Hi Sarah

And welcome back but am sorry your cells are hiding away from the Nurse 🙁
am sure its not nice to lose your hair but for me I felt it was a blessing no shaving no haircut for Months, but am sure you will all cope with it also.

Enjoy the long week end and hope all falls into place pretty sharply.

Love Tom Onwards and Upwards xx

Ellen Thank you for letting us know that Keith has passed away, its not easy when one of the group get ill let alone Pass on. Love and Hugs to you all.

Dear Sue and family
Please accept my condolences to you all at this sad time, I never met Keith but I want you to know he gave me strength in the way he fought hard with his MM and for that I…[Read more]

Dear sue,

My sincere condolences to you and the family, r.i.p. Keith!

Love liz & kev xx

Hi SarahJane

I was wondering how you were getting on. Sorry to hear you couldn't have the stem cell transplant on time but it doesn't seem like you have to wait too long. I am still ok but things are progressing so I don't think I will have much longer to wait before starting treatment. Enjoy the sunshine! Take care Andrea xx

Hi Dai

Enjoy the break from treatment. Glad you are feeling a bit more like it.

Do hope your Consultant comes up with a good plan. At least she seems"on side" and you certainly keep challenging them which is good. I keep reading on the American Site of all these Trials for refractory patients. It's a shame we don't seem to have so many…[Read more]

Hi Jo

Glad to hear your treatment is going OK. How many more lots have you got to have. You know I watch you closely as another none ScT member of the Site!

I am going well, apart from an outbreak of cellulitis in my legs, not too serious, and lots of back pain. However, have just booked our flights to visit my daughter in Luxembourg in…[Read more]

Hi Jan

I wonder how many would take it up!!!
Everyone can do fact but it,s just paper work or if you like a survey .
The Myeloma world is hear on this forum,because it tells you about how people are living with it now,how family react. My daughters do not get involved with the medical side,if I asked for help I would get it from them, I…[Read more]

Hi Pat

I'm with everyone else. I'm sure you will quickly adjust to retirement. There are plenty of other things to do in lif!
If you find time on your hands, it isn't for cleaning, or in your case shopping, but for doing the things you value most. I still have to take up the idea from Jet's Blog, to list the 50 things I want to do before I…[Read more]

Hi Helen

Slims ok about BMB he has had at least 6 says its not pleasant ,but would rather know the situation with Myeloma.

Only because we have been hear before the symptoms are all there,fatigue big time,body aching all over,colouring not good,appetite small,going backward with health,Slims a stubborn man takes a lot to admit to pain,but…[Read more]

Hi Everyone

By the time Pat reads these post,cleaner hired plus making lots of arrangements,away from work!!!

We were lucky we had a good head start on all of you,over a short period a long time ago,we made big decisions completely changing are life's ,sold business kept a small flat to let,and off we went,dog as well,travelling everywhere…[Read more]

Hi Dai

Well I must have read it wrong as well,Revidimide and Velcade had to be used before eligibility for Muks 5 .Which if only patients who were on CDR then Velcade then relapsing would be eligible,I would think they will be hard pushed to find patients!!!!

I would seriously question eligibility !!! Good luck Dai. Love Eve

Hi Everyone

Getting a cleaner is the best thing I did,only 2hrs but makes a difference,mind you she sought of hinted about my 20 year old dyson,and she did bring her own steamer,I went out and bought one the next week,no doggy smells to be found,when Slim has a moan about her moving things,I have to have words with him,he has old man syndrome…[Read more]

Hi Clare and Mum

Well know nowt about "Barts" but I went same rout as your Mum looks like she will be traveling Mine was 5 sessions of CTD then round the bend to SCT and that was in December 2009, I am now 57 and sat here in remission and Drug free.

Did I regret it Nope not once, a bit of a struggle but I knew it was going to work.

Love…[Read more]

Hi Pat

Well I for one don't blame you getting a cleaner in and I would take the glasses off till he/she starts then you wont see the dust Lol.
Keep taking the Tabs Girl you are moving the correct way.

Love from "Dusty" Tom Onwards and Upwards. xxxx

Hi Eve
been meaning to ask you how is slim doing is he well now did you manage to get his scan i know you were worried about it
Regards Jo x

Go for it Pat

If you can afford it why not I am not a great house wife if you dont move things you dont notice the dust we go out a lot if we can Your results sound good so perhaps not much longer for treatment I am on cycle5 get swollen ankles a bit but ok other wise the graduates sound fun they must have tsken you under their wing a surrgate…[Read more]

Hi Pat

Yes there is,I stand in amazement at people who do not get help in the house ,but if cleaning floats your husbands boat????,it's ok. I intend to spend as much time with Slim,not cleaning,less cooking and more going out.

As for depression it must come with the territory ,its the ability to recognise it,do something about it,and not…[Read more]

Hi Liz

Hope you have a brilliant time – bit green with envy 🙂 frank is 7 weeks post SCT and Frank is also looking forward to a nice holiday. He smouldered for nearly 7 years so we travelled a lot. I am a bit paranoid. We use Quinessence Synergy. We have been using it for years. Before we board flight put a few drops on hanky and just stiff…[Read more]

Hi Sandiex

Your mum should only get zometa side effects for a short while and it does work wonders with bones for a short period. Why Warfarin and not Claxane you could do them for mum they will do the same job but cost more, I would consider Claxane to be very important as chemo side effects are blood clots!!!,

Sandiex Osteo Cronosis of…[Read more]