tom replied to the topic Post – PAD did your bone pain return? in the forum Treatment 11 years, 6 months ago
Hi Tom
Well you know am on nothing so I can't help, just wanted to say hope your SCT is not delayed
From one Tom to Another Onwards and Upwards
meganjane replied to the topic Post – PAD did your bone pain return? in the forum Treatment 11 years, 6 months ago
Hi Tom,
Sorry to hear that your bone pain is back. Phil had bone pain all through his PAD treatment and SCT and he still has it now although some days it seems better than others. His main problem is his back and ribs. Phil has had a consult to see if kypholplasty would help but at the moment he has decided against it, he will see the…[Read more]
Dizzyliz replied to the topic Keith Hindmarch in the forum End of Life and Grief 11 years, 6 months ago
Thankyou Andy,
Your written words were just what I couldn't quite convey at this very sad time, as kevs carer I get very emotional when one of the mm,ers passes away, Keith was always there with words of advice and comfort! Andy it would be lovely to think you'll be representing everyone on the forum Thankyou for that. R.I.P.…[Read more]
eve replied to the topic Is it back? in the forum Carers 11 years, 6 months ago
Hello The Wife
Welcome,sorry there is no name,my names Eve,and in a very similar position,except we know its back,how quickly it is going we do not know,Slim has another BMB today!!!.three months from his last one.
Please have no secrets between you,if he is in pain he is thinking the same!!!! Be open talk it is the only way to get the…[Read more]
tom replied to the topic Radiotherapy Burns in the forum Side-effects 11 years, 6 months ago
Hi Jane
I haven't had RT but my young bride (Elaine) had it after her op for breast cancer, Elaine burnt but the Nurse gave her two lots of cream to put it on it, but for the life of us we cant remember what it was called.
It might be worth a call to the place where you had your RT and ask them over the phone for advice, but 3 years is a…[Read more]
tom replied to the topic Press pause then wait and see… in the forum Treatment 11 years, 6 months ago
Vickie and Colin
Am well chuffed to read that Colin has turned that corner 😀 I remember that turn for me real well, its a great feeling at the time and still is, still not as fit as I used to be but at the moment its good Enough for me.
Get out and enjoy the Sun crack open that Wine (later though lol)
Love Tom Onwards and upwards xx
tom replied to the topic Keith Hindmarch in the forum End of Life and Grief 11 years, 6 months ago
I second that Jean As Jean says Andy you have put into writing for us all and done it eloquently (I have spell check)
I also am pleased that you will be representing us from here.
You will do us and Keith Proud.
RIP Keith
Tom Onwards and Upwards x
jmsmyth replied to the topic Keith Hindmarch in the forum End of Life and Grief 11 years, 6 months ago
Andy that was so lovely written. You were able to write things that I would not be able to put in writing. Thank you for that. Andy I think you would a great representative for Keith's cyber friends at this most sad time. My thoughts and love will be with Sue and family and you and all his friends.
Love Jean xx
jmsmyth replied to the topic Question…..maintenance treatment in the forum General 11 years, 6 months ago
Hi Peter I have PM you for info
Love Jean x
BADGER replied to the topic Press pause then wait and see… in the forum Treatment 11 years, 6 months ago
Dia
I am keeping everything crossed for you I am really glad you are positive and the news about the treatment is sounding better thinking of you
Love Jo x
BADGER replied to the topic Prioritising in the forum General 11 years, 6 months ago
Hello Mavis
I am on the 5th cycle and after the 6th UCLH want me to go on fortnightly velcade and extend the regime to 9 cycles instead of 8 I hope it works can only give it a go:-Dhope you enjoy your trip to see your daughter
God bless Jo x
tom replied to the topic Mum in the forum Newcomers 11 years, 6 months ago
Hi Hawkeye
Sorry to hear about your Mum am sure they will sort the nose bleeds out soon.
How old and where is your Mum having her treatment.
Tom Onwards and Upwards x
eve replied to the topic Keith Hindmarch in the forum End of Life and Grief 11 years, 6 months ago
Hi Sue
We all new Keith,but not you,I hope you can find some comfort with the knowledge,that he will be missed by his cyber friends, he never posted a photograph of himself,but we all new when he was not posting specially when he new that time was not on his side.
He made time to reply to other people who asked questions,as Keith was ahead…[Read more]
eve replied to the topic Mum in the forum Newcomers 11 years, 6 months ago
Hi
Sorry to hear about mum,nose bleed can be the result of many things,Myeloma is a blood cancer,which brings problems with blood eg platelets or blood to thin because of other drugs,needed to treat your mum,your mum is in the right place,they will take blood and find out why your mum is having a nose bleed,talk to your mum,she will be…[Read more]
tom replied to the topic Dr Brian Durie discusses diet for people with Myeloma in the forum General 11 years, 6 months ago
Hi Peter and Eve
I told you the red stuff is good for you and Eve I am was like Slim used to love my beer (I went for a few most nites) now am not too bothered if I don't have any ? Strange that ain't it.
Have a great Bank Holls and let's hope the sun stays out.
Tom Onwards and Upwards. Xx
eve replied to the topic Prioritising in the forum General 11 years, 6 months ago
Hi Pat
Just to set the record straight,I am a scouser,living in SE Kent,my family up north,would say I have a plum in my mouth after years of living south of the Thames .I am no Cille Black,I think Slim would divorce me !!!! I suppose because I left my roots,plus travelled I do have a different out look,plus Slim could live out of a suit…[Read more]
eve replied to the topic Dr Brian Durie discusses diet for people with Myeloma in the forum General 11 years, 6 months ago
Hi Peter
I read the article plus comments,my thoughts on this, it was sad to hear the last comments !!! I think if you are generally healthy,it gives you a head start when cancer strikes,but I do not believe if you do deprive yourself of things you have found a magic Formular .
When Slim got Myeloma I took up reading all about diets ,and…[Read more]
jmsmyth replied to the topic Keith Hindmarch in the forum End of Life and Grief 11 years, 6 months ago
Dear Sue
My prayers and thoughts are with you and your family at this very sad time. I never met Keith but I followed his journey for some time. He gave us all support and comfort and his knowledge of the awful disease, even whie going through such a hard time himself. May your memories and family give you strength through this very sad…[Read more]
tom replied to the topic Prioritising in the forum General 11 years, 6 months ago
Hi all
First Eve "Tom men do not notice dust in fact rooms are round when it comes to hoovering " if I could be I would be (shocked that is lol) .
First let me say when the Young Bride is at work and am at home what I do half an hour before the young bride (Elaine) gets home is::::
Fetch out the Hoover (I know where it is now) plug it in…[Read more]
tom replied to the topic Keith in the forum General 11 years, 6 months ago
Thanks Andy Ellen has posted it on here also (end of life) I know its sad to hear so am sending Big Hugs to us all at this sad time.
Tom xxx