Hi Jenny

Just caught up with this thread. Sad to welcome you to this site on your Dad's behalf. Glad to hear he is making some progress.

Step parents are a problem. My Mother married again at 75 ys, to a relative of my sister-in-law. When she was in the last week of her life my step father siad she was too ill to speak to me on the…[Read more]

Hi Scott

Welcome to this site. I'm a relatively newcome too but have found it really helpful.

I'm aleays interested in anyone else, who like me, isn't keen to rush into chemo. I went to Consultant this week. PP level 7. She says I'm aneamic and might need a blood transfusion. Evidently, radiotherepy, which I've just finished, can…[Read more]

Hi Keith,

I'm not on velcade but I would describe the taste that I get on revlimid/dex/Cyclophos as being like sea water and quite salty. Even glasses of water taste of it??

Do you take the velcade with anything else? Someone else hadn't thought of it tasting salty when I mentioned it and then realised that was exactly what it was that they…[Read more]

Hello Min

Sorry Peter is not feeling so well I hope things get better soon, Benjamin looks lovely i Bet he is missing his walks if your leg is so bad I hope it clears up soon mine lasted for eight weeks I know what agony you are in have you thought of accupuncture it really helped me. I do hope you can get your party I am sure it will be ok…[Read more]

Hi Gill that was priceless !!As someone who cant queue without scowling when I am on the lovely dex it strikes a chord!! Perhaps Stephen should wear a hat and glasses for a while in case he is on a wanted list !! Thankyou for starting my day with a smile love to you both Bridget x

It took me a few goes to post my reply to Ron because of inappropriate content!! Eventually realised it was the very hot place some bad people go to when they die !!Haha how much more succinct a four letter word is !Bridget

Hi Ron sorry but Dexatude is a made up word to describe the awful creatures we become sometimes when we are on dex!! It can make you very short tempered at times and impatient ,not very nice for the people around us Hopefully your wife wont have these side -effects though In my case the higher the dose the more likely it is I will be not very…[Read more]

Hi Kay I am glad your doc didnt keep you waiting all day Hopefully you wont have any problems I start Revlimid in a couple of weeks so you wont be alone love Bridgetx

Hi Keith thats a strange one ! I didnt have anything like that on velcade , mind you I wasnt on it as long. I always find dex is the main culprit for taste changes but I would have expected that to be from the outset . Hope someone else can help love Bridget x

Hi Kay,

I remember really well what you are describing….both with the BMB and the anticipation. I think you'll be finding out today so good luck with it all and I hope that your consultant is wrong…they quite often are!!!

If you get on the trial and what to have a natter about it, drop me an email at gascoyne2@virginmedia.com. I'm happy…[Read more]

Dear Jenny what a terrible time for you all I am glad your dad is in the hospice where he and you will get the best possible care . I hope you do take up the counselling when you are ready to it will help you come to terms with your dads decision I am sure My thoughts are with you love Bridget x

Thank you everyone your support makes everything more bearable. The pain hasnt gone yet but I have had a few hours respite over the last 3 days. I wasnt expecting an instant cure so I am not disappointed Gaye your journey to Barts must be exhausting I could have Zometa at my local hospital bit to be honest its been a long while since I had any…[Read more]

Hi Min sorry to hear Peter hasnt had a good start to his treatment , fingers crossed tomorrow will be better. I hope your sciatica is gone for good , I had it many years ago and it is terrible love Bridget x

Hi Min

Sorry that Peter is feeling so poorly and hope he starts to feel better soon. Really glad to hear that the dreaded sciatica has gone. Well done your son!! I know what you mean about making plans – I really hope that all goes well and you will be able to celebrate. 60 and 40 years married. Congratulations.

Love Jean xx

Hi Jenny

It must be a great relief to have your Dad in the Hospice, and even more now you know how good it is and the Nurses are great as it will take a bit of pressure of you and your Family.

As for Counseling I would say go for it, I was one that said "Oh I can Cope" and yes I can but and its a big BUT, when I had a chat with one and I was…[Read more]

Oh Gaye

Am I pleased you have "Come out of the Closet" 😀

I must say am not like you he he, Me when I was told back in Jan 09 and asked "How Long" and was told 5 years I turned to my young bride Elaine and said well we can do that cant we 😀 , and was i pleased when she said YES 😎

I also like others will talk the hind legs (and any…[Read more]

Well Done that Bridget 😀

As the saying goes "Thats the way to do it"
Now I hear you say "Time to sleep" well do it when you want and for as long as you want8-)

Sounds like you do have a good team, good luck with the Rev and Dex :-S
I know you will cope with that also, need to cuss and shout well feel free Bridget.

Love and…[Read more]

Dear Sarah

I am so sorry to hear the way Gordon's family is treating him and you. It must be so hard for you to watch and listen and to hold your tongue. You must be a strong person as I don't know what I would do if I did not have the family's support.

I hope Gordon starts to feel better soon and that at some stage soon his family "wakes"…[Read more]

Hello Gaye

foot massage sounds great glad it relaxed you had one once by a chinese accupuncturist it started of ok then he sharted on the pressure points and soon had me writhing in agony no relaxation there then, felt ok after.
I know what you mean about taking DEX i found it went down better with a small glass of milk if anything can make…[Read more]

Gaye
this was so well put when I was first diagnosed I did not want to speak or see anyone I was afraid of the shutters coming down in peoples eyes when the word cancer is spoken I joined this site and it was my saviour it made me realise i was not alone I then found out my true friends and they let me know in no uncertain terms it made no…[Read more]