Hi Kevin
I like the others are sorry it never worked:-(
But I know you will give it H E L L all the way, we do things with our MM to hopefully help us get remission and some like yours doesn't work, the joy is that new things keep comming through all the time 😀

I know you will keep Strong

Best Wishes

Tom "onwards and Upwards"

Oh…[Read more]

Hi David

sorry its first time i have seen this post:-S
cant remember if av bin on here since you went in??

Any way hope your doing good 😀
and to let you know my SCT was a year ago today:-D and everything is running great.

Take Care and you will soon be up and at em 🙂

Tom

Hi Kathleen

I also lost a lot of weight before I found out I had MM:-(

But "One Year" to the day post SCT my weight has gone back up now to a iccle bit more than before lol (waist bigger and i have more chins now lol)

Good Luck finding something you can eat 😀

Tom

Hi Michelle

Not being on Revlimid I cant add just wanted to wish your Mum well 😀

Tom xx

Hi Roz

Just thought i would pop in and see how you are both doing?

and gonna send you one of "Tom's Cyber Hugs" for you Both "WWwwwwooooooSSSsssHhh" now thats a good one sent xx

Love to you Both and keep strong xxx

Hi Nettie

Recuring smells erm well my young bride says she gets them when am at home lol

But as for post stem smell i have nothing no throw backs some times i cant remember he he

One smell free tom (or is he??)

Hi Norman

I like a lot of others her am on "Zometa" Infusions (every four weeks) and as for side effects?? well to start with I got Flu like symptoms and was feeling a wee bit weary after a few days, but all that has worn off and now dont have a problem??or might just have got used to it:-S

Good Luck with yours

Tom

Hi Jean

two and a half years treatment free:-D

I had no pain when I was diagnosed with MM (jan 2009) but told my Consultant that I want to hit it with everything that is available to get rid of the Cancer before it grows and spreads (my thoughts not his bless him ) so he set the ball rolling for me to have CTD then a Stem Cell Transplant,…[Read more]

To one Tom from Another 😎

Well its gonna be a cold day inthe warm place (cant say that word) before any one will admite it might have given us some of the MM!!

Me I am with Keith on this one:-) it will be hard and costly to try and pin it on anyone and I would want to spend my energy and funds finding a cure for this darned illness:-S…[Read more]

Good Morning David just wanted to send you some love .Hope today isnt too bad lots of love Bridgetx

Hi Sandie

Sorry to read about your Mum:-(

Best wishes to you all

Tom xxx

Hi Susan

And a warm welcome to this site(I moved in a few weeks ago and just put new curtains up ha ha)

Sorry to hear about your Dad, and reading your post it sounds as if he has guts and determantion:-D

I cant offer any help in this matter as i am doing great since stem cell transplant, and never been wobbly!

Good Luck to your dad…[Read more]

Dear Gaye this made me laugh so much I dropped my dinner !!!Seriously I do hope this wretched weather improves soon its beginning to get me down now Bah humbug!!!love Bridget x

Dear Kevin I can only imagine how disappointed you must feel after going through so much .I do hope your bowel problem can be sorted soon.As Gaye says in her post your positivity shines through so it wont be long before you are top again lots of love Bridget x

Hi Jean

I just picked up this post while getting used to the new site. It was very helpful to me because, unlike you, on behalf of your husband, I want to put off treatment for as long as possible. After an op for a plasmacytoma in Sept, 10 I feel better than I have done in the past 18 months even with my arthritis. I don't want to make…[Read more]

Hi Mari
I was interested to read in yuour post that Steve had a similar experience to me last January ?2010. I was diagnosed and had my op in Septembet this year. I am awaiting radiotherepy, but the story about further treatment changes all the time as to yes or no to immediate chemo. I am currently awaiting a recent blood test result.

What…[Read more]

Hi Susan
I had a similar experieince to your Dad and had to have surgery.
I am now getting mobile again with superb help from the mobile physio, however, I am still wobbly and it is taking time for the strength to come back to my legs. I am only just beginning to use crutches rather than a zimmer, for some of the time. This is ten weeks post…[Read more]

Dear Nettie congratulations!!You must be on cloud nine Becoming a grannie is the best thing ever I remember when my eldest George was born so clearly , the love and pride just bursts out of you Well theres the best reason for this wretched snow to go Perhaps I will go out in the garden and do an old indian sun dance!!Haha the neighbours would know…[Read more]

Evening David glad to hear today hasnt been too awful You are certainly in the right place though its sooooo cold out here !!And blooming icy too Found mydelf walking on the pavement like a ballerina with a bowel problem !!Not very graceful but I really dont fancy breaking any bones Save the ward party for later love Bridget x

Hi Georgina I said hello to your mum today , although we have chatted before Today I was billy no mates in the room next door as the velcade room was full That will teach me to be late!! love Bridget x