Hi Helen

I just remember when you were diagnosed,with a simple blood test,as a nurse you never saw it coming,you questioned yourself ,no matter who you are aches and pains are a part of life,it is looking back and thinking as a nurse,I should have seen that coming,or as Sue says hindsight .

I do think sometimes the patient can be to close ,I…[Read more]

Tanya

Am sure you know I am so sorry to hear about your dads Passing.

I am pleased you spent your time with him as he went to sleep am sure it was/is a comfort to you at this sad Time.

Stay well Tanya.

Love Tom xx

thanks folks all better now. 😀

And this great weather is dong me great guns

hope it lasts

Tom Onwards and upwards xx

Hey Tom

Good Luck with it I had my SCT in December 2009 and am sat here still in remission and drug free 😎

Tom Onwards and Upwards 😀

Hi Charlie and Mary

No I didn't keep them away from me but to be fair Elaine (the young bride) had to clean Sam the parrots cage out for me, but I still had a wee cuddle from Charlie our Yorkie 😎

Elaine and I are not what people call domesticated to be fair might be that's why I have done so well Lol.

Am Sure its going to be fine…[Read more]

Hi Ann

A warm welcome to this great Forum, I see you have made yourself comfy already That's Good 😀

I wish you well in your road to remission, looks like you might be going down the road I travelled, My first defence was CTD then onto Stem Cell Transplant, I have 5 sessions of CTD then waited for a spot to have my SCT and all this was in…[Read more]

Hi Jean

Pleased you are feeling better,you got to see the x rays,that's more than I did,it pays to ask questions or in my case be a pain in the a——–s.keep asking as Bridget use to say,knowledge is power.

Is you husband on trials???

Take your boots off its spring,if you cannot cope emotionally ,go to see doctor ,nothing worse than…[Read more]

Hi Sue and Helen

Slim has been much better with sleeping since we saw are own doctor,and if Slim sleeps I sleep.

I spoke to her,she recommended paracetamol on top of Oxycodone ,which has helped,he is always reluctant to increase drugs,this is a man who never had a prescription until he was sixty and that was a drug being pushed through…[Read more]

Hi Ann

Welcome to the forum. Where are you being treated? There are probably other people on the forum close by. I am 51 and was diagnosed last August and will probably start treatment soon. I wish you and your husband luck in your treatment and recovery. Take care Andrea xx

Hi Mavis

thanks for your kind thoughts I am doing ok now velcade seems ok how are you still in remission I hope
God bless
love Jo x

Hi Tom

Start eating ,you can eat for as much as you like,but keep it health, 😛 🙂 😎

Then it will not matter about weight loss,you must be feeling ,it's all bee worth while,lets hope you have a very long remission .Eve

Hi Sandie
Yes I am on the mend am well into this back to work Lark, honest just go out and buy the Onsite he will love it, I don't wear it too Bed Sandie its just for loling about downstairs Lol .

Ali sorry to hear about your Mum 🙁 I think the chest is now ONE of our weak spots am afraid winter or summer, Hope your Mum is soon sorted Ali…[Read more]

Hi Dai and Tom

May I suggest a design problem with a onesie it concerns men and women,not so much kids as there bodies are flexible .you do need an a functional escape area,were you can quickly remove part of he garment,to attend to you normal body functions.

Love Eve

Hi Helen
I wish you well on your belated or should I say early birthday,I feel like that about Christmas Slim has nt been well enough to enjoy one for a few years,with that in mind why do I look forward to it !!!

We all need a little Mills and Boon,in are lives even the people who go uck!!,seriously does this heart problem worry you,or are…[Read more]

Hello Terry
go ahead and blub why not we all do because terrible mm dont give up hope loads of new treatments coming on stream my husband is my carer he does get a bit depressed but he will be with me all the way as i am sure your wife will be for you so try and look forward as someone said to me the other day if you are a good poker player you…[Read more]

HI mothias

great news wonderful Uclh hope it goes well for you and you get a long long remission:-)
Regards Jo x

Hi Tanya

So glad you managed to be with your Dad,that is something no one can take away from you,be kind to yourself have no regrets,
You are a lucky lady,good husband kids and a kind mother in law,
Move on with your life and enjoy it.Eve

Hi Sue

I will keep trying,I do understand that even with the knowledge a PET scan brings,it will not change the outcome in Slims case,what they fail to understand,we need that knowledge !! I say this because we are busy planning are future, we are retired and intend to make the best of what ever time while Slim is reasonable fit.
I think they…[Read more]

Hi Ted

It is not strange,it sounds if they are checking your Kappa Light chains,they send a blood sample off takes a while for results to come back,then I'm a few months they will do the same again,this gives them extra knowledge to see how the Myeloma is advancing,it is just another marker to manage the stage of Myeloma.

Hope that…[Read more]

Hi Charlie and Mary

Aww bless you Mary I feel you are being overwhelmed by this cleaning lark !!
Yes I had. An African Grey Parrot and trust me they are dirty dusty birds and we have a dog, we coped as you two will, it's just same as keeping a new baby's feeding bottles sterile and clean.
As for Charlie's other room well I slept in another…[Read more]