tom replied to the topic Date for SCT in the forum Treatment 11 years, 6 months ago
Hi Jacquie and Geoff
Good Luck with it all its going to be worth it all.
Love tom Onwards and Upwards xx
tom replied to the topic Keith Hindmarch in the forum General 11 years, 6 months ago
Thank you Ellen, Keith and Sue I still have fingers crossed for you Both.
Love and Hugs sent to you Both.
Tom xx
tom replied to the topic On Tour in the forum Off topic 11 years, 6 months ago
Have A good one David, and am sure the weather will stay good for you
Tom Onwards and Upwards
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 6 months ago
Hey Ladies and Gentlemen
The Elephant nor its nor its comments cant do me or anyone any harm, I like most if not all of us understand whats looming up am afraid.
Carry on you lot 😀
Love Tom Onwards and Upwards x
eve replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 6 months ago
I am pleased this little thread has opened to a large one . Thanks to you Dai were would we be without you,
When Slim came out of remission, it just seemed if I could not be open about it and slipped it into some ones post.as Andy says you start not posting,it seems all doom and gloom,but this is the time you need opinions around you ,this…[Read more]
eve replied to the topic Happy Christmas and a HEALTHY New Year to you all in the forum Off topic 11 years, 6 months ago
Helen
Given Elizabeth a buzz on Facebook. eve
eve replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 6 months ago
Hi Dai
It's not that long ago I was saying to you,that you were going along one branch of the tree and Slim along another, how wrong could I be, trying t be positive,I could have lost him that first year and here we are 2 1/2 years later ,we did a lot of reminiscing last night,things we use to do !!!! Only out for 1 1/2 hours,he could only…[Read more]
eve replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 6 months ago
Hi Everyone
Tonight Slim and myself went out for a meal, to celebrate our 2nd wedding anniversary ,this one occasion when the elephant should be locked away in the cupboard , 2 years ago getting married in ITU, no honey moon,the first anniversary Matty my grandson died two days before,plus Slim was in hospital waiting SCT. So everything low…[Read more]
eve replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 6 months ago
Hi Helen
My feelings is hit it hard,Velcade worked for Slim,I would like to see maintenance with Velcade,they know for some it stops working!!!!,Slims on your tail,another BMB on 7 then wait for consultant on 24 for decision !!!
Good luck Helen get the Palmers cocoa butter formula and tell hubby massage every night,just do not tell him…[Read more]
BADGER replied to the topic Velcade side effects? in the forum Side-effects 11 years, 6 months ago
HI Paul
I am also on the same regime as you no real side effects except my ankles swell a bit just a bit of fluid retention so not so bad hate the dex though
I am diabetic so it really plays my sugars up but i can cope with that
good luck for the rest of your treatment
Regards Jo
BADGER replied to the topic Being Thankful! in the forum General 11 years, 6 months ago
Hi Mavis
I agree we have so many things to be grateful for especially the people who create these wonderful drugs that keep us going thank the Lord
Love Jo x
BADGER replied to the topic Mums reaction to Zometa infusion and Thalidomide with injection of Warfarin? in the forum General 11 years, 6 months ago
hI Sandie
sorry I cannot help with the Zometa as I dont have it but some people have reported flu like sysmptoms when they first get it but i think they settle down after a while
Love Jox
BADGER replied to the topic 2 weeks in hospital in the forum General 11 years, 6 months ago
hi Sandie
I was the same as your mun resistant to the first two antiB'S the good old IV penicillin some times the old drugs are still best how is your mum doing ok now i hope
Regards jO
eve replied to the topic 1 step forward and 1 back or is it 2 forward and 1 back.? in the forum End of Life and Grief 11 years, 6 months ago
Hi Sarah
Nice to know you look in and trying to get on with life,how many lambs this year,I bet you are glad to be in the south,those poor animals up north have taken a battering .
Grief does have to be done your own way, its a year on 24 for Matty,seems like yesterday,Slim came out of hospital,as it was all to much,next month it will be…[Read more]
mhnevill started the topic Insurance. in the forum General 11 years, 6 months ago
Hi Folk
Someone gave some really good advice re insurance a while ago, butI can't find it! Any advice. I want to go to Luxembourg. I have one quote, but they wouldn't cover my myeloma. I don't know whether to take a chance!
Regards.
Mavis
mhnevill replied to the topic My Velcade Journey in the forum Treatment 11 years, 6 months ago
Hi David
How I sympathise about your battle with pain. I am going through the same thing and my Consultant doesn't want me to take anti-inflamatories because of my kidneys. I have had to start again. Like you I have a goal in view. Visiting my daughter in Luxembourg in July – she is moving there with our only grandchildren so I have got to…[Read more]
mhnevill replied to the topic New in the forum Newcomers 11 years, 6 months ago
Hi Ann
Sorry to go through your thread to reply to Peter!
Peter, did your Consulstant really say "cure"?!!!!
Do hope your pain soon subsides.
Love
Mavis
tom replied to the topic Now how much "Off Topic" is this in the forum Off topic 11 years, 6 months ago
Am sure you could cut the feet out and let your legs stick through, and am sure it will keep you warm in Coffin 😀
Don't forget photo (before you need the Coffin ha ha
Tom
mhnevill replied to the topic The results are in for my PP's from cycle 13 in the forum Treatment 11 years, 6 months ago
Dear Andy,
Like everyone else I am so pleased to hear your news. Keep getting those PPs down. Like Helen, although not a young one like her, I agree it's not all about SCTs these days.
Very best wishes to you and Steph have a great holiday.
Mavis
mhnevill started the topic Being Thankful!. in the forum General 11 years, 6 months ago
Hi Folk!
It struck me in the early hours that I am 8 months into my remission following CDT. As I thought about it, I realised that I had never really internalised how thankful I should be to those who developed these drugs, and those who were ready to enter Trials about combinations of drugs and safe and most effective dosage. I say now ……[Read more]