I love this poem, I found it online shortly after Sam was diagnosed xx

Thats so lovely Roz, I too had a little cry when I read it.

Thinking of you xx

Happy new year David and to all the friends in this group may it be a happy and healthy one for you and all your loved ones
Jo:-)

Hi Gill as you know I am also anti-Dex it is a horrible drug ,by far the worst !!So I am glad you have your Stephen back and long may it last!! I am enjoying not being on dex too ,now I just want my body to return to its normal shape Hope you had a good xmas and heres to a very happy and healthy new year love Bridget x

Hi David I know exactly what you mean My tractor moment was doing the washing believe it or not !!It gave me so much pleasure to do an ordinary task myself and the I knew I was home love Bridget x

Dear Roz the poem is so beautiful and moved me to tears too You will do Michael proud My thoughts are with you and Rachel and Lauren love Bridget x

Hi Jonny

So sorry you have come across one Consultant that has no Bedside charsma (so to speak)
But like all us mere Mortals you either have it or you aint and your man bless him aint got it.

Mine is great I even chat to him in the middle of the shpping centre when he is out shopping 😀

As for me if mine was abrupt or rude he would…[Read more]

Hi John

A warm welcome to this warmhearted group,sorry you had to join, but you will get some great support on here when you need it, and at strange times in the night (Dex)

Lets hope the two monthly watch lasts for years 🙂

Tom "Onwards and Upwards"

Hi John

I am sorry that you have joined the site but You are in the right place. Welcome. As David says the people on this site are excellent. My husband was dignosed 4 years ago – (attended doctor for one thing and they found this bl**dy disease.) He was lucky it was found so early – he visits consultant every 2 months and they keep an eye…[Read more]

Hi Gavin,

Things have gone pretty well with the trial so far, and I have to say, in comparison to what I had expected (The devil dex days you hear about, and the sickness etc) it has been much better. It sounds like CRD is slightly easier to tolerate than CTD although I don't know if that has been proven. I haven't had the response to dex that…[Read more]

Hi Ron,
Sorry to hear that your wife has been diagnosed with MM….it is a hard diagnosis for everyone who goes through it. Breathlessness can be a sign of low hb levels….which in turn can be a sign of the myeloma progressing. BUT, don't panic because quite often, the two aren't linked. I got breathless just after I'd had a dip in hb…[Read more]

Happy New Year David, and all my On line Friends 😀

Hope this year is better than last year, and any treatment you/I might need cause little distress nor side effects 🙂

Tom

Hi Roz

It sounds like you are doing Ok so far with the difficult situation.

Did I get an Email from you? (i think i did)

Good Luck for the cremation.

Love and Hugs to you

Tom xxxx

Well I also completed the online form, as i was am one of those that would need it.

Hi Gavin,

Sorry you're going to have to start treatment, but hopefully now it will help keep the myeloma at bay. Where are you being treated by the way? I started on the Myeloma XI trial 7 weeks ago and have been lucky enough to get revlimid…will hopefully find out next week how it is affecting my paraprotein.

Let me know if you have any…[Read more]

Hi Jonny,

I had something similar. My consultant in Bucks just made me feel like I was asking silly questions (and believe me, no question is silly with this), like I was being overly paranoid and like I should just go home and accept it all quietly. At the same time, he hadn't even heard about things like curcumin.

We got a second opinion…[Read more]

Happy new year to you David and all my friends on the forum, We went out with two of our sons and wifes to clebrate 2011 coming in and had a really good time although Frank fund it a bit of a strain. I hope the new year brings us lots of hope and my thoughts are with all my forum friends who are going through treatment. Happy healthy new year…[Read more]

Happry New Year David and all of you great people whom I count as friends May 2011 be a good one for us all love Bridget x

Hi Gavin I missed your post originally but I see you have made your decision now Good luck with the chemo and trial In my experience the care you recieve when taking part in trials is excellentAs for your age being a factor David( Perkymite) has just had his sct at 68 and is doing very well so theres no reason to think age alone would mean…[Read more]

Hi Georgina I met Prof Tobias last year and was due to have radiotherapy then , but as I was taking part in the Myeloma X Trial and radiotherapy would have inhibited sem cell collection, it was postponed. Jane the specialist nurse is brilliant and I could have seen the Prof the day before xmas eve, I chose to wait as I had just come out of…[Read more]