Hi Sandie hope things go well for your mum she sounds as if she is coping with it ok As for the biopsy it can be painful so your mum should ask to be sedated, I always do , then its just a bit sore for a couple of days. What a lovely time for a wedding hope the weather behaves Best wishes to your mum and I hope you get your results soon Bridget

Hi Fran

Hope your doing OK now you must be getting closer to your counts being spot on,take it easy for the time being and you will soon be on top form again 😀

Tom "Onwards and Upwards" xx

Hello Kathleen

We can never win can we at the moment I am at least two stone over weight because of the steroids what ever I eat seems to put weight on me the season now is comfort food steamed puddings you can get induvidual ones dumplings stews with lots of beans and potatoes hot c:-) rumpets and butter all really fattening but I suppose…[Read more]

Hello Norman

I have had a monthly infusion of Parmidronate for the past 18 months the first few times caused a bit of bone ache in my legs but since then I have been fine only problem is I have deep veins so it takes two or three digs to find one
Keep well Jo

Dear Gaye you have done it again !!This made me laugh out loud too Hope you are enjoying a not too snowy sunday love Bridget x

Hi Roz and Michael

Am pleased Michael is talking to some one now 😀
I also did have a good chat to a lady at Castle hill, it wasn't easy as bless her she made me cry :-S and i dont/didnt normaly do that:-/ but hey Roz do you know it worked for me? yes Elaine (my young bride) and i talk about our problem when the need pops its ugly head:'-(…[Read more]

Gaye that gave me such a laugh. I just wasn't expecting the last 2 lines. Nice way to start the morning.

Love Jean

Haha Tanjooberrymutts from me too x

Hi Kathleen you have given me a good laugh this morning I can just imagine the look on your daughters face !! Talk about putting his foot in it !! love Bridget x

Hi Gill hope you and Stephen are well Are you in snowy France or snowy England ? Do the french cope with winrty weather better than we do ? Like Stephen I rely on mst but the pain is increasing despite upping my dose and being on dex and velcade. My doctor didnt say what type of surgery they were thinking of and until the surgeon has seen the scan…[Read more]

Good morning David I hope you had a good nights sleep You are in the best place at the moment its blooming freezing out here!!I hope today is a good one for you and your happy-o-meter stays at 10 As Jean says you are an inspiration to us , if only we were all as cheery as you love Bridget x

Hi Roz as others have said I have had a visit from clergy too , nothing heavy just offering a chance to chat Please dont be upset by Michael talking to the vicar its often easier to talk to a stranger, usually because we dont want to upset those closest to us It doesnt really matter that this lady is a vicar either , it must be better for Michael…[Read more]

Hi Georgina hope you are well . I had been on parmidronate for almost 4 yearsand my doctor felt a change would be useful Also there have been some studies which have shown that zometa when used with dex and velcade has had an effect on myeloma cells . love Bridget x

Hi David

Just want to say that I am thinking of you and wish you well. I think you are an inspiration to us all. I have followed your posts and I cannot remember reading a post that made me think that your were feeling down.

My very best wishes to you and look forward to reading more!

Love Jean xx

Yes understood. Very good. I have a cold and when I got to the end started to laugh, cough and choke!!! Thanks very much.

Love Jean

Hi Scott and welcome
My husband was diagnosed with Smouldering Myeloma on September 2006. His blood tests have been stable (or within range!!) Thank God he has not started treatment yet. This site has been a God send to me. If you have problems or any queries, someone on the site will be able to help you.

All the best
Jean

Hi Kathleen I know I am the polar opposite to you at the moment but I do know how you feel Our weight loss or gain can make a huge difference to how you feel My daughter used to have the supplement you sprinkle into food but for the life of me I cant remember the name of it !!It worked though, I used to put it in soup, mashed potatoes ,scrambled…[Read more]

Hi Gill thakyou for this its just what I have been worrying about for my mumShe isnt up to cooking these days and as you said would rely on a sandwich if left to herself I was getting a bit anxious about who would take her meals when I have my surgery and sct as the kids avent really cottoned onto it I shall get her a taster and see if she likes…[Read more]

Hi Min poor Peter must be painful I had to laugh at you grassing him up though just what I would have done !!Very impressed with your hospital thats what I call service !! How about writing " I knew I was right" .Hope you dont get too snowed in we havent had any yet and I dont mind being missed out despite my grandson doing a snow dance Have a…[Read more]

Hi Scott,

Welcome to the UK website….and yes I was down as hopefulmum…..don't like the title now (though of course I am hopeful!!) but I signed on as that when I was pretty depressed about my diagnosis and when all I'd read was the american titles!

A bit more upbeat now, despite having just started on CRD (via the Myeloma XI trial).…[Read more]