Hi Maureen and Ian

Its good to hear of a good response but its slightly blighted with the shingle I bet.
Take care

Love Tom Onwards and Upwards xxx

Dear Tanya

I am so sorry that your dad is on his final Journey, my thoughts and prayers are with you all at this sad time.

Lots of love and Hugs

Tom xxx

Hi Gill

My its a hard time for any of us to wonder how and why any one could pass away when we are not ready for them to go, but unfortunately we can make that decision.

Its good that you have the photo's to look back onto albeit it makes you sad.

Think of the Good time Gill

Love and Hugs Tom xxx

Hi Jean and Mike

Sorry about the relapse Mike, and am sorry I cant add anything to your post just wanted to wish you both well

Tom Onwards and Upwards xx

Hi Dai

My you have been through the wars and like all good army's got some issues with supplies 🙁

Hope you made that phone call and its soon sorted out Dai.
Fingers crossed for you

Tom Onwards and Upwards

Hi Jacquie

Am sure they wont let you wait too long to get it done, the problem is bed space and as soon as on is free its booked for you.

Good Luck

Tom Onwards and Upwards xx

Hi Jacquie

No – no more chemo. His PPs were 1 when transplant happened. But i know others have had much higher PP when transplant took place. He has been home now over a week and every day there is a slight improvement. No good me telling you not to worry as you will, just as I did. What is the delay? Frank goes to Belfast City Hospital in…[Read more]

Hi Helen as the boys say he must be feeling better as he is complaining 😀 appetite is improving every day. Still not eating a lot but getting there. He had a beer and a whiskey tonight – one thing about Frank – he gets his priorities right. His daily exercise is climbing the stairs a few times a day. When he first came out he couldn't manage…[Read more]

Hello Jacquie

Frank was harvested in December and transplanted end of February. I was also worried I case he relapsed- proteins going up but consultant did not seem to concerned. Maybe someone else on forum can give you more insight into it. I hope Geoff has an easy time with it

Best wishes
Jean

That's right Helen 6 months for USA

Jean x

Hi Jean

I did try again to day,but I was met with same explanation which is PET SCAN WILL NOT TELL YOU WHAT IS GOING ON IN THE BONES. I said I know that but it will show if it in the soft tissue,fell on deaf ears.we know its 10 percent in bones,no extra damage shows on MRI or exrays.. He has another BMB on the 7 of May blood taken for…[Read more]

Hi jean

Looks if your post,slipped down,and you had no reply.

I am sorry Mike has to start treatment after 5years. I take it he has come out of remission !?!!

Velcade did work for Slim,and managed to get to SCT,but he only got 6months before it came back. Asa drug Slim did not have many side effects,in some places they do it subcutaneous…[Read more]

Hi Eve

Don't understand why hospitals all differ. Franks consultant is organising a PET scan for him. As she said no myeloma showed up in blood and as his PPs were falling before treatment started it is the ONLY way to find if the myeloma is active and to what extent. Eve you fight Slims corner with all your strength – keep nagging until they…[Read more]

Hi Jo

Good to see you up and running now, now you stay away from that pneumonia you know it isn't good for you.

Stay Well Jo and Catch you Lata

Love Tom Onwards and Upwards xxx

Hi Dai

Just a quick note,I think Janet would benefit from this site,cannot get Slim on it,says its my thing, but as time goes on he wants to know more and has started to watch the info videos on here.

I have been trying to get the Myeloma team to consider a PET scan for Slim,but falls on deaf ears,say they do not do PET scans for…[Read more]

Hi Tanya

I remember your posting,All parts of the past,and future,with lots of painful memory's and your dad more or less choosing to ignor his ill ness for the sake of alcohol .

This will be a sad time for you as so many issues not resolved,but you can only do so much,you cannot change your dads future,be kind to yourself,for give…[Read more]

Hey Jo Jo

Glad you are out of hosptall and on the mend. Hope all goes well with next cycle

Cyber hugs (as Tom so nicely puts it)
Love Jean xx

Hi Maria, lovely to hear from you, I have been wondering how you are getting on. Well done getting through the CTD. When do you have to decide about the transplant? My paraproteins are over 40 now so I don't think I will have to wait too much longer to start treatment, I just want to get on with it! Yes it does seeem we have alot in common…[Read more]

Hi Jo

Nice to know you still with us,you have been in my thoughts,Keith Marie and you all went quiet,we know Keith's in hospital and at last you have posted.

You are going to have to teach your husband to post,tell him we were getting worried!!

It,s a long haul getting yourself. Fit after Pnuemonia , it is just a blip,make sure you get…[Read more]