe we put our trust in doctors though!! loive Bridget x

.

Hi Tanya its fairly common to have bone pain with myeloma , for this its log term pain relief The bone strengthening infusions such as Parmidronate or Zometa do help pain as well I take slow release morphine tablets twice a day which works well for me .There are also patches which release a controlled dose over 24 or 48 hours .If the pain killers…[Read more]

Hi Keith it does sound as if it could be neuropathy I am sure the hospital wil put your mind at rest though It must be very frustrating though and not pleasant I hope it goes soon love Bridget

Hi Sarah you will get loads of suggestions for this one .Heres a couple ofcan think of , a packet of moist toilet tissue wipes ( hospital loo paper is not nice when you have to keep going!),a pillow if the hospital allows it best to check,perhaps a digital photo frame with pictures to keep your mum cheerful, a radio If your mum enjoys reading an…[Read more]

Hi Roz lovely to hear from you love Bridget x

Hi Tanya glad to hear your dad isnt doing too bad Low platelets and blood counts are typical with these drugs and easily remedied so dont worry .I am so shocked they havent given him proper pain relief nobody should have to put up with painWhen I see my doctors pain relief is the first thing they ask about and others have the same treatment so…[Read more]

Morning Tanya

Well sounds like your dads doing well 😀 and its amazing where we find the strenth to cope with these things:-S but it always comes to the forefront.

Good Luck on Monday and I hope he gets the OK for the infusion's.

Tom "Onwards and Upwards" xx

Thank you guys for your good wishes!

We leave for Edinburgh airport at about 1am, I am used to going to bed about 10pm most nights (boy do I love my bed!) so feeling tired already!

Sam on the other hand is downstairs fit as a fiddle watching Match Of The Day!

Very excited for our little trip as it is the first one that sam has been…[Read more]

Hi David you have started something with this game!! My husband is now a total addict who is dtermined to get the maximum score !If only I had paid attention in geography lessons I might have a chance of beating him love Bridget x

Hi Clara I am so glad things have got off to a good start and I hope your dad continues to feel fighting fit for a long time . As long as he doesnt feel he has to keep going through the tired times and rests when he needs to he should do fine It must be a relief for you to see him doing so well love Bridget x

Hi Jet interesting topic I must admit its not something I am prepared to take a risk with Nothing I have read so far has convinced me that using herbal remedies alone could deal with cancer , if that were the case it would have been proved beyond doubt a long time ago . Vitamin supplements to deal with by-products of cancer have been useful for…[Read more]

Hi Min congratulations you must be walking on air!! I have had to give a few presentations in my work so I know how scary it is , you should be very proud of yourself . I hope to get to an info day soon I could use some inspiration at the moment !!My neutrophils are rock bottom too and I have a blood test Monday to determine whether I can take…[Read more]

Hello Jet
i have not tried any alternatives for the myeloma but i have had accupunture for pain relief which worked quite well

Regards jO :-/

hi everbody

I have decided to come out in the open;I have kept my partner low key because of family circumstances.

I am eve aged 62 originally from Liverpool ,have lived in Deal KENT FOR 40 Years.My partner who is 66 was diagnosed February the 11 this year.He is known as Slim only his mother called him by his birth name.

We have been so…[Read more]

Dear Gaye I am glad you have finished your rt now I hope you start to feel the benefit very soon . I have been feeling a bit blue myself lately and I am hoping the lighter days and spring weather will make us both feel happier . I hope you have a lovely pain free weekend love Bridget x