Dear Sandie

I am so sorry to hear your Mum's bad news. It does seem very unfair doesn't it. I am only glad it is not agressive so you can make the decision to make any treatment low key. I have heard that breast cancers grow very slowly in the elderly so let's hope this is the case with your Mum – she has enough to cope with. I pray you…[Read more]

Hi Megan

It's good to read that other people have the same problem that was rectified. (Boy that sounds weird but hope you know what I mean 🙂 . They were supposed to take the Hickman out yesterday – didn't happen and then they said today. Frank just phoned to day that it would not be happening. The dr told us yesterday that the longer the…[Read more]

Hi Dai,

I am sorry to hear that your neutrophils are not behaving themselves, hopefully by next week they will have recovered enough for cycle four to start.

Megan

Hi Chris,

Phil is 3 months post his SCT and like Tom said, he is very itchy from the hair growing back. Phil doesn't have a rash but the hair growing back is causing a lot of scratching 🙂

Megan

Hi Jean,

I did the same thing just before Phil came home, dettol on every surface, all light switches and door handles cleaned and I carried on doing it daily for the first month but as his blood results got better I was able to ease up on the daily cleaning. It is funny how the new found understanding of germs changes your perspective, I…[Read more]

Hi Maureen,

That is great news, hopefully it will inspire Ian to do more physio and get home as soon as possible 🙂 The trips to the hospital must be wearing you out, please try and look after yourself as well.

Megan

Hi Val,

That is great news and very encouraging for those of us at the start of the journey, my husband Phil was diagnosed in May 2012. You are right about all the new treatment options that are becoming available.

I hope the house move goes well.

Megan

Hi Babs,

Happy Birthday stem cells :-). Your post is very encouraging for Phil and I, Phil's first stem cell birthday will be December 20th, 2013. Enjoy Australia and your other holidays.

Megan

Hi Helen

How was the holiday? Hope you had a ball! 🙂 Lovely hot weather. We were snowed in for days. Fortunately one of the boys has a 4×4 so he could get in to take me to hospital. Then they all came and dug my car out and made a path for me to drive.

On sunday night Frank was feeling weird and they put him on the ECG. They asked if he…[Read more]

Hi All
Just a fast one.
The Itch could be your hair starting to grow I had same and when haire rerew it stopped.

Have a great day work for me now 🙂

Tom Onwards and Upwards x

Dear Ann

Am sure its hard for you, and I am sorry you are finding it difficult, rather than being on your own can you not go and visit Family and or Friends, and get them to visit you, I know you might not be up to it but one lovely Lady (Min) said on here that its better to expand your world rather than allow it to close into you.
Am sending…[Read more]

Way to go Val 😀 well done you, am pleased to hear good news again 😎
All the best for your Move and don't lift too heavy a box 🙂

Love Tom Onwards and Upwards xxxx

Val very good news. Well done long may it continue 😀
Love Jean x

Hi Jan

Welcome to the site,and I am sorry you are going out of remission.

I might be wrong on this but reading present information. To be eligible forMUK. 5 I think you have had to had Revidimide ,you do not say if you have been on MX1 trials???.
I thought the criteria was you have had to have had Revidimide ,before acceptance on these…[Read more]

Hi Vicki and Colin

Thanks for thinking of us. Things were going good – neutrofills went up to 1.8 so he came out of isolation. Next day dropped to .2 so back to isolation. Today he is feeling better even got a bit of appetite back. I brought him in melon an ice cream and he wolved it down. Antibiotics finished and so have all IV's. he reckons…[Read more]

Hi Joanna

I am sorry you have had to join us,you are so young with children if you want to join the under 50site you have to apply look on this thread I think Deb,s up,d the post last time.

If you do not mind joining the rest of us,it would help if you went on the Newcomers bit,just introduce yourself and tell people a little about…[Read more]

Hi Alco

You can not base having Myeloma purely on urine,other factors are taken into consideration.it is not worth going into unless you are diagnosed with myeloma,low white blood cells can open up many problems,so do not go scaring yourself thinking you have Myeloma it is uncurable.

Go back to your doctor or speak to a well qualified…[Read more]

Hi Dai

It is good news,I hope if the medication you are on does not work I hope you get this one 500 people only,as you said it has to show in urine,

I worry that as Slim did not respond to thalidomide how well will he do on Revidimide ,and if the same conditions apply,he will not qualify for the new trials.

Any one heard from…[Read more]

Hi Jackie

I am so sorry you are finding it difficult to cope at this time my heart goes out to you.

I am fortunate to have never been in this place that you find yourself in so I cant say "I know how it feels" as I cant.
I am doing good but that said Like Dai I talk about it not only to my wife but my Sons also that way their will be no…[Read more]

Hi Nerys

Your more than welcome, and as you say its good to hear about remission and long ones at that 😀

And just to add to the Good news I have been in remission since 2009 and drug free since 2012, and am selfish as I am asking for a longer remission 🙂

Good Luck to you Both

Love Tom Onwards and Upwards xx