A day at a time is the best way during recovery from the transplant but then one day you will suddenly realise how much better everything is 🙂

Megan

Hello Les,

I am glad to hear your partner is recovering well from his SCT and blood and platelet transfusions are completely normal, my husband Phil had quite a few transfusions while he was in hospital for his SCT and a couple after he was sent home.

You don’t say what kind of pain your partner is experiencing? Everyone has a different journey…[Read more]

Hi Harmony,

I am also, like Jean, a supporter, it is my husband Phil who has Myeloma. I also found counselling very useful, I initially went when Phil finished his first line of treatment and just before his stem cell transplant. I had another five sessions this year as I was finding it hard to deal with everything even though Phil was off…[Read more]

I’m a carer and I know how you are feeling. Frank smouldered for 7 years. I always had this scared feeling in my stomach. I went to a counsellor and it really helped me. I don’t know why it’s taking so long to see one. I went to the Macmillan centre attached to our hospital and talked to someone there and told them exactly how I was feeling. I got…[Read more]

Hi Maureen

I echo your sentiment. Hope all have a great Christmas and healthy new year and pray that some major break through happens in 2014

,au teen hope you are good and that Ian is improving

Love Jean x

HI Jean and Frank

Sorry for delay but am now back on line 🙂
Also sorry to hear Frank is not well, I hopw he is soon sorted out and back to “Fine Fettle”
Love Tom onwards and upwards xx

Hi everyone
Sorry I have not been on for some time but I have been busy packing and moving home, nw settled in a nice two bed bungalow, renting it and have shoved the money from the sale of our old house in the bank, now no money worries ha ha.

Yes am sad I only got four years but happy that I have another treatment to move onto, Elaine (the…[Read more]

Morning Carol

Well as I recall it the more pain the better mine lasted three days, as for childbirth lol I know nothing he he.

I got enough stems out in one day took three or four hours

Good luck with yours.

Love Tom onwards and upwards xx

Hi Tom

Just caught up wit this. So sorry you got this news, and just before Christmas. Still like everyone else, I know you’ll kick it into touch again. And what advances those four years have bought. Think of the Velcade Three bravely battling to get it available for all, then the injection rather than infusion, and the other drugs. It…[Read more]

Hi Nick

Sorry, I haven’t been on for a few days.

I decided not to press for SCT partly because of other health issues, but mainly because as there is no guarentee as to how long a remission it would buy, I didn’t want to spend precious months feeling so rotten for an unspecified gain. Also there are a new arsenal of drugs coming on stream so I…[Read more]

Thanks Peter, Phil was very interested to read this as was I, we will look into it further.

Megan

Thanks Stuart, it is good to know the new spam filter is working! If it happens should we let you know or do you check the spam filter to find anything that isn’t spam and then post it for us?

Megan

Hi Stuart,

I posted a reply to PeteSilver on my blackberry this morning and although it was very, very slow it worked fine but I have just tried to post a response to Greg on the Info Please! thread using my iPad in the Treatment forum and it does not appear but when I try and post it again I am told there is a duplication error and my post will…[Read more]

Hello Greg,

Richard is right, the timescale is different for everyone depending on where they are being treated, when beds are available, what the protocol is at each hospital, etc, etc. The consultant will be able to tell you more when you see them. My husband Phil finished his first line treatment towards the end of October 2012, he had his…[Read more]

Hi Pete,

Is the Hyperbaric Oxygen something you do on the NHS or is it available privately in your area? Phil and I saw a show about an athlete who used the chamber to help recover from injury and the athlete said something about it helps to produce stem cells, is that the idea behind it for you? I know Phil would be very interested in any…[Read more]

Hi Stuart,

Thank you for trying to fix it for us, it seems better on my iPad now – quicker, the scrolling is not as jerky and no Internal Server errors.

Megan

Hi Frances

My husband had STC IN March this year and turnd 70 in April. Consultant told us that they don’t usually do SCT at 70 but she said that Frank was fit and healthy (!!!!!). He had heart and lung tests and all was ok. I think it depends on your fitness. There are quiet a few people on the forum who decided against SCT and are doing ok. I…[Read more]

Hi Vicki

Frank is a bit like Colin. Last week he was up and down. Every day was different. One day he cleaned all the windows inside with no problem. Next day he was knackered. This week he’s been great. Two nights in a row we have been out for dinner with friends and tonight with family and on both nights we went to the theatre !!!! He’s…[Read more]

My husband is 70 and had SCT March and is coming along. His consultant made his day when she toOld him he looked like he was mid 50’s lol

Hope things improve
Jean x