Hi Geoff

Have just read your post. Like you I haven’t been on so often lately. So sorry to hear about your daughter. Even though not totally unexpected, never the less it must have been a real body blow.

Time will no doubt help, but will never take away the fact that she is no longer here to be loved and to show love. Do you have any faith…[Read more]

Hi Sandie

Time to grieve is not something that we decide,it’s not something that you can just decide to do,it comes in so many different forms,to me it’s a bit of an ambush,one minute ok next the tears slip down my cheeks.

The house to you has been important ,but it’s not your love or your memories,just 4 walls and a roof,your love of your mum…[Read more]

Hi Bob

I was interested in your post. Welcome to the Forum.

Sorry, I have nothing to offer on the question you ask, but wonder if you think coin God zometa and relapsing are linked?

I had my final zometa in May after well over three years of four weekly infusions. This was because my kidney function was deteriorating. Glad to say, in…[Read more]

Hi Helen
No sorry I don,t have patten,but you could treat the bulge as a finger,get the patten off a glove pattern .

I am out on my lonesome for Christmas,I don,t want my girls to start thinking who,s going to have mum,they have threatened me with forcing me to have a micro chip,so they can keep track of me..
Laying ghost to rest!!! Cannot go to…[Read more]

Hi everyone not been on hear for a while and just looking through your very interesting posts on what we all take to try to prolong our remission I personally take Pomi-t each day which contains four super foods squeezed into a capsule to boost my daily polyphenols which has been a government backed and scientifically tested in a national UK…[Read more]

Hi Laura

I am so sorry for your loss,before a consent form is signed the doctor has to explain all the risk involved,you tend to be bombarded with information ,so in the light of this I would say it was explained and because of the amount of info you have to listen too,it’s been said but not regested. I do think information like this should be…[Read more]

Hi Andy and Helen

Andy good to know you are much much better,when that drinking arm starts working,then I know you are fine, I hope you are helping Tom,by drinking his measure,he looks good,even though he is in a hospital bed,bet he has the nurses in stitches.

Helen no one ever gives up hope!! I look on it as an acceptance,that the miracle cure…[Read more]

Hi Pav

Don’t know if I will be of any help. Myeloma is a very I dividuL disease. My husband, like yourself, a routine blood blood test and something showed up and doctor sent him to haematologist. They did a bone marrow test and told him that it showed myeloma but he was smouldering. That was in 2006 and up until 2013 he was still not showing…[Read more]

Laura I’m truly devastated to read your post. The risks were explained to us before my husband had SCT but to be honest I don’t think they registered with me. Although my husband has been in remission for over two years, he said he would never do it again. I’m truly sorry for your loss

Jean xx

Hi Andy

Glad to hear you are getting stronger everyday, as with everyone on this forum
I would look in as much as I could for a snippet of news on you’re hospital stay,
And am glad to see you back writing on the forum. I was keeping kev upto date during his five week stay as he would ask if I’d heard how you were doing? And am pleased to say…[Read more]

Thanks Karen and Dawn and I hope all is going well with you both .I go in for my ASCT next Monday 2/11
Mike

Hi Dawn, so pleased to hear that you are doing so well, I was very sick too but did have nasogastric feeding which made me put on weight! The most scary think was trying not to be sick with it in! It took a long time before I could eat ice cream again. I found Diflan was the best mouth rinse and still use it occasionally. It took me a long time…[Read more]

Hi Gill

Well except for Jean and Fiona we are widows,!!
And we all know it catches up with us at sometime,we are watching Tom going through his second SCT,and Wendy a SCT from a babies cord,so it must give a lot of hope for people treading in our footsteps.

Gill may I recommend Way Up to you,it’s not for everyone,and it does have a Facebook way…[Read more]

Food for thought

Hello Fiona and Helen

Fiona I find it easier just to let my mind flow,never rewrite anything again,so you get me as I think,plus my terrible grammar and spelling,but it’s the true version, warts and all as they say.
I do look in to UK Myeloma more mainly because it’s easier to follow,also having faces on there helps,you have beautiful…[Read more]

Please except my sincere condolences cupcake after reading you’re husband passed away,
Thinking of you.

Love Liz & kev xx

Hi all, a quick update on kev, he finally got out of hospital last week 2days shy of 5 weeks!
SCT all done and coped reasonably well😏 Got infection that wouldn’t budge until they changed antibiotics which did the trick! When they told kev he could go home you couldn’t see him for dust! And he’s getting stronger by the day, lost a lot of weight but…[Read more]

Hi Maureen,

Great to hear you had a lovely holiday and here’s to many more!

Keep well love Liz & kev xx