Hi Rob

My husband is 69 years young this year has had Myeloma for 2 1/2 years CDT did nothing Velcade got him in a position for SCT he has had only 6. Months remission,but he is ready for the next treatment which we think will be Revidimide .he is in a good frame of mind which helps.

My husband has looked very ill at times weighing 60 k…[Read more]

Hi Pete and all

Well done Pete 9 years brilliant 🙂 long long may it continue.

We are just back from consultant once again she was ahoy with Franks bloods. But after the news of the other day "NI indication of myeloma in blood" started to bug me. As I said in previous post Franks protein had been dropping long before treatment started. So…[Read more]

Hi Rob

I was going to say a warm welcome to the site,but running out of options,is not welcome

You do need some of the more experienced people to tell you if there are any more option s or Ring the myeloma nurse she might be able to help.

You do not say what age your mum is and I do think it might have some bearing on her position and…[Read more]

We used World First….no health issues to claim for thank god, but we did have a broken camera which they paid for no problems.
Debs

Hi Dai
I can understand you being angry,

You know you have to keep your eyes wide open,not giving Zometa early is an example.

Why wait?? Ring up speak to someone about the injections,this gives them time to have a talk,before they see you again.Eve

Thanks Babs and Helen

Babs, I am just not sure whether it is just the revlimid because of the fact I've been on it so long without any side effects. Helen, I think you might be right about slap cheek….sort of didn't want to face into it. I'll see if I'm the same tomorrow and perhaps get a GP appointment if so. I've now scared myself reading…[Read more]

Great news Jean….really pleased to hear that it is all going so well….hope Frank is chuffed too 🙂

Deb x

Hi Gill

Yes, what a lovely picture. Stephen obviously had a lovely friend in his dog!

I was mentioning about talking to a photo, in an earlier post, this would be a lovely picture to "talk" to.

Take care and continue to be kind to yourself.

Love Mavis x

Hi San

Sorry your Mum is having such a hard time. Does your Mum have any arthritis by any chance as my Pain Nurse says the morphine type drugs don't help that pain so I am taking anti-inflamitories as well.

I have also begun to have some physio at home and the exercises are certainly helping my back by strengthening my muscles.

Do keep…[Read more]

Hi Ella

My advice is to bring appointment forward. My hubby Frank smouldered for 6 and 1/2 years. Then he had a pain in his left side. Tried to coax everyone Including himself that he had pulled a muscle. Consultant sent him for an MRI which showed up a small lesion on ribs. When he saw radio therapist she said it was so small she wouldn't do…[Read more]

Hi Michelle
I suppose it could be linked. My transplant has meant I've definitely gone through an early menopause with hot flushes and all that but I suppose this could be a new and different aspect to it. It's just come very much out of the blue!
Thanks for the thought though…may kick me into action re going to speak to my GP about it all.…[Read more]

Hi Wendy

It is the only way to do it

Remain positive and get out and do as much as you can!,
Have bought new Motorhome scaled to a small one,we always said we would do the UK when we were older,but it looks if Slims health has bought UK near.
A moterhome. Floats are boat,not one for hotels unless its some were like St Lucia.
So glad…[Read more]

Hi Andy

I am so pleased for you and Steph. I am sure you are over the moon. Enjoy your drinks you deserve them, it's about time you had good news 🙂

Love Jean x

Hi Andy

I think the reason your not on here often is that you are always out on the Razzle Lol.

Good Luck on Cycle 14 and with "Chemo Brain" soon you wont remember how bad it was Lol.

And listen Folk it isn't Eve's I Pad it is the GT 😉

Tom Onwards and Upwards

Yes I also am hopping Keith is ok and its just a rest he needs from the Forum thing and shove the MM to the back of his mind.

Tom Onwards and Upwards

Gill that is a really lovely photo 🙂 . I'm sure it brought back wonderful memories.

Love Jean xx

Hi Richard

I might be wrong?? but the medical for HGV is to check heart, Eyes and BP ?? as has been said the combination of drugs might put you on a fail?? I drove (car) all through all my treatment CTD and SCT no problems
All the best with it.

Tom Onwards and Upwards

Hi Maureen and Ian

Well the only people that can look after a loved one is a loved one am afraid.

Its so tiring being a carer more so than us that have the MM, please look after yourself as well as Ian, I hope the treatment is soon started

Love Tom Onwards and Upwards

Ann that's great about Pete going back to work I'm sure you are both delighted that he has come so far in such a few weeks. Well done Pete 🙂 . Frank also has no energy, he is eating a little and had a choc ice cream this afternoon. He also had a Guiness last night and is having another one tonight. He had a sip of my wine and he liked it but…[Read more]