Hi Dai

I agree with you Post, but have you any ideas as to how we can take things forward. Do we need to ask the CO ofMUK to take this forward. The myeloma web site in America seems to have been able to make a real difference. Of course they have the advantage of scale, but still a Voluntary Org.

I have just responded to a…[Read more]

Hi Helen

So sorry that it is a relapse and not a blip. Weird thata you feel so good. Maybe that's an omen that you will,have lots of energy for the next round 😛 you have such a positive attitude, I have everything crossed for you

Love Jean x

I just might take it to Asda and have a walk round Lol

Tom xxxx

Hi Peter

Bald? me?? well I must have a look in Mirror, am sure I have a good head of hair? al be back in a few mins ?
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WOW am Bloomin Bald :-0 Now I wonder when that happened???

Might have to look at "Wigs" what Colour should I have??
The "Red" will do you the world of good 😀 and may I say nowt wrong wi your eyes…[Read more]

Thanks folks as you can see I love it and am comfy in it 🙂 Dai you Must Post a photo for us all to see.

Tom Onesie'd and Onwards and upwards xx

Aww Helen

Am, sorry you got the confirmation about the relapse 🙁 big hugs to you (hug)

And as for all over the place you are entitled to a bit of that but it will soon be time to take the new challenge on and go down a new route.

Fingers crossed for you Helen 😉

Love Tom Onwards and upwards xxx

Yes good post now all we need is a few Newbie's to start it off 🙂
As Tom says we have deadlines to beat.

Hi Mandy

Welcome,,everyone on here will tell yo the Myelma journey is like a rollecoaster ride,mentally and physically ,everyone is different,plus add the equation of carers ,you get a real mixed bag!!!!,so every thing yu are feeling is normal.

It sounds if you are doing well,had a few blips,but on track,to help your back!!! Plus SCT,it…[Read more]

Thanks Ellen for passing on Sues message. My thoughts are with Keith and Sue I too remember Keith's postings from the old site. He was a great support to many. My love and prayers are with them both

Love Jean

Hi Helen
Well it's a shame you ain't on Face Book, but I have posted the Onesie on the General board as I don't want to shock folk with a chest infection ha ha.

Love Tom xxx

Well that one worked its on lets try another one Ha ha, me Relaxing in Onesie ha ha

Hope its not too much of a shock he he

Love Tom xx

Dear Keith and Sue

My Thoughts and prayers are with you both at this time.
Am sure you knew you were getting closer and I hope its a comfortable Journey.

Ellen Many thanks for the info, and if it possible to send our best to them Both I would greatly appreciate it.

Love to you Both

Tom xxxx

Hi Ellen

I'm sure lots of others will say the same, is it possible to send on our love and best wishes to Keith's wife, and I'm sure many prayers will be said for him too.

Mavis

Hi Helen

Sorry you had all this to cope with just when you were through the worst after SCT. Just hope it all turns out to be a blip. I remember once, on a pre-op session, being told that I had a silent heart attack. Carrying this worry for years, a later ECG showed no sign of it, so it shows they can get things wrong.

Love.

Mavis x

Hi Tony

I agree with Helen, your post was very encouraging. Has your MM had any bone involvement.
Yes, I know how we all worry about the numbers. I find it hard to get results too which is frustrating.

Very best wishes. Don't work your life away, but may your non treatment phase last for years.

Mavis

Hi Sarah
And Thanks (gosh I do wish I could Blush) x

I hope Life has slowed down for you now as am sure it cant all be rush rush rush? or can it?

And you are welcome
Love Tom xxx

Hi Tom

Can I add my best wishes to everyone else's.

Very best wishes.

Mavis

Hi Ann

So sorry to have to welcome you to the Forum. As everyone has said, everyone's MM journey is different. If your blood shows Paraprotein, the level of PP at diagnosis, and the rate at which the readings rise will influence decisions about treatment regime. It might be useful to speak Myeloma UK Specialist Nurse with your specific…[Read more]

Hi Nikki

Frank was in the same boat. All his bloods were dood except for potassium. The kept him in an extra 3 days on a drip.potassium started to rise and they said he could go home. Frank asked was it his own body or the potassium drip that was responsible for the increase. They said it was a good point and kept him in another day. They gave…[Read more]