Hello Andy, it’s good to know that you’re over the worse, what a time you’ve had, I know it’ll take time to get back to pre pneumonia so take easy, im just nursing kev after 5 weeks in hospital SCT and numerous infections! But been home a week now and taking it easy. I will certainly give kev the good news that you’re doing ok take care Andy keep…[Read more]

Hi Andy

so pleased you’re OK and on the mend been quiet concerned about you, take care and listen to your body.

Onwards and upwards as Tom would say xxx

Polly

After five cycles of vcd my M protein having dropped to lowest ever of 14 rose again to 16 .So I have to accept that I have partial response only after both thalidomide and bortezomib and am now proceeding to ASCT asap.
Mike

Hi Gill

So lovely to hear from you. It is hard to believe it’s been 3 years since Stephen died. I always read your posts and especially about France. One thing has stayed in my memory – the thread was travel insurance – and part of your post was ……. And Stephen said “I’m not going to wake up in the morning with a severe case of Myeloma ”

I…[Read more]

Hi Roseanna

I think it depends on the hospital. When my hubby was in for SCt, for about 1 week I was the only one allowed to visit him. Before I went into his room I had to go into an anti room and put on a gown and gloves. Every time I left his room I had to go through the same thing. He didn’t and at times couldn’t eat, so,I brought in his…[Read more]

Update on kevs SCT,

It’s day 12 and kevs been poorly this week, his mouth right down to his stomach have took a battering which has caused him to have infections and high temps: not eating or drinking, he’s been on morphine pump for two days and the usual transfusions, of blood, platelets and antibiotics! Thought he was turning the corner…[Read more]

Wonder how many of us are doing the exact same thing? Made me chuckle! I’m on Twitter don’t do FB and found Andy on there! Tom too! The news is the same so fingers crossed Andy you’re feeling better real soon!

Love Liz & kev xxxx☺️

Dear Vicky

I have only just read the sad news of Colin’s death. I don’t tend to be on as often now.

Colin certainly faught a good fight against this dreadful disease. I am glad he is at last at peace.

Do hope good memories are helping as the numbness of the early days wears off.

All love.

Mavis x

Hi Maureen

So glad that things have turned the corner for you and Ian. Who would have thought it when Ian was so poorly and distressed in the early day after diagnosis.

Here’s to the future.

Best wishes.

Mavis

Hi C

Thank you! If my previous post help you in any way,I am glad,it’s an awful situation,medically and with the present politics concerning Cancer drugs,they have no understanding of the mental anxiety that patients and family suffer.

We always tried to lock the myeloma away,in every sense of the word,Slims attitude was why worry about tomorrow…[Read more]

Thank you Helen
I have just been reading your thread about Andy,well who,s a naughty girl,!!!we all know paracetamol mask infections!!,never never take them until diagnosed,I cannot tell you how many times ambulance drivers wanted to give Slim them!!!!
I am sorry you have had to start treatment again,but so glad you are not pushing up the daisies…[Read more]

It’s good to read your lovely post, long may you continue with normal para’s and no detectable FLC’s, those long walks and golfing too! Brilliant
Keep well Stanley.

Liz & kev xx

Hello Maureen,

Wow! What fab news for you both, I hope I’ll be posting the same news about kev in 3 months time? Have a fantastic holiday and Ian continues to get stronger! Kevs on day 3 from SCT showing signs of all the niggles creeping in but he’s coping well!

Keep well both of you and go enjoy your hols!! Love Liz & kev xx

Hi Jean,

Strange ,although we are Facebook friends,we keep Myeloma locked away ,its the way it should be!!!, I really enjoy the scrabble as well,I would take more games on with you,but will be heading for France soon!! But I do envy your cruises,it’s so nice to see you are making the most of your time,long may it last.

Thanks for the news on…[Read more]

Hi Eve

I also am on site very rarely but Was great to read your post. Enjoy our scrabble. Eve I’m sorry to have to tell you but JoJo passed away on 15 February. We kept in touch and her daughter Paula emailed Tom and myself to say she died of heart failure. She was such a lovely woman and I do miss our “chats”. This damn disease – and now the…[Read more]

Hi Richard
Nice to know you are still here!!,any one know how David is?????? Or Jo!!!!.

Just for the record Tom is just starting his second SCT, .
He has grabbed life by the throat,and making the most of it,holidays family and his lovely wife living life to the full. Tom has one thing on his mind on ward and upward!!!!!!

It’s a pity Jet and…[Read more]

Thank you

I do hope your journey,s are long and the best you can make of them,Liz it’s best to escape the roller coaster as we all know it’s going to pass your way again,and Myeloma should not become normality,but in the end it’s the only thing you know.

Thank you both again,Stanley,Slim was always proud of me, but he is more likely to come back…[Read more]

Haha! Kev never understood the chocolate & wine thingy,
But just raiding the kitchen draw now.
Thanks for reminding me jes1965🍷cheers

Keep well liz xx

Hello eve, lovely to hear from you and that you
Are living your life as slim would want you to,
I too have not been on for a while and felt the
Need to return after kev relapsed! He has today
Had his stem cell transplant no.2 this very day!
It’s been a bit daunting coming back on and not
Seeing the familier names on the forum but the
All the…[Read more]

Thank you, annlynn, jes1965, & Maureen,

Been at kevs bedside all day he’s had his Stemcells today, melphalin has upset his stomach and he’s not eaten since yesterday morning but other than that he’s coping well.
I’m now home knackered on the settee chilling! Might even have a glass of wine?

Early night I think and try to sleep?

Thank you all Liz xx