Hi Bridget

I don't know if anyone else is worried but I am about the GP 's holding the money will they be willing to fund second and third treatments or even first expensive ones will we all be fighting the system agsin

Love jO :-S

HAPPY BIRTHDAY BRIDGET 😀 You never moan not even when you are on DEX or as i say dexitude :-/ all you ever do is give kind words and encouragement hears to the next four years and many many more

Lots of love jo x

Hi Jen I recently asked my doctor about the rules for using velcade againThe reply was "Theirs always a way to get what you need dont worry" I believe this approach is fairly common , and our doctors are very well practised at using different approaches to get us drugs they prescribe At UCH London which is a teaching hospital velcade is readily…[Read more]

Hi David I cant give you an exact figure but I do remember being told they were too faint to quantify .Good luck with your research it will interesting to hear what the consensus is love Bridget x

Hi Sylvia I can understand how frustrated you must feel , as lovely as it is to be looked after , there is nothing like being able to do even mundane tasks yourself again Fingers crossed it wont be long . Mind you the bonus of going out more must be a nice break for you both and the cruises sound wonderful , I have a friend who is going on a…[Read more]

Hi Gill sorry Stephen is not feeling great but I hope that rotten dex does its magic very soon . I start back on it next week , 40mg lovely . I cant remember if Stephen has had radiotherapy for his back painbut I am already finding an improvement in mine It hasnt gone comltetely yet but it vanished over the weekend , mind you today is a…[Read more]

Hi Sarah I am sure it doesnt apply to you though!! I wish I had a fur coat this winter but doubt I would be brave enough to wear it !! love Bridget x

Hi Sylvia you sound like such a positive person that I am sure it wont be long before you turn the corner . I take mst morphine, which is slow release over 12 hours, twice a day and I have found it very good .I believe it is used for a ot of myeloma patients with bone damage Perhaps it might be worth discussing with your doctor ( apologies if you…[Read more]

Hi Sylvia reading your posts it seems like our cases may be very different . I wasnt bent over at all before my op , other than stooping because of the pain As for the pain it didnt seem many weeks , perhaps 4 to recover from the surgery , however I have had continuous pain my back since I am not sure how much of this is due to the metalwork and…[Read more]

Hi Sylvia

You are more than welcome 😀 and WOW 70 😎 am sure you and Gaye would have a great time at Barts, and run the Dr's wild ha ha.

Have a Good W/end 😀 and roll on summer 🙂

Tom "Onwards and Upwards" xxx

Hi Sylvia

Sorry to hear bout ur Relapse 🙁
I cant help re the op's as I haven't had any and hope to god I dont have to 😀 Just wanted to say Hi 😎

And Sarah, you are not [u][b]ONLY[/b][/u] a carer you are speical and needed 😀 as am sure Gordon could tell you.

As for My Young Bride (Elaine) she will tell you that she has been My…[Read more]

Its true we women do love our shoes .Sharon I am crosssing fingers and toes you will be in the sexiest pair of heels you can find for the wedding!! Jo up until 2 years ago when I had my hip replacement I would never wear flat shoes !!Alas now I have no choice , but I do still manage wedges occasionally and its worth the pain !! Sarah I was told…[Read more]

Hi Sandie how lovely to hear that your mums doctors really listened and responded so well to your request . I agree with you that being direct and telling them you expect no pain is a good approach Unfortunately some doctors are better than others in this procedure and if you get a duff one its awful Heres hoping its good news when your mum sees…[Read more]

Hi Sylvia sorry you have had a relapse after a short time , but lots of people have had great results with velcade ,hopefully it will be the same for you When I was diagnosed 4 years ago, after a year of agonising back pain, it was discovered 2 vertebrae had been destroyed and a third was also damaged .Before I could begin treatment for myeloma I…[Read more]

Hello Bridget

How are you is your treatment going well are you feeeling any relief.
I had to giggle about the shoes at new years we went out I had a smart blue velvet dress so bought a pair of really nice silk blue shoes with two inch heels felt the bee's knees then sciatica struck so I had to go to town and get a cheap pair of flattys £6.99…[Read more]

Hiya Keith,
Now it could be the zometa I suppose…I have that too! I'm with you about not liking it. The first month, it put me off my food….hated the fact that everything tasted the same…even the glass of champagne I tried!! But since then it's done the opposite….on my quest for normality I eat and eat and eat and now I'm becoming the…[Read more]

Hi Sharon you must be so frustrated I do hope your leg gets back to normal soon You have done well on oromorph I could only take it for a few days after my surgery as it made me fall asleep all the time , sometimes in mid-sentence! Just a thought have you applied for DLA? You would certainly be entitled with your mobility so compromised and if…[Read more]

Dear Gaye

I echoe what everyone else has said. Your posts have been very encouraging to me, anewcomer to all this. Bless you.

Like you say, it is so good that so many of you are beating your "sell by dates"!!! I will never forget how I felt, when diagnosed in hospital, by an almost casual remark, and then looked on the TV web site and it…[Read more]

Hi Kay

Hope things go well. Let us know we will be routing for you.

Love

Mavis